Jessica Lynn has an educational background in writing and marketing. She firmly believes in the power of writing in amplifying voices, and looks forward to doing so for the rare disease community.
If you think about it, our brains are pretty amazing. It is one of our most complex features and contains tens of billions of neurons which help control the…
According to a drug filing and press release from Pharmaceutical Business Review, the FDA granted a priority review to GlaxoSmithKline for their humanized monoclonal antibody therapy, Nucala (mepolizumab). Currently,…
This year, because of COVID-19, many healthcare-related events and symposiums have been moved online. However, that doesn't mean that the insights are any less helpful! In the virtual ACR…
In a time of instability, health crises, and stigma, screenwriter Christian Hadjipateras advocates for a positive change. With nearly 5.69 million diagnosed cases of COVID-19, Christian notes that there…
In high school, Chuck Graham loved sports. He was a student-athlete dedicated to his teams. But then, at 16 years old, a car accident paralyzed Graham from the chest…
What do Michael J. Fox, Muhammed Ali, and Ozzy Osbourne all have in common? Well, they all received a diagnosis for Parkinson's disease. Around 60,000 Americans are diagnosed with…
According to StatNews, biotechnology company 23andme is looking to understand the intersection of genetics and COVID-19. Normally, 23andme uses ancestry kits to inform users of their genealogy. But now, the…
My coworker isn't social distancing. In fact, she's more touchy than ever. She always wants to cuddle or play when I'm in the middle of writing an article. She yells…
COVID-19 changed the way that many of us live, shop, socialize, and work. Currently, the global pandemic sits at 5.54 million cases. But even in places like Uganda, with only…
During the 10th European Conference on Rare Diseases & Orphan Products, hosted by Eurodis, many people advocated for improved newborn screening panels. In particular, these panels should include more testing…
What's better than a good night's sleep? In my opinion, waking up feeling refreshed is one of the nicest feelings. But for patients with Parkinson's disease, it can be difficult…
According to MedScape, tumor necrosis factor (TNF) inhibitors present severe issues for patients with autoimmune disorders. In particular, patients exposed to TNF inhibitors may experience inflammation throughout their central nervous…
According to Multiple Sclerosis News Today, the National Multiple Sclerosis Society recently released new exercise guidelines for people with multiple sclerosis. Exercise is extremely beneficial to health, for those…
A seemingly healthy baby was born in China. But as she grew up, her family started noticing that their daughter wasn't hitting motor milestones. She didn't start walking until she…
A few months ago, many of us were living completely different lives: going to rare disease conferences, heading to work each day, going out for food, seeing family and friends.…
Have you been feeling a little stiff or achy later? Maybe tired? I know that my body has undertaken a lot of stress thanks to the new life changes -…
The virtually-held National Kidney Foundation 2020 Spring Clinical Meetings explored various topics relating to nephrological conditions, treatment, and patient outcomes. One presentation, spearheaded by Dr. Adam Weinstein, MD, and…
Kelly and Rory McElligott, of Highton, Victoria, Australia, have 3 beautiful children: Maggie, Billy, and Alice. But the family was shocked when two of their children, Maggie and Billy,…
Recently, researchers from European Molecular Biology Laboratory (EMBL) looked to understand the cause of pulmonary arterial hypertension (PAH). They collaborated with Stanford University through the Life Sciences Alliance. Because…
Desde el distanciamiento social y los negocios cerrados hasta las preocupaciones personales de salud, COVID-19 ha cambiado la vida diaria en el futuro previsible. Hay casi 4.75 millones de diagnósticos…
Women can do anything that men can do, and vice versa. Well, while that sentiment may be true in our everyday life, it isn't quite true on a genetic…
For the last few months, we've been inundated with stories of COVID-19, and with good reason, considering the global pandemic reached over 5 million cases worldwide as of this…
Being at peace with ourselves and our lives makes daily living so much easier. Of course, sometimes it's easier said than done. But one tactic may help improve comfort, confidence,…
The medical realm is changing - but how does that impact patient care and clinical expectations? The National Hemophilia Foundation discusses how clinical expectations for patients with hemophilia don't necessarily…
Genetic research is a burgeoning and exciting field. With the discovery of new genetic mutations and variants comes a deeper understanding of rare diseases and their subtypes. According to Cancer…
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