ICYMI: US Scientists Break Ground by Modifying Human Embryos for the First Time
Source: Pixabay

ICYMI: US Scientists Break Ground by Modifying Human Embryos for the First Time

Your hear that? It's the sound of the future knocking on the door! The MIT Technology Review reports about the first-known experiment to edit human embryos in the United States using a…

Continue Reading ICYMI: US Scientists Break Ground by Modifying Human Embryos for the First Time
Answered: Your Burning Questions to a Sickle Cell Disease (SCD) Study
https://pixabay.com/en/bioreactors-glass-anaerobic-chamber-1781344/

Answered: Your Burning Questions to a Sickle Cell Disease (SCD) Study

Could crizanlizumab be the next treatment to prevent pain in those with sickle cell disease (SCD)? Is this the medicine you've been hoping for? Sickle cell disease (SCD) is an…

Continue Reading Answered: Your Burning Questions to a Sickle Cell Disease (SCD) Study
Are Stem Cell Transplants the Future of Treatment for Sickle Cell Anemia?
https://pixabay.com/en/integration-burnout-think-future-2141187/

Are Stem Cell Transplants the Future of Treatment for Sickle Cell Anemia?

Have you ever tried to fit a square peg into a round hole? Short of taking a mallet to the peg, you’re not going to be successful in pushing it…

Continue Reading Are Stem Cell Transplants the Future of Treatment for Sickle Cell Anemia?
Two Sisters Come Together to Fight Sickle Cell Anemia
https://pixabay.com/en/sunset-sun-sisters-girl-shadow-929179/

Two Sisters Come Together to Fight Sickle Cell Anemia

Many sisters may play pranks or bicker with each other often. According to ABC 11 News, Twelve-year-old Natalia and fourteen-year-old Nyasia Yarrell are no different. One minute they are mad at…

Continue Reading Two Sisters Come Together to Fight Sickle Cell Anemia
Umbilical Cord Blood Could Make a Difference in Sickle Cell Anemia Treatment
https://pixabay.com/en/baby-holding-hand-infant-hand-child-847820/

Umbilical Cord Blood Could Make a Difference in Sickle Cell Anemia Treatment

A new public cord blood donation center recently opened up in New York. This is the second of this type of facility to open in the state. In the past,…

Continue Reading Umbilical Cord Blood Could Make a Difference in Sickle Cell Anemia Treatment
We Need to Find a Cure for Sickle Cell Anemia… Here’s Why
https://pixabay.com/en/heart-red-blood-cells-erythrocyte-2176218/

We Need to Find a Cure for Sickle Cell Anemia… Here’s Why

Here's the rundown on sickle cell anemia. It causes a person to have abnormal hemoglobin (sickle hemoglobin) in their red blood cells. In order to understand what I'm talking about,…

Continue Reading We Need to Find a Cure for Sickle Cell Anemia… Here’s Why
Fact or Fiction: Do You Believe This Young Girl Was Cured of Sickle Cell Anemia?
https://pixabay.com/en/christianity-clouds-cross-outdoors-1867802/

Fact or Fiction: Do You Believe This Young Girl Was Cured of Sickle Cell Anemia?

Okay. Hold the phone for just a minute. I’m a bit concerned after reading an article posted by a young girl who is living with sickle cell anemia. She basically…

Continue Reading Fact or Fiction: Do You Believe This Young Girl Was Cured of Sickle Cell Anemia?

Editor’s Choice: Powerful Purple Crayons and Supermoms

Welcome to Friday Patient Worthians! This week we have stories on cystinosis and super moms with sickle cell! Additionally, we have a patient story on dystonia and an upcoming event. Lastly, an…

Continue Reading Editor’s Choice: Powerful Purple Crayons and Supermoms
Read More on This Potential Sickle Cell Anemia “Breakthrough”
https://pixabay.com/en/road-sign-attention-right-of-way-63983/

Read More on This Potential Sickle Cell Anemia “Breakthrough”

Researchers have reported an early victory in treating sickle cell anemia with a new gene therapy. This could possibly lead to a cure. According to the U.S. National Heart, Lung, and…

Continue Reading Read More on This Potential Sickle Cell Anemia “Breakthrough”

Editor’s Choice: Donating, Battling and Healing in the Face of Rare Disease

Welcome to Friday Patient Worthians! This week we have a PW Contribution on one woman's battle with Stiff Person's Syndrome. We also have a piece on using fear to serve you in…

Continue Reading Editor’s Choice: Donating, Battling and Healing in the Face of Rare Disease
New Sickle Cell Society Blog Gives Hope, Empowerment and Opportunity
https://pixabay.com/en/heart-red-blood-cells-erythrocyte-2176218/

New Sickle Cell Society Blog Gives Hope, Empowerment and Opportunity

Be on the lookout for this amazing sickle cell anemia blog! Caregivers, friends, family, and patients of sickle cell, there is a new blog committed to raising awareness about sickle…

Continue Reading New Sickle Cell Society Blog Gives Hope, Empowerment and Opportunity
A bird? A plane? It’s Super Moms with Sickle Cell Anemia!
https://pixabay.com/en/stars-heart-love-mom-mother-443900/

A bird? A plane? It’s Super Moms with Sickle Cell Anemia!

Leathia Boyd is a 38-year-old woman, mother, and wife living with sickle cell anemia. She's also an advocate and has been one for more than six years. It all started when she joined…

Continue Reading A bird? A plane? It’s Super Moms with Sickle Cell Anemia!
Letting Kids With Sickle Cell Anemia Be Kids
https://pixabay.com/en/children-children-s-expression-1166666/

Letting Kids With Sickle Cell Anemia Be Kids

Children need exercise. Not only for the health benefits but for the social benefits too. Playing games like hide-and-go-seek and tag, and participating in community sports like soccer and swimming,…

Continue Reading Letting Kids With Sickle Cell Anemia Be Kids
Close Menu