According to a story from HSC News, Dr. Peter Kuhn from the University of South Carolina (USC) is developing a navigational tool that aims to personalize treatment based on a…
Patient Worthy’s partner the MDS Foundation will be hosting a patient forum on August 11th, 2018 from 9:30am-2:00pm "Whether you are a newly diagnosed patient, a long-term survivor, or a…
According to a story from pcmag.com, the pharmaceutical company GlaxoSmithKline (GSK) has recently partnered with 23andMe as part of a four year long agreement that will grant the company exclusive…
A Missouri girl was diagnosed with Addison's disease after being first diagnosed with anorexia. Eventually she ended up in the hospital with headaches, vomiting and stroke-like symptoms. Addison's disease is…
According to a story from The Sun, Alex was just two months old when he first experienced symptoms of xeroderma pigmentosum. His parents took him out to the park and…
Is there a genetic condition in your family? Are you concerned about the potential for passing this on to your children one day? Do you know if you are a…
Check out part 1 of Maxine's dysautonomia story here. The ambulance took me to the hospital, where they not only started an IV but also began giving me blood. I…
Pancreatic cancer is known to be dangerous because of its ability to spread. The most common areas the cancer will metastasize are the liver and lungs. In many cases, the…
A series called ‘Gonads’ by RadioLab is looking into human reproduction. Their second episode, which is the source used for this article, can be found here. It explores the story of Greg…
Treatments for neurological diseases have been developing rapidly in the modern era. Despite the development of new medicines and therapeutic techniques for many conditions, no cure has been found for…
Meet Ruby, a beautiful 3 year old who was diagnosed with hypomyelination with atrophy of basal ganglia and cerebellum, or H-ABC, shortly after her birth. H-ABC is a type of leukodystrophy…
According to a story from rdmag.com, researchers from the University of Toronto have discovered a critical mechanism that helps facilitate the normal DNA repair process. This mechanism could have implications…
According to a story from Pulmonary Hypertension News, It has been three years since Miloš Lazić had is first encounter with pulmonary arterial hypertension. As an active member of Serbia's…
According to an article published on BioPortfolio, a charitable foundation known as The Assistance Fund recently began a program to assist with the medical costs of hemophilia. The Assistance Fund…
This is the first installment of a three part dysautonomia story. “Every woman has a moment in life that changes everything. What’s that moment for you?” I read this question…
According to a story from Physician's Weekly, a recent study found that small amounts of invisible blood in stool increases the possibility of early death from other causes. The study…
According to a story from KVIA, the University Medical Center at El Paso, Texas, is offering an innovative "hot" chemotherapy treatment that has the potential to treat a variety of…
According to a story from Science Daily, researchers have discovered a mechanism that drives the development of renal cell carcinoma. This mechanism could lead to new therapeutic approaches that take…
According to a story from the Sydney Morning Herald, Hayley Wyatt appeared to be calling for her mother in her final moments, but there was nothing anyone in her family…
According to a story from globenewswire.com, the company Progenic Pharmaceuticals recently reported the the U.S. Food and Drug Administration has recently approved the company's product iobenguane I 131 (AZEDRA). This…
According to a story from publicnow.com, a recent study suggests that it is possible for pancreatic cancer to be diagnosed with a breath test. The discovery could allow for this…
According to a story from Charcot-Marie-Tooth News, a recent study suggests that changes in the levels of two proteins in the body could serve as biomarkers to indicate the progression…
According to a story from MIT Technology Review, it was 2011 when Sonia Vallabh received the results of a genetic test that showed that she had the genetic mutation responsible…
According to a public release from University of Texas Health Center at San Antonio on eurekalert.org, research using fruit fly tauopathy disease models has revealed a genetic "copy-paste" activity that…
For anyone who has had to step into a doctor's office, you know the litany of emotions that run through your body. Anxiety, confusion, worry, exasperation - and to say…
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