Have you ever tried your hand at fundraising--especially for a rare disease like dystonia? If so, you’ll know that it’s difficult because there are so many factors involved. Without a…
Losses occur at every stage in life, particularly in the later years. As we age, we must cope with a variety of setbacks – physical, social, or emotional – that…
"Feliz Mes de la conciencia para la distonía!" Tal vez "feliz" no sea la palabra adecuada ... Porque, mientras que separa la conciencia es siempre algo que celebrar, la distonía…
People with dystonia, may have a new treatment option: brain surgery. Sure, it doesn't sound fun, but according to Dennis Russel, having the procedure for his essential tremor was "a…
How many 22 year old kids do YOU know who live WELL with a chronic illness? Uh, I can’t say I know many other than one kid who has type…
Now that I've puffed on this piece from the Hippocratic Post, I thought I'd pass it on to you. Mike Barnes, a professor of neurological rehabilitation at Newcastle University, is…
El perro de trabajo: Perros de Servicio compiten para la medalla de oro Mientras que las campañas presidenciales de 2016 se ponen en marcha, estadounidenses están tomando a las urnas…
Happy Friday Patient Worthians! We have two intriguing stories from PW contributors this week, detailing their plight with rare disease. Additionally, we have a pretty cool outcome for a pretty cool kid…
Wondering how to make your vitamins rock dystonia? (Not as badass as Chuck Norris, of course.) If yes to the vitamins, then read on! There are multiple forms of dystonia, and…
Kathleen Bissell (wonder if she's related to the vacuum people) wrote about Ernie Els's putting problems during The Masters over on www.progolfnow.com. Why do we care at PatientWorthy? Because Bissell…
Would you let a diagnosis of dystonia turn you inside out? Could it make you forget how to see the good in life? It may be time. Time to cue…
You've gotta love it when someone takes a bad situation and makes the very best out of it. Jake Silverman and his family have done just that. At 10 years…
Mental health is a sensitive topic for many people with dystonia since a lot of cases are initially mistaken for a psychological condition. In the vast majority of cases, dystonia is a neurological…
When it comes to getting the care you need for a rare disease like Parkinson’s (PD) or dystonia, the doctor you see is VERY important. In some cases, it’s enough…
I shared it with my family. I shared it with my wife, my mother and my brother of course, and they were grateful that it wasn’t something that was going to…
Happy Friday Patient Worthians! PW Contributor Nolan is back in our Video Series with his details on dystonia treatment. We also have some cool info on EDS gadgets! What do pharmaceutical companies mean…
There [are] treatment[s] for symptoms for dystonia. For neuropathy they can give you things like anti-depressants which have been known to curb neuropathy. They can do botox injections into the muscles…
Antes de que un conductor atropello y fuga golpeó Pat Brogan mientras montaba su bicicleta, él nunca había oído hablar de la distonía, un trastorno cerebral que causa calambres musculares…
La distonía puede retardar su cuerpo, pero que no puede matar su espíritu Pocas veces en la vida son tan emocionantes -o tan agitado, como los últimos días de la…
Welcome back Patient Worthians! Are you looking forward to 2017? Well you should be if you have HAE! Ever heard of Botox? If you have, you probably think of Hollywood…
Botox may be the new fresh face headliner in the therapeutic industry. Who knew? We see and read conversations about Botox more commonly in top women’s magazines, the likes of Cosmopolitan,…
I think, the earliest I can remember of any issues that I was having with dystonia were just not being able to hold a drumstick or a mallet. I used…
The process to get diagnosed was a very long one. It was over two years that I first started seeing a neurologist regarding the concerns and issues that I was…
Superman, where are you now? Look no further than Warren, Michigan. Not many people may know or have heard about dystonia. It is a neurological movement disorder that complicates mobility…
If you don't know what it's like to live with dystonia, then you need to watch this Youtube video by Shawn Fairchild. A brave man living with dystonia, Fairchild shows…
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