Michael Mavis, a fitness trainer from Granville, Michigan, recently experienced flu like symptoms leading to paralysis, later learning it was much more than a mild sickness, reported Grand Rapids Patch.…
Michelle Myers, a mother of seven and American citizen who has never been out of the country, suffers from a rare disease that causes her to wake up with different…
According to a story from independent.ie, acclaimed author Emma Hannigan announced that her final options for treatment had been exhausted in her fight with BRCA-mutated breast cancer. Her doctors have…
Keeping a smile on 13-year-old Bryce Fisher's face is starting to get difficult. When all of his friends are going to school and involving themselves in fun activities, Bryce has…
Natalie Grant, a critically acclaimed Christian artist, gets a Grammy nomination when she needed it the most. The Tennessean shared her story of undergoing voice threatening thyroid surgery to remove…
According to stories from Wave3 News and WHAS 1, high schooler Jesse Schott of Bullitt County is in his third battle with brain cancer. At his local high school, Schott is…
Lydia, a 16-year-old student at Ng'iya Girls High, was sent home permanently due to her rare disorder, reports Daily Nation. Lydia suffers from a disease called Cord Ischemia, and the…
Bridget Ames is a delightful, bright, smiling ball of energy who was told all the odds would be against her at a young age. Originally reported by Cape Cod Times,…
The Lewis family has lived through it all. Their first born was diagnosed with spinal muscular atrophy (SMA) and did not live long, having passed away in 2013, reports Deseret News. And…
The O'Sullivan family had three very healthy babies before Drake was born. His blue eyes energetically said hello and his weight met all health standards, yet it wasn't until three…
According to a story from the Irish Mirror, eleven year old Cezy Fosca, who has a rare condition called Morquio syndrome, has lost access to the only drug available that…
Katie Price, a former British model, has accepted the challenge of running the next London marathon with intent to fundraise for IPF, idiopathic pulmonary fibrosis, a disease her mother was…
Just this past week 17-year-old Tina McElligott from Kilflynn, Co.Kerry, passed away from rare disease complications, reported Irish Mirror. She had suffered her entire life with Alpers syndrome, having consistent and intense…
Elizabeth Jane Allen, known best as "Betty", will be honored this week for the wonderful woman she was and the lasting impact she has made on the cystic fibrosis community, reports…
According to an article from BBC News, Jackie Harrison had a daunting choice to make. There was a fifty percent chance that she would contract Huntington's disease, a rare condition…
A severely aggressive brain tumor in 19-year-old Callum Hardyman has forced his brain to turn sideways, reported The Sun. Callum suffers from a terminal brain cancer called glioblastoma. To learn…
The Alsabaa family not only has to deal with their 6-year-old son ,Tony, fighting children's idiopathic arthritis, but they are also not allowed to be in the States with him…
According to a story from CTV Vancouver Island News, a charming young child known affectionately as 'bus boy' died in his sleep on Saturday, January 27th. Dominic Orr was only…
Shaquem Griffin, a linebacker from the University of Central Florida receives a ton of buzz because he's an amazing athlete. Point blank. As he should. Originally reported by Rare Disease…
While she's constantly smiling and full of energy, little girl Makenzie Cadmus struggles with a rare condition known as epidermolysis bullosa, reports News 12 Long Island. The rare disease has…
For people who don't live with chronic painful conditions, such as hepatic porphyria, it's hard to imagine the type of intense pain Colin McEwen was in -- both physically and…
Just recently reported by BBC News, Jake Coates made a hard decision to stop attempting to have a child through the surrogate route after two failed attempts. Not even two…
Sophia Campa-Peters, a little 9-year-old suffering from a rare disease that resulted in several strokes, had a successful brain surgery just a few weeks ago, as reported Lubbock Online. The…
16-year-old Teenager Ciara Micks of Limerick, Ireland, tries to remain positive despite an unsettling situation regarding next steps to treat her EDS, Ehlers-Danlos Syndrome, reports Limerick Leader. Ciara deals with…
11-year-old Nolan Cyr is not like anyone else his age. When facing round after round of chemo in the hospital to fight his cancer, it wasn't himself he was thinking…
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