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Canada Will Provide $1.5 Billion to Provinces to Support Rare Disease Programs

Canada Will Provide $1.5 Billion to Provinces to Support Rare Disease Programs

  • Post author:Rose Duesterwald
  • Post published:May 15, 2023
  • Post category:Rare Disease

  Canada’s unemployment rate is at a record low. Industries have recovered 126% of the jobs lost by the pandemic. On the health front, scientific knowledge and the ability to…

Continue Reading Canada Will Provide $1.5 Billion to Provinces to Support Rare Disease Programs
ICYMI: Empaveli for PNH Now Approved in Canada
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ICYMI: Empaveli for PNH Now Approved in Canada

  • Post author:Jessica Lynn
  • Post published:January 9, 2023
  • Post category:paroxysmal nocturnal hemoglobinuria

  Currently, C5 inhibitors such as eculizumab and ravulizumab are considered the standard-of-care for people living with paroxysmal nocturnal hemoglobinuria (PNH). Unfortunately, not all patients respond well to these therapies.…

Continue Reading ICYMI: Empaveli for PNH Now Approved in Canada
Canadian Agency Give Positive Opinion for Reimbursement of GIVLAARI for AHP

Canadian Agency Give Positive Opinion for Reimbursement of GIVLAARI for AHP

  • Post author:Kendall Mason
  • Post published:November 19, 2021
  • Post category:Acute hepatic porphyria

GIVLAARI has already received approval for the treatment of acute hepatic porphyria (AHP) in Canada, according to an article from Nasdaq. Now, the Canadian Agency for Drugs and Technologies in…

Continue Reading Canadian Agency Give Positive Opinion for Reimbursement of GIVLAARI for AHP
Virtual Kidney March to Take Place Aug. 9 to Sept. 12
Source: Pixabay

Virtual Kidney March to Take Place Aug. 9 to Sept. 12

  • Post author:Jessica Lynn
  • Post published:May 18, 2021
  • Post category:Cystinuria-lysinuria

  Unfortunately, the COVID-19 pandemic has sidelined many events, fundraisers, and other opportunities over the last 14 months. But the pandemic won't stop the Kidney Foundation of Canada from holding…

Continue Reading Virtual Kidney March to Take Place Aug. 9 to Sept. 12
Histoplasmosis Has Been Discovered in Alberta, CA
source: pixabay.com

Histoplasmosis Has Been Discovered in Alberta, CA

  • Post author:James Moore
  • Post published:March 25, 2021
  • Post category:Histoplasmosis

According to a story from Medical Xpress, an uncommon fungal infection has been discovered in Alberta, Canada. This infection, called histoplasmosis, is transmitted through the fecal matter of bats and…

Continue Reading Histoplasmosis Has Been Discovered in Alberta, CA
DUPIXENT Approved in Canada for Pediatric Atopic Dermatitis

DUPIXENT Approved in Canada for Pediatric Atopic Dermatitis

  • Post author:Jessica Lynn
  • Post published:March 5, 2021
  • Post category:Severe Atopic Dermatitis

For patients with severe atopic dermatitis, it can be difficult to find adequate treatment options. For many, treatment revolves around topical creams, anti-inflammatory medications, light therapy, antibiotics, and more. But…

Continue Reading DUPIXENT Approved in Canada for Pediatric Atopic Dermatitis
Canada Looks to Expand Eligibility for Medically Assisted Death

Canada Looks to Expand Eligibility for Medically Assisted Death

  • Post author:Sunniva Bean
  • Post published:January 27, 2020
  • Post category:Rare Disease

As originally reported in CBC News, Canada is deciding on new parameters to set for medically assisted death, legalized in 2016. Since legalization, 6,700 Canadians have made use of the service,…

Continue Reading Canada Looks to Expand Eligibility for Medically Assisted Death
A Call for Help From A Cystic Fibrosis Patient Directed at the Canadian Government

A Call for Help From A Cystic Fibrosis Patient Directed at the Canadian Government

  • Post author:Rose Duesterwald
  • Post published:November 15, 2019
  • Post category:Cystic Fibrosis

Marten Devlieger’s sister Karen, a cystic fibrosis patient, died of the disease at the age of thirty-three. According to a recent article in CTV News Canada, Marten was also diagnosed…

Continue Reading A Call for Help From A Cystic Fibrosis Patient Directed at the Canadian Government
Minutes of Your Time: How A Canadian Program is Changing Cancer Medicine

Minutes of Your Time: How A Canadian Program is Changing Cancer Medicine

  • Post author:Samuel Sachs
  • Post published:October 24, 2018
  • Post category:Ovarian Cancer

What can you do with half an hour? That’s the question that a new Canadian program asks. An online program called #30MinutesThatMatter gives Canadian patients an opportunity to share how…

Continue Reading Minutes of Your Time: How A Canadian Program is Changing Cancer Medicine
Transition Program Helps Young Patients Navigate Adult Health Care

Transition Program Helps Young Patients Navigate Adult Health Care

  • Post author:Samuel Sachs
  • Post published:September 6, 2018
  • Post category:Spina Bifida

According to a report by CTV News of Calgary, a new trial program is attempting to make transitions easier for people living with chronic conditions. Specifically, the program hopes to…

Continue Reading Transition Program Helps Young Patients Navigate Adult Health Care
Bus Loving Four-Year-Old with Prader-Willi Syndrome Dies Unexpectedly
source: pixabay.com

Bus Loving Four-Year-Old with Prader-Willi Syndrome Dies Unexpectedly

  • Post author:James Moore
  • Post published:February 14, 2018
  • Post category:Prader-Willi Syndrome

According to a story from CTV Vancouver Island News, a charming young child known affectionately as 'bus boy' died in his sleep on Saturday, January 27th. Dominic Orr was only…

Continue Reading Bus Loving Four-Year-Old with Prader-Willi Syndrome Dies Unexpectedly
Couple Gears Up to Sell Home For Surgery Costs
skeeze / Pixabay

Couple Gears Up to Sell Home For Surgery Costs

  • Post author:Andres Rovira
  • Post published:November 10, 2017
  • Post category:Occipital Neuralgia/Trigeminal Neuralgia (Tic Douloureux)

Renee Smith deals with an unusual feeling and she might be the only person who does. She feels like there are drops of water dripping on the side of her…

Continue Reading Couple Gears Up to Sell Home For Surgery Costs
Trek for Tourette Awareness Walk on March 26 in Canada
Pixabay

Trek for Tourette Awareness Walk on March 26 in Canada

  • Post author:Nia
  • Post published:March 7, 2017
  • Post category:Rare Disease/Timely/Tourette syndrome

Want to put your money where your feet are to benefit Tourette syndrome awareness? Well, if you're in Canada on Sunday, March 26th, the West Grey-Ayton Chapter of Tourette Canada will…

Continue Reading Trek for Tourette Awareness Walk on March 26 in Canada
¿Vas a correr, Eh? Canadienses corren por una buena causa
Free-Photos / Pixabay

¿Vas a correr, Eh? Canadienses corren por una buena causa

  • Post author:Patient Worthy Contributor
  • Post published:May 6, 2016
  • Post category:Ankylosing Spondylitis/Rare Disease

El 7 de junio de 2015, miles de personas salieron a las calles a través de Canadá en el Paseo anual para poner fin a la artritis. Una causa principal…

Continue Reading ¿Vas a correr, Eh? Canadienses corren por una buena causa

Are you Walking, Eh? Canadians Lace Up for a Good Cause

  • Post author:Patient Worthy Contributor
  • Post published:June 12, 2015
  • Post category:Ankylosing Spondylitis/Rare Disease

On June 7, 2015, thousands of people took to the streets across Canada in the annual Walk to End Arthritis. A leading cause of disability, arthritis costs the Canadian economy $33 billion…

Continue Reading Are you Walking, Eh? Canadians Lace Up for a Good Cause

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