Platelet Disorder Support Association ITP Conference 2017
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Platelet Disorder Support Association ITP Conference 2017
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Myasthenia Gravis Foundation of America’s National Conference
As Erica Zahn wrote back in February, MGFA's National Conference in New Orleans, LA offers patients and families the chance to hear the latest news, research and treatments for myasthenia gravis.…
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Myasthenia Gravis Foundation of America’s National Conference
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This April, You Can Learn the Latest in Endocrine Science!
The Endocrine Society's Endo 2017 is the world's largest endocrine science presentation. Attendees will be able to network, learn about the newest product and technology updates, listen to thought-leaders, and…
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This April, You Can Learn the Latest in Endocrine Science!
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Register Today for the MDA Scientific Conference
The Muscular Dystrophy Association's Scientific Conference Registration closes February 28th! This event brings all the important players together in the Muscular Dystrophy world to promote research around management, treatment and…
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Register Today for the MDA Scientific Conference
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Royalty for One Night for Cystic Fibrosis
The Estevan Kinette's Club requests the pleasure of your company at their inaugural Princess Ball at the Beefeater Plaza in Estevan on January 16th. Please come expecting to dance,…
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Royalty for One Night for Cystic Fibrosis
UPDATE! The Power of a Personal Story to Change Minds: Limitless
Have you always wanted to share your story with Congress to ask for more help with your Rare Disease? The Every Life Foundation is making it easier with travel stipends…
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UPDATE! The Power of a Personal Story to Change Minds: Limitless
Is Your Resolution to Give More? Help This 3-Year-Old Get a Chair!
Life would probably be easier for three-year-old Kayden Bell if doctors could determine a diagnosis for him. So far, he's been diagnosed with microcephaly, global developmental delay, hypomyelination and dystonia with…
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Is Your Resolution to Give More? Help This 3-Year-Old Get a Chair!
He Gave Up Beer for 115 Days and Something Remarkable Happened
When radio personality, Mike Farwell, and three of his intrepid listeners decided to give up drinking beer for 115 days (ending on Christmas) he asked the Block 3 Brewing Company in…
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He Gave Up Beer for 115 Days and Something Remarkable Happened
2016 Miami Marathon | Cystic Fibrosis Lifestyle Foundation
Are you planning on being in Miami, Florida, on January 26, 2016? YOU ARE?!! That's great! You can join the Cystic Fibrosis Lifestyle Foundation (CFLF) and the Miami Marathon 2016 for…
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2016 Miami Marathon | Cystic Fibrosis Lifestyle Foundation
How to Get Delicious Breakfast AND Support the Cystic Fibrosis Foundation
Hello Pittsburgh! The Cystic Fibrosis Foundation is joining the New Balance Marathon Training team on three separate days as they train for the Pittsburgh Marathon. So, if you have a mind to…
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How to Get Delicious Breakfast AND Support the Cystic Fibrosis Foundation
There’s Hope On The Horizon For EDS Patients At 2016 Symposium in NYC
If you or someone you know has Ehlers-Danlos syndrome (EDS), you probably know a great deal about it, making you part of a very small population. Not many people have an understanding…
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There’s Hope On The Horizon For EDS Patients At 2016 Symposium in NYC
What Does This Witch Have in Common with CRPS/RSD?!
‘Tis the season! Picture it. Salem, Massachusetts. It’s 1692 and suddenly, things have gone horribly, horribly wrong for you. In the middle of the night, a small band of angry…
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What Does This Witch Have in Common with CRPS/RSD?!
Upcoming Event! Virginia Epilepsy Awareness Walk
What are you going to be doing on the afternoon of Halloween? Some kind-hearted people will be participating in a walk, for a spooky great cause. On Saturday October 31st…
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Upcoming Event! Virginia Epilepsy Awareness Walk
A Wheelchair Bound Girl Just Wanted to Dance, This Organization Made it Happen
Imagine having a disorder that controls your movements. A disorder that causes painful muscle contractions that can’t be stopped. Imagine being in a wheelchair because of this....and wanting to dance.…
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A Wheelchair Bound Girl Just Wanted to Dance, This Organization Made it Happen
Why Patient Perspective is Worthy of Industry Ears
Patient Worthy attended the EveryLife Foundation’s annual forum this past Tuesday in Washington, DC. It was a full day workshop about why incorporating the patient perspective into the various phases of developing drugs…
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Why Patient Perspective is Worthy of Industry Ears
Follow Patient Worthy Live at the Orphan Drug Summit in Copenhagen!
Patient Worthy is bringing another conference to you through live tweets (@PatientWorthy)! Yesterday and today our director of advocacy is attending the Orphan Drug Summit in Copenhagen , Denmark. Among…
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Follow Patient Worthy Live at the Orphan Drug Summit in Copenhagen!
AAMDSIF – Bone Marrow Failure and Myeloid Neoplasia – Tysons, VA
AAMDSIF, The Aplastic Anemia and MDS International Foundation, and George Washington University School of Medicine and Health Sciences hosts the Bone Marrow Failure and Myeloid Neoplasia event in Tysons, VA.…
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AAMDSIF – Bone Marrow Failure and Myeloid Neoplasia – Tysons, VA
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