Each Ankylosing Spondylitis Patient is Unique, This Study Reinforces that to Provide the Best Care, We Must Understand That

A New AS Study A recent study, published in Reumatologia aimed to evaluate how ankylosing spondylitis (AS) patients are coping with their condition on a psychological level. They wanted to investigate…

Continue Reading Each Ankylosing Spondylitis Patient is Unique, This Study Reinforces that to Provide the Best Care, We Must Understand That
Do You Know Enough About Cystic Fibrosis and “Old People’s Tests”?
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Do You Know Enough About Cystic Fibrosis and “Old People’s Tests”?

As a registered nurse, I have taken care of a fair share of the senior population. I have heard some great stories and also some funny quotes. Several older individuals…

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Heartwarming Video Alert: Dad with Stargardt Disease Sees His Family for the First Time
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Heartwarming Video Alert: Dad with Stargardt Disease Sees His Family for the First Time

Being married to the love of your life would mean that you know everything there is to know about one another. Physically, emotionally, and mentally. Right? Well, Gene is married…

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Here’s How This Young Man with Stargardt Disease is Beating the Odds
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Here’s How This Young Man with Stargardt Disease is Beating the Odds

I love to read a good story about someone overcoming the odds. A young man living with Stargardt disease has done just that this month! He is the first Indian to…

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Does Palliative Care Have a Role in Living with Rare Disease?
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Does Palliative Care Have a Role in Living with Rare Disease?

What comes to mind when you hear "palliative care?" Most people might think it only helps someone with end-of-life care. But did you know that palliative care can actually lift spirits…

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