Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.
If you're like me, COVID-19 has become a major part of your life: in research, discussion, or just daily impact. That's no surprise, considering the numbers. At the time of…
According to News Scientist, researchers from Tufts University recently sought to understand whether Alzheimer's disease could result from viral causes. They focused on herpes simplex virus 1 (HSV-1), a common…
According to a press release from PR Newswire and GuruFocus, drug discovery and development company Sutro Biopharma received promising phase 1 clinical data for their drug therapy STRO-002. Their Phase…
The COVID-19 situation is rapidly evolving every day. At the time of this article, there are just under 4 million diagnosed cases worldwide, with 1.3 million in the United States…
Chive Charities is a 501(c)3 non-profit organization committed to providing patient advocacy and support. They have raised money for a young girl with a mutated CAMK2B gene to receive intensive physical therapy at…
When Shellye Horowitz was younger, she had a clear link to the rare disease community: her father. He had hemophilia and, much like many patients, relied on blood clotting factor…
Bronchiectasis News covers a potentially beneficial treatment for patients with bronchiectasis: bubble-positive expiratory pressure, or Bubble-PEP. These devices help clear mucus from the lungs. Although other forms of airway clearance…
According to BioTechniques, American researchers have taken a new, hands-on approach to learning more about cytomegalovirus-induced microcephaly. Although cytomegalovirus has been linked to microcephaly, the topic is somewhat under researched.…
A team of researchers recently clarified how cellular mechanisms work in the treatment of Krabbe disease. Previously, researchers believed that bone marrow transplants assisted in providing positive patient outcomes through…
According to UIC Today, Jessica Lechuga became immersed within the rare disease community when she was still a teenager. That's because, at age 17, Jessica gave birth to her daughter…
According to WMC5, a research study out of Cleveland, OH, has been testing the impact of robotic exoskeletons on movement for patients with multiple sclerosis. For Kathy Miska, this is…
Según un comunicado de prensa en Global Newswire, la compañía biofarmacéutica MediciNova recibió un Aviso de concesión para una solicitud de patente para MN-166, que podría usarse para tratar el…
Patients with hemophilia may experience sudden bleeding, joint pain and inflammation, and deep bruising. But according to Hemophilia News, two proteins may be the cause. Researchers found that patients…
COVID-19 has rapidly spread across the globe. With nearly 2.7 million diagnosed cases, the medical field is overworked. As a result, many hospitals and doctors are experiencing a lack…
According to Angelman Syndrome News, researchers used rat models of Angelman syndrome to test gene editing as a potential therapy. They found that CRISPR technology deleted the defective UBE3A gene. However, rats…
As COVID-19 continues to spread, and the length of our lockdowns increases, many patients with rare diseases and their families are wondering what comes next. How will you receive treatment?…
Recientemente, el Dr. Ian Winburn de Pfizer se sentó con Europabio para una entrevista en honor del Día Mundial de la Hemofilia, que acaba de ocurrir el 17 de…
As COVID-19 continues to spread across the globe, more and more people are wondering how this virus might affect them. This is especially true for patients with rare diseases,…
According to a release from the UVA Health System Newsroom, Dr. Zhen Yan, PhD, discovered that exercise can reduce or totally stop severe respiratory symptoms associated with acute respiratory…
According to Medical XPress, hospitalized patients with inflammatory bowel disease are more at risk of developing bacteremia, particularly if they are older in age. Researchers came to this conclusion using…
According to the American Journal of Managed Care, a case study in China has shown that tocilizumab was effective in treating a patient with both COVID-19 and multiple myeloma. When…
When this 20-year-old male patient was serving in the military, he came down with two severe medical issues: pneumonia and adrenal crisis, categorized by an issue with an adrenal hormone…
The world has now hit over 3.5 million diagnosed cases of COVID-19, with 1.2 million cases in the United States alone. Although the pandemic started in December or January, the…
Saying that COVID-19 has impacted the world might just be an understatement. In fact, COVID-19 changed the way we interact with each other, businesses, and the world around us. But how…
Recently, Pfizer's Dr. Ian Winburn sat down with Europabio for an interview in honor of World Hemophilia Day, which just occurred on April 17. In his discussion, Dr. Winburn…
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