A Diagnostic Challenge: Do You Have Fibromyalgia and Ankylosing Spondylitis?
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A Diagnostic Challenge: Do You Have Fibromyalgia and Ankylosing Spondylitis?

Researchers wanted to know how likely it is for patients to have fibromyalgia with ankylosing spondylitis (AS). As a result, they found that particular comorbidity to be common. Marina Magrey,…

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Why are Von Willebrand Disease Peeps Thanking Vermont?
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Why are Von Willebrand Disease Peeps Thanking Vermont?

The Governor of Vermont made an official written proclamation March 3, 2017. He declared March as Bleeding Disorders Awareness Month, the state's first official observation of the cause. With this…

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Two Sisters Come Together to Fight Sickle Cell Anemia
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Two Sisters Come Together to Fight Sickle Cell Anemia

Many sisters may play pranks or bicker with each other often. According to ABC 11 News, Twelve-year-old Natalia and fourteen-year-old Nyasia Yarrell are no different. One minute they are mad at…

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Umbilical Cord Blood Could Make a Difference in Sickle Cell Anemia Treatment
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Umbilical Cord Blood Could Make a Difference in Sickle Cell Anemia Treatment

A new public cord blood donation center recently opened up in New York. This is the second of this type of facility to open in the state. In the past,…

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This Organization Helps Those with SMA AND Holds Cool Concerts
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This Organization Helps Those with SMA AND Holds Cool Concerts

Adyn’s Dream is a charity in Athens, Ohio. The organization provides live events that benefit families and their children that have received a diagnosis of spinal muscular atrophy (SMA). The…

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Tuberous Sclerosis Complex: What You Need to Know
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Tuberous Sclerosis Complex: What You Need to Know

TSC stands for tuberous sclerosis complex. Often times, it is known as tuberous sclerosis. What is TSC? Tuberous sclerosis complex is a rare genetic disease that can affect multiple areas of…

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Why is She Having a Difficult Time Accessing Marijuana for Seizures and Status Epilepticus?
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Why is She Having a Difficult Time Accessing Marijuana for Seizures and Status Epilepticus?

Sarah Trask had childhood cancer 32 years ago and had four brain surgeries. Sarah is a survivor. As a result, epilepsy is the side effect she is living with. Sometimes…

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British Man Running Marathons for Sarcoidosis
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British Man Running Marathons for Sarcoidosis

Peter Sadler has been raising funds to support the British Lung Foundation, which funds sarcoidosis research. The 42-year-old recently participated in the Bath-Half marathon. He's been on a mission to run in the…

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A Community Coming Together to Help a Local Boy with SMA
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A Community Coming Together to Help a Local Boy with SMA

Alexander Davis is from Tipton, Indiana. He has been living with spinal muscular atrophy (SMA). SMA prevents him from moving much and he is unable to walk. Therefore, he needs extra…

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Sarcoidosis Research Center Focused on Patient Care
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Sarcoidosis Research Center Focused on Patient Care

Exciting news for people living with sarcoidosis! Vanderbilt University Medical Center (VUMC) has developed a Sarcoidosis Center of Excellence. Presently, Dr. Wonder Drake is the director of the center. She…

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This Girl with Transverse Myelitis Finally Has a Doll that Matches Her
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This Girl with Transverse Myelitis Finally Has a Doll that Matches Her

Hannah Hawkins has an autoimmune disorder called transverse myelitis. She has to go to physical therapy multiple times each week to help her walk. Using a crutch is the norm…

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Impact of Tuberous Sclerosis Complex Fundraising
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Impact of Tuberous Sclerosis Complex Fundraising

Think all those fundraising walks you see advertised don't help? Think again! Shelly Meitzer, the mother of two children with tuberous sclerosis complex (TSC), a rare multi-system genetic disorder, has…

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Learn What Lesson One Woman With LEMS Can Teach Us All
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Learn What Lesson One Woman With LEMS Can Teach Us All

It all started when Romy felt that her health was growing worse after having back surgery. She believed that something was wrong, but her doctors assure her the surgery was successful.…

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A Years-Long Recovery: One Man’s Blog about His Experience with GBS
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A Years-Long Recovery: One Man’s Blog about His Experience with GBS

Joe Beernink has a blog describing his experience with Guillain-Barré Syndrome (GBS). More than three years ago, he wrote about his recovery and his healing process. He was told that the recovery…

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Read More on This Potential Sickle Cell Anemia “Breakthrough”
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Read More on This Potential Sickle Cell Anemia “Breakthrough”

Researchers have reported an early victory in treating sickle cell anemia with a new gene therapy. This could possibly lead to a cure. According to the U.S. National Heart, Lung, and…

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Driving for Awareness: The Challenges of Trigeminal Neuralgia
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Driving for Awareness: The Challenges of Trigeminal Neuralgia

These days Frank drives around to help others with trigeminal neuralgia. He seeks to raise awareness while comforting those who are living with the condition. Before Frank was diagnosed, he…

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Girl With SMA Gets by With a Little Help from Her Robot Friend
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Girl With SMA Gets by With a Little Help from Her Robot Friend

Addilynne is a 3-year-old with living with a disease that affects her muscle movement and strength: spinal muscular atrophy (SMA). But Amanda, her mother, states that SMA is an acronym for…

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