Editor’s Choice: Myasthenia Gravis Awareness and Dystonia Fashion

Happy Almost-Father's Day Patient Worthians! This week, we have some important information on the rare disease myasthenia gravis in the spirit of June being it's awareness month. Also, have you ever…

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Editor’s Choice: An Instagramable Week of Selfies, Fitness, Twins and Adolescence

Happy Friday Patient Worthians! Just because Cystic Fibrosis and Lyme Disease Awareness Month is over, doesn't mean we won't stop fighting the good fight for spreading awareness about these diseases! We…

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The Power of Connecting: It’s Better Than Vacation!

Have a rare disease? Have you ever been to a national patient conference? These are invaluable opportunities to connect with others who share your challenges and concerns! Imagine being in…

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Nolan’s Journey with Dystonia
Sandro Georgi Photography, www.sgfo.to

Nolan’s Journey with Dystonia

Photography by Sandro Georgi Photography Nolan is an incredible person and father who is living with dystonia. He hasn't let the movement disorder hold him back from anything, even running a…

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Editor’s Choice: How Amyloidosis & Being Mixed Race Don’t Mix, Awful Sentences and a Tale of Brotherly Love

Happy Easter Weekend Patient Worthians! And if you don't celebrate it, Passover is only a month away. If you don't celebrate either one, then why not celebrate life?! This week we…

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