Editor’s Choice Weekend Roundup: We’re Teaming Up with CysticLife
Editor's Choice Weekend Round Up for 12/11/2015

Editor’s Choice Weekend Roundup: We’re Teaming Up with CysticLife

Happy Friday PatientWorthians! We are so excited to announce our partnership with CysticLife this month. PatientWorthy is teaming up with CysticLife.org to spread awareness of CF and support their collaboration with the Mayo…

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10 Things You Need to Know About Ehlers-Danlos Syndrome
Ten things you need to know about Ehlers-Danlos Syndrome

10 Things You Need to Know About Ehlers-Danlos Syndrome

With rare diseases, there’s often a lot of information that’s unknown or mysterious to the general public, patients, and even doctors. Ehlers-Danlos Syndrome (EDS) is a group of disorders that…

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Legislators and Medical Experts Team Up For Rare Diseases
Legislation for rare diseases like Ehlers-Danlos Syndrome is in the works in Conneticut!

Legislators and Medical Experts Team Up For Rare Diseases

If you live in Connecticut, and happen to have a rare disease, efforts are being made to help make your voice heard. When you're one in a very few, it…

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How This Young Woman’s Double D’s Are Changing the World
Disease and Depression. What this woman with EDS can teach all of us in the rare disease community.

How This Young Woman’s Double D’s Are Changing the World

Double D's. And not the good kind. Disease and Depression. All too often, after being diagnosed with a chronic illness, patients just give up. They withdraw. They stop trying. They…

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