Things to Know About Sickle Cell on World Sickle Cell Day
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Things to Know About Sickle Cell on World Sickle Cell Day

Today is World Sickle Cell Day! Established in 2008, this international awareness day is aimed to increase public awareness and an understanding of sickle cell diseases, while educating those who may…

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Genetic Screening Can Prevent Parents from Passing on Genes Linked to Some Diseases
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Genetic Screening Can Prevent Parents from Passing on Genes Linked to Some Diseases

The Young family from Oregon, U.S. have used genetic screening to test their embryos for a variation of the BRCA gene that significantly increases the risk of breast cancer, reports…

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Cincinnati Family Encourages African Americans to Donate Blood for Sickle Cell Anemia Patients
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Cincinnati Family Encourages African Americans to Donate Blood for Sickle Cell Anemia Patients

In Cincinnati, there are two children, Taryn and King Walker. They are 13 and 11 years old respectively. Taryn and King are excellent students and attend the School for Creative…

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Sickle Cell Disease Patients Face Stigma About Their Need for Painkillers
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Sickle Cell Disease Patients Face Stigma About Their Need for Painkillers

Patients with sickle cell disease often face stigma about their need for pain medication because care providers are suspicious of drug abuse, reports The Dallas Post Tribune. Although this is…

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A New Sickle Cell Diseases Drug Has Been Awarded Orphan Drug Status by the US and EU
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A New Sickle Cell Diseases Drug Has Been Awarded Orphan Drug Status by the US and EU

A new drug called Altemia is being developed to treat sickle cell diseases in children, reports BioPortfolio. It has recently been awarded Orphan Drug designation in both the United States…

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The FDA is Beginning to Accept New Endpoints and “Real World” Data in Clinical Trials
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The FDA is Beginning to Accept New Endpoints and “Real World” Data in Clinical Trials

According to a story from Charcot-Marie-Tooth Disease News, the U.S. Food and Drug Administration (FDA), under the leadership of commissioner Scott Gottlieb, has begun to change clinical trials by accepting…

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The City of Hope Just Received Millions in Funding To Test A New Procedure to Treat Sickle Cell Disease
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The City of Hope Just Received Millions in Funding To Test A New Procedure to Treat Sickle Cell Disease

According to a story from bioportfolio.com, The California Institute for Regenerative Medicine has given $5.74 million to the City of Hope, a private, nonprofit clinical research center that is primarily…

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School Sends Girl Home Permanently Due To Her Rare Disorder
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School Sends Girl Home Permanently Due To Her Rare Disorder

Lydia, a 16-year-old student at Ng'iya Girls High, was sent home permanently due to her rare disorder, reports Daily Nation. Lydia suffers from a disease called Cord Ischemia, and the…

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French Scientists and Doctors are Leading the Way Towards a Cure for Sickle Cell Anemia
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French Scientists and Doctors are Leading the Way Towards a Cure for Sickle Cell Anemia

Some breathtaking things are happening in the world of sickle cell anemia (SCA) that could potentially impact the lives of nearly 275,000 babies around the world and nearly 100,000 African…

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This is Not a First World Problem: High Prevalence of SCD in Remote Areas of India
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This is Not a First World Problem: High Prevalence of SCD in Remote Areas of India

You know the Internet meme: There’s a woman, head in hand, silently weeping, or James Van Der Beek, from his Dawson’s Creek days, on the edge of crying big elephant…

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