The City of Hope Just Received Millions in Funding To Test A New Procedure to Treat Sickle Cell Disease
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The City of Hope Just Received Millions in Funding To Test A New Procedure to Treat Sickle Cell Disease

According to a story from bioportfolio.com, The California Institute for Regenerative Medicine has given $5.74 million to the City of Hope, a private, nonprofit clinical research center that is primarily…

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An Experimental Drug for Batten Disease Just Got Orphan Drug Designation From The EMA
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An Experimental Drug for Batten Disease Just Got Orphan Drug Designation From The EMA

According to an article from kait8.com, the pharmaceutical company Polaryx announced that its experimental drug PLX-200 has received Orphan Drug Designation from the European Medicines Agency (EMA) for the treatment…

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Transplants Can Be Essential For People With Chronic Kidney Disease. But What Are The Consequences For Donors?
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Transplants Can Be Essential For People With Chronic Kidney Disease. But What Are The Consequences For Donors?

According to a story from ABC News, medical researchers are beginning to monitor the long term health of people that have donated one of their kidneys. A kidney transplant can…

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A Study From Yale University is Helping Solve The Mystery of Idiopathic Pulmonary Fibrosis
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A Study From Yale University is Helping Solve The Mystery of Idiopathic Pulmonary Fibrosis

According to a story from seas.yale.edu, a recent study conducted under the supervision of Yale University is providing new clues for the underlying cause of idiopathic pulmonary fibrosis. The researchwea…

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Over a Hundred Rare Disease Patient Groups Are Voicing Their Support of Medicaid Formulary Access
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Over a Hundred Rare Disease Patient Groups Are Voicing Their Support of Medicaid Formulary Access

According to a story from the National Organization for Rare Disorders, patient advocacy organizations are joining forces to send letters to Medicaid directors across the USA to advocate for the…

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A Girl From Colorado is Receiving An Experimental Treatment for Her Batten Disease
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A Girl From Colorado is Receiving An Experimental Treatment for Her Batten Disease

According to an article from Times-Call Regional News, a seven year old girl named Mila Makovec has just begun an experimental treatment for Batten disease. Originally from Boulder County, Colorado,…

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Researchers are Learning More About Huntington’s Disease After Changing Patients’ Skin Cells Into Brain Cells
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Researchers are Learning More About Huntington’s Disease After Changing Patients’ Skin Cells Into Brain Cells

According to a story from the Washington University School of Medicine in St Louis, scientists from the university used a sample of skin cells from diseased patients and transformed them…

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