Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.
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If you're experiencing a difficult time with COVID-19, you're not alone. Many people, including myself, are struggling with managing anxiety, stress, and isolation. Additionally, this time period can feel traumatic,…
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Raise Your Resilience: Standing Strong through COVID-19
Scientists and researchers have long known how important glial cells are to the nervous system. Not only do these cells make up a majority of cells within the central nervous…
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Scientists Can Identify Schwann Cells Using Novel Bar Code Technique
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According to a recent press release, biotechnology company Cancer Prevention Pharmaceuticals (CPP) submit a New Drug Application (NDA) for accelerated approval of their drug therapy CPP-1X/sul to treat familial adenomatous…
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NDA Submitted for CPP-1X/sul, a Treatment for FAP
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Without treatment, spinal muscular atrophy (SMA) is the top cause of infant or child mortality before age 2. As a result, early detection is crucial in improving patient outcomes. But…
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Illinois Begins Newborn Screening for SMA
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As shared in Medscape, the FDA recently approved oral octreotide (Mycapssa) for the treatment of patients with acromegaly. These delayed-release capsules are the first approved oral somatostatin analog ever approved.…
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Oral Octreotide Approved to Treat Acromegaly
If you're getting started in bodybuilding, weight-lifting, or just working out, there seems to be one common piece of advice: eat more protein. Protein consists of amino acids which play a…
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A Guide to Bodybuilding with PKU and Other Metabolic Conditions
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Global Blood Therapeutics (GBT) will submit their Marketing Authorization Application (MAA) for Oxbryta to the EMA by 2021, says a recent BioSpace press release. Ultimately, the MAA will seek regulatory…
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GBT To Submit MAA for Oxbryta for Sickle Cell Disease
If you could take a vaccine to prevent disease progression, would you? Well, researchers recently tested the efficacy of such a vaccine for patients with Parkinson's disease. The experimental and…
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Positive Results Prompt Phase II Trial for Affitope PD01A
During the beginning stages of COVID-19, there was a common refrain: "It's no big deal. It's just like the flu." But just a few months into this global pandemic, we…
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Surviving COVID-19: The Untold Stories
This morning, SynAct Pharma AB announced in a press release that they began a Phase II clinical trial to determine the efficacy and safety of AP1189 on treating patients with…
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SynAct Begins Phase II Study on AP1189 for Membranous Nephropathy
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An NIH news release shared that a study on polycystic ovarian syndrome (polycystic ovary syndrome or PCOS) discovered that the condition might have two distinct subtypes based on genetic mutations. Through…
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New Study Suggests 2 Gene-Based Subtypes of Polycystic Ovarian Syndrome
According to LabioTech, a psoriasis drug developed by biotechnology company Affibody showed promising results in a Phase II clinical trial (AFFIRM-35). This trial, which consisted of 108 participants with…
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Psoriasis Drug Now a Potential Candidate to Treat PsA and Uveitis
It amazes me how quickly the numbers change each time I write about COVID-19, the novel coronavirus declared a global pandemic in March 2020. As of the afternoon of…
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RLF-100 Given Fast Track Designation for Treatment of COVID-Related Respiratory Distress
When Elsa Cavazos was in high school, she experienced some physical "abnormalities" that she wasn't quite sure how to deal with. While peers worried about the occasional zit on…
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Understanding the Emotional Toll of PCOS
For most drug therapies, researchers test on animal models of a disease before testing on humans. Recently, using microRNA-483, a small RNA molecule, on rat models of PAH reduced…
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Data Suggests MicroRNA-483 Could Ease PAH Symptoms
Last week, my boyfriend took me camping for my birthday. But while we were out in the woods, he fell and injured himself; we thought his kneecap was dislocated…
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ACR Publishes New Guidelines for Ophthalmologic Care in Pediatric Patients with Uveitis Risk
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As the medical field advances, so do drug therapies and treatment options. According to Asbestos.com, which is headed by The Mesothelioma Center, a novel immunotherapy drug called ramucirumab significantly…
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Novel Drug Ramucirumab Improves Patient Outcomes for Pleural Mesothelioma
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As you know, COVID-19 has fundamentally changed our daily life. What began as a novel coronavirus in Wuhan, China has developed into a global pandemic: 9 million diagnosed cases…
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Alexion Donates $1.1M to Rare Disease Community
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Patients with Parkinson's disease or essential tremor are no strangers to shaking or tremors. In fact, for patients with Parkinson's disease, their tremor progresses throughout the course of the…
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No Surgery Needed: New MRI Techniques Treat Parkinson’s Tremors
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In a Business Wire press release, the Canadian NASH Network (CanNASH) shared the results of a recent study predicting a severe increase in cases of nonalcoholic fatty liver disease…
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NAFLD and NASH Predicted to Be a Growing Health Emergency
"I thought it was a hernia." When George Benson experienced lower abdominal pain in 2009, at age 51, he wasn't concerned. He was a truck driver, artist, and family…
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More Renal Cell Carcinoma Treatments Improve Patient Outcomes: George and Shaun’s Stories
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It's no surprise that our family can have an impact on how we grow up: our behaviors, beliefs, attitudes, values. But perhaps most importantly, our family history impacts our…
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Family Psychiatric History Linked to Bipolar Disorder Severity
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If you've been overwhelmed by the news and are looking for a feel-good story, you've come to the right place! Five years ago, when they were just 5 years…
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Brothers Raise $1500 for Newborn Twins with NEC
A recent Italian study sought to understand how patients with asthma and chronic rhinosinusitis with nasal polyps (CRSwNP) compared to patients with asthma without any other condition. They examined…
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CRSwNP Increases Asthma Attacks, Corticosteroid Usage
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If you're like me, your life has changed immensely over the past few months. COVID-19, a novel coronavirus with 8.39 million diagnoses worldwide, has kept us inside and changed…
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June 24: Celebrate “Mobility Day” with Variety