Baheti: Running the Boston Marathon While Living with Stargardt’s Disease
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Baheti: Running the Boston Marathon While Living with Stargardt’s Disease

About four years ago, Sagar Baheti found out he had an eye condition called Stargardt disease. Initially, he was not alarmed by the small symptoms that indicated Stargardt. He did…

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An 8-Year-Old Boy Overcomes Fear of Water to Swim in Support of Tourette’s
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An 8-Year-Old Boy Overcomes Fear of Water to Swim in Support of Tourette’s

Two years ago, Lucas wouldn't go anywhere near water. Last month, he tackled a swimming challenge, and he did so in support of a cause that's close to home. Lucas…

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Diagnosing Primary Biliary Cholangitis: What You Should Know
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Diagnosing Primary Biliary Cholangitis: What You Should Know

Sometimes, the path to diagnosis takes many twists and turns. This is true for people who have Primary Biliary Cholangitis (PBC), according to Gail from the PBC Society of Canada. In this video, she…

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Sharing Jonathan and Bryce’s Hunter Syndrome Stories Helps Us All
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Sharing Jonathan and Bryce’s Hunter Syndrome Stories Helps Us All

Everyone has a story. Every person has something that they can share. Reading about another person’s story can help you and your family cope with Hunter syndrome. Also, learning about…

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A Man with AS is Fighting the Town to Use His Golf Cart
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A Man with AS is Fighting the Town to Use His Golf Cart

Andrew Graham was diagnosed in 2009 with a rare autoimmune condition called ankylosing spondylitis, or AS. This disorder primarily affects the bones in his back and causes his vertebrae to, over…

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Narcolepsy: A Teenager’s Story
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Narcolepsy: A Teenager’s Story

Imagine watching movies with friends, not knowing that you have narcolepsy and struggling to stay awake. Your eyes keep rolling and you keep fighting to stay awake. Yet you cannot.…

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A “Little Fighter” with Zellweger Syndrome Celebrates His First Birthday
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A “Little Fighter” with Zellweger Syndrome Celebrates His First Birthday

Peter and his wife Ashleigh call their son Riley their “little fighter.”This is his nickname because he made it to his first birthday, which was well beyond what doctors told…

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Boy Born with Gastroschisis Fulfills His Dream of Becoming an Airline Pilot
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Boy Born with Gastroschisis Fulfills His Dream of Becoming an Airline Pilot

Growing up, the young boy would always hear jets roaring over his neighborhood. This sparked his dream, his passion. Anthony Lickteig-Carter always hoped to become a pilot. Nevertheless, because of his condition,…

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The Amazing Reason Why a Man Will Climb 45 Flights of Stairs After a Lung Transplant
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The Amazing Reason Why a Man Will Climb 45 Flights of Stairs After a Lung Transplant

Stephen Mitchell was losing his fight with IPF about five years ago. He began running because he did not want to die of a lung disease, like his father. Although…

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What Are You Doing for Tuberous Sclerosis Complex Awareness Day?
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What Are You Doing for Tuberous Sclerosis Complex Awareness Day?

May 15th is TSC Global Awareness Day! Tuberous Sclerosis Complex (TSC) is defined as an inherited disorder that causes tumors to develop in vital organs. One million people worldwide are…

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Look at What One Physical Therapist Wants You to Know About Blood Disorders
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Look at What One Physical Therapist Wants You to Know About Blood Disorders

When you think of a physical therapist, you typically think of a person that will help with treating injuries. Or you think of them a movement specialists. Surprisingly, physical therapists…

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Fishing Tournament to Raise Money for Transverse Myelitis on May 6, 2017 in Alabama
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Fishing Tournament to Raise Money for Transverse Myelitis on May 6, 2017 in Alabama

What is the perfect way to spend a Saturday? Well, if you are a fishing enthusiast and enjoy raising money for a cause I have the perfect event for you.…

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To Get or Not to Get Your Hopes About This New SMA Drug?
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To Get or Not to Get Your Hopes About This New SMA Drug?

An Australian couple shares their story of finding out that their daughter Aviana, has spinal muscular atrophy (SMA). SMA is a rare genetic disease, which effects the nerves that control…

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