Since the birth of industrialization, societies have wrestled with the effects of pollution. Whether it contaminates the air, water, or soil, it can negatively impact human health, and scientists are…
Jessica Brown is gearing up to turn 11 years old on December 20th, and her mother, Jemma, is urging people to show her some birthday love. Jessica suffers from neurofibromatosis,…
Alex Pasichnyk is a 12-year-old girl from Canada, who enjoys playing piano and swimming. Last June, her life was suddenly interrupted by a rare disease. Alex has to leave her…
Happy Thanksgiving Patient Worthians! While you're still digesting, take a look at what we have in store for you this week. If you have EDS, we have some exercise tips…
What do restored clawfoot tubs, spelunking meetups, and first-grade school pictures have in common? They can all be found on social media sites on the internet. But other than connecting…
For people with postural orthostatic tachycardia syndrome (POTS), everyday activities can sap a lot of strength. POTS is a form of dysautonomia that is characterized by a shortage of blood…
No one knows how difficult living with hypereosinophilic syndrome (HES) is unless you walk in the shoes of those who have it, treat it, or have a loved one who…
Researchers at the University of Sydney have discovered something big: molecules unique to the blood of people who have Multiple Sclerosis (MS). MS, a chronic neurological disease that affects the…
Next time you order up fries, you might want to think twice before sprinkling on the sodium chloride—but not for the obvious health reasons. Sodium is a no-no for people…
28-year-old Emily Rogers was training for a half marathon in Hamilton a few years ago, when she started having trouble breathing. She never could have predicted what would follow. The…
We don't laugh because we're happy – we're happy because we laugh. -William James There is nothing funny about having a rare disease, but learning to laugh as often as possible…
This past August, NHL veteran Brian Boyle was tired, but as a father of two children, being tired didn’t really surprise him. It was a diagnosis of chronic myelogenous leukemia…
Reverend Jesse Jackson has been a guiding force in Civil Rights activism for over 50 years. He's a man of many facets: a baptist minister, presidential candidate, powerful orator, and…
Earlier this month, the FDA approved Zelboraf (vemurafenib) for Erdheim-Chester disease (ECD) with BRAF V600 mutation. The final results indicated a response rate of 54.5%. This is the first FDA-approved treatment…
The exact causes of avascular necrosis are often a mystery. Much the same as the lives of dinosaurs. That's right. Dinosaurs. Keep reading to learn more about this unlikely connection,…
Have you ever googled the word "precision"? Words linked to turbine engines, long-lasting tires and even industrial cameras pop up. But, what I didn’t see was anything related to precision…
It’s a fact. Lifestyle and dietary changes are an important part of the formula to help lower “bad” cholesterol numbers. Whether you add more heart-healthy foods, healthier fats, or whey…
Jane Hamilton, a student at Century High School, Minnesota, has Tourette Syndrome, which is a disorder of the nervous system that can cause involuntary vocalizations and movements, which are commonly known…
When something in our computers doesn’t work or has a defect, we download a “patch” from the manufacturer, and call it repaired. With ongoing scientific research and development, the practice…
“It’s all in your head.” I dare say these are words that many people living with a rare disease, including dystonia, have heard. It’s absolutely unfair, aggravating, heartbreaking, maddening. I…
Vinmec, a healthcare facility in Vietnam made bronchopulmonary dysplasia (BPD) history. They successfully treated BDP using a method that had never been tried before: the stem cell transplant. The procedure occurred…
Children who like to dance are easy to identify. You’ll see them tapping their toes to pop songs, moving to the tunes on a television show or, in my case,…
Happy Friday Before Thanksgiving! As you prep your tummies for the feast next week, take a dive into some of our top stories this week. There is an article honoring…
Everyone with dietary restrictions knows the struggle of going to the grocery store, scanning the nutrition, and sighing when it doesn't quite meet the requirements you need. That exasperation, looking…
Scleroderma, which is chronic hardening and tightening of the skin and connective tissues, can have a huge influence on the body, both mentally and physically. According to Andrea Peixoto, in…
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