In July of 2013, I ended up in the emergency department of the hospital in Minnesota where I worked 20 years prior because my shunt suddenly went into failure while…
Welcome to the Editor's picks for this week! This week got a little crazy, but that's how we like it. What do you think about medical marijuana? Do you watch MasterChef?…
How many times can we whisper to ourselves "If only..." before we finally change the past? The answer is infinity. Infinity times. Because you can't change the past. Duh. As of right now,…
An article posted on the Cystic Fibrosis News Today site, piqued my interest about what’s happening in the world of cystic fibrosis, or CF, lung transplantation these days. According to the Cystic…
Obtener un diagnóstico de cualquier tipo es aterrador. Conseguir un diagnóstico de una rara enfermedad autoinmune, que amenaza la vida que usted nunca ha oído hablar de es aterrador. Pero…
You want to know what the most popular position in bed is? Scroll down below to check out Lisa's most recent blog post to find out. For all of our…
Síndrome de dolor central es una enfermedad neurológica de toda la vida del sistema nervioso central, lo que provoca constantes, sin fin, señales de dolor agonizante de todos los tipos…
Living with dystonia is sometimes reminiscent of the plight of Sisyphus, a king from Greek mythology. Sisyphus was king of Ephyra who was punished for chronic deceitfulness and condemned…
If you are a parent of a chronically ill child, there are a million things running through your head every single day—day in—and day out. Enter the parents of a…
El angioedema hereditario puede ser una enfermedad rara que califica para el estatus de medicamento "huérfano", pero estamos lejos de estar solo. Hay organizaciones de AEH y las instalaciones de…
You can read all the books, write all the articles, and study all the patients, but one thing will always separate someone without a rare disease from someone with a…
Depending on the intricacies of our personal health challenges, some of us may be motivated to take actions that others would find unreasonable. For example, I once met a man…
When Ashley Owen was a year and a half old, her family received news that would forever change their lives. As described through her silent but powerful Youtube video, Ashley…
In the "Don't judge; you never know what someone's going through" department.... Oh. My. GAWD! This woman is awesome! Growing up, this young woman blogger, whom we'll call Ezzie, was…
Q: What do Fergie, Josh Dumal and Scott Niedermayer have in common? A: They are celebrity spokespeople for CureDuchenne a nonprofit organization that raises awareness and funds research to find a…
In an ordinary world, one girl faces an unexpected fight. Fated to take on the mantle passed down by her mother, she must defend her life against this incredible foe. Will she deny…
Living in the 21st century’s wireless information economy can be both a blessing and a curse—there’s so much information out there, you can learn pretty much anything about everything. But it’s…
When you hear the word "narcolepsy," you may think of Rowan Atkinson's character in the movie Rat Race. He has narcolepsy, a disease characterized by frequent bouts of day-time sleepiness. Throughout the…
The Estevan Kinette's Club requests the pleasure of your company at their inaugural Princess Ball at the Beefeater Plaza in Estevan on January 16th. Please come expecting to dance,…
Happy Friday Patient Worthians! We are rounding out our Cystic Fibrosis campaign with CysticLife this week. For the past few weeks, Patient Worthy has been supporting CysticLife's collaboration with the Mayo Clinic for a…
This year’s holiday season was difficult. Allow me to explain by saying that it was great to be with my family after at least 20 years of not being in…
Living with Duchenne muscular dystrophy (DMD)? If you aren't familiar with Solid Biosciences, you should be! Here at Patient Worthy, we give credit when credit is due. We root for…
Click here for part one and here for part two of Sue's Story! When we left off Sue was battling hives (everywhere) and had received the diagnosis of Chronic Idiopathic…
Henderson, NV, January 14, 2016 – The life science trade publication PM360 today announced that Patient Worthy™ won Gold in the category “Consumer Website” at the annual Pharma Choice Awards.…
Can you believe it? Patient Worthy has made it to the big times by winning an award for being the best patient-centric consumer website. We're stoked! But here's what really counts:…
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