Editor’s Choice: Donating, Battling and Healing in the Face of Rare Disease

Welcome to Friday Patient Worthians! This week we have a PW Contribution on one woman's battle with Stiff Person's Syndrome. We also have a piece on using fear to serve you in…

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New Sickle Cell Society Blog Gives Hope, Empowerment and Opportunity
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New Sickle Cell Society Blog Gives Hope, Empowerment and Opportunity

Be on the lookout for this amazing sickle cell anemia blog! Caregivers, friends, family, and patients of sickle cell, there is a new blog committed to raising awareness about sickle…

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Can Nutrition Cure Sickle Cell Anemia? The Nigerian Government Thinks So
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Can Nutrition Cure Sickle Cell Anemia? The Nigerian Government Thinks So

According to recent research, the Nigerian federal government believes nutrition is another way to approach treating and potentially curing Sickle Cell Anemia. Dr. Ogbonnaya Onu, Minister of Science and Technology, explained…

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Got Sickle Cell Disease? Here’s a Story That Will Make You Smile
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Got Sickle Cell Disease? Here’s a Story That Will Make You Smile

Admittedly, I’m no expert when it comes to sickle cell disease, but after reading about an inspirational young woman who is forging on to live—and I mean LIVE—her life, I’d like…

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Calling All with Sickle Cell in the Chattahoochee Region: Event to be held in Columbus, Ohio May 20th

The Association of Sickle Cell, Lower Chattahoochee Region (ASCLCR) is an organization dedicated to funding sickle cell research and aiding all those affected by the disease within the eight counties…

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Sickle Cell Anemia: Why This Greek Guy’s Brilliant Idea Could Save Your Life!
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Sickle Cell Anemia: Why This Greek Guy’s Brilliant Idea Could Save Your Life!

So there’s this Greek guy who happens to be suffering with frequent bouts of pain and fatigue as a result of living with sickle cell anemia (SCA). And when he…

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When Things Get Tough, 11-Year-Old Girl with Sickle Cell Anemia Gets Tougher
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When Things Get Tough, 11-Year-Old Girl with Sickle Cell Anemia Gets Tougher

Really? Really. As if having one serious chronic disease isn’t enough, what makes God say, “Hmm…Let’s give this poor, innocent child, another chronic illness"?! In this case, I'm talking about…

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From Sickle Cell to Inspiration: How Everyone Can Learn from This Teenage Girl!
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From Sickle Cell to Inspiration: How Everyone Can Learn from This Teenage Girl!

Teresa is a 16-year-old girl who is changing the face of sickle cell anemia (SCA) disease. And… SHE… ROCKS! Instead of sitting back and feeling sorry for herself, this beautiful…

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Sickle Cell Anemia: Parents – Do You Agree with This Approach to Living in Full?
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Sickle Cell Anemia: Parents – Do You Agree with This Approach to Living in Full?

Remember the last time you had a bad day? You know what I’m talking about—those times when we come home and plop down on the sofa—and devour a huge piece…

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Editor’s Choice: NASH Hope, Sickle Cell Symptoms & Rare Disease Research Reinforcement

Happy Friday Patient Worthians! What do you know about sickle cell anemia? We have seven facts for you! Also, we have some hope-worthy nonalcoholic steatohepatitis (NASH) news to report. What does…

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You Know What Uncle Joe Would Say About This Sickle Cell Anemia Breakthrough
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You Know What Uncle Joe Would Say About This Sickle Cell Anemia Breakthrough

Some scientific breakthroughs, while exciting, require a calm, measured response. Most, make that all, demand repetition and duplication, as per the scientific method. But there are a select few that,…

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