The FDA has doubled down on warnings regarding balloon angioplasty. Proposed as a treatment for multiple sclerosis, the surgical use of balloons in the jugular vein has been deemed risky…
At first, 14-year-old Alec Hebblethwaite and his family thought he kept choking on his food due to eating too quickly or talking mid-bite, yet, after some time they learned he…
According to an article from The Daily Herald, "The Big Sick" was Kumail Nanjiani's first feature film. Released in 2017, the movie received widespread praise from critics. The story was…
According to an article from Nephrology News and Issues, medical experts are calling for new treatments for chronic kidney disease that will allow patients to continue working. Although treatments for…
Social and lively teenager Cindy Redmond's life was forever changed when her friend's step-father blew an air horn directly in her face, damaging them forever, originally reported by Daily Mail.…
According to a story from CBC News, doctors are beginning to research the mystery behind the unusually high prevalence of multiple sclerosis among the people of Saskatchewan in Canada. To…
A new device called The Third Pole will soon be on the market to help newborns with pulmonary hypertension breathe better. Pulmonary hypertension is a type of high blood pressure…
Do you know the symptoms of ovarian cancer? If someone asked you to list the symptoms right now, could you? If you were experiencing symptoms of ovarian cancer yourself, would…
Who said helping cure and treat rare diseases couldn't be fun?! Last week, Three Lake Partners - a venture firm that invests in healthcare and quality-of-life solutions for patients dealing…
According to a story from the Washington Post, Vanellope Hope Wilkins had to immediately be placed in sterile plastic when she was born. This was because her heart, while functional,…
The United Network for Organ Sharing recently altered the rules of the organ transplant system. Geography is no longer as crucial a factor in securing a needed organ. Some view…
According to a story from The Irish Times, the South Tipperary General Hospital issued a second apology in court after providing insufficient care to a girl named Katie Manton, who…
Michael Mauti, a linebacker for the New Orleans Saints, had been struggling with ulcerative colitis for years, and it was getting worse. The thought of eating become one of great…
Every single day is life-threatening for Lauren Stribling, a 15-year-old girl suffering from a rare genetic disease called Marfan syndrome, reported Daily Mail. A simple fall, push, or physical aggression…
A 23-year-old NBC news anchor received the words that everyone fears, "you have cancer". Boston Globe Media Partners reported the experience that young Natasha Verma faced upon her diagnosis. While it's…
For the estimated 100,000 to 200,000 people in the US diagnosed with idiopathic pulmonary fibrosis (IPF), finding a community is important. IPF is a rare lung disease, which you can…
According to a story from asianscientist.com, a group of researchers out of Singapore used genomic analysis with around 3,000 patients with stomach cancer to determine characteristics that were associate with…
It wasn't the Christmas 18-year-old Alex Leisenring and his family were expecting this year. While they received the white Christmas they had hoped for, they spent the holiday in a…
The first new treatment approved for amyotrophic later sclerosis (ALS) has generated a lot of excitement and enthusiasm in the ALS community since its approval in May of 2017, but…
According to a story from Health News and Information, The National Eye Institute presented Juergen Naggert, Ph.D., with a grant in order to study genetically connected changes that occur in…
A huge deal is underway as Sanofi looks to acquire Bioverativ for $11.6 billion with hope to enhance and strength their rare disease presence, reports Genetic Engineering & Biotechnology News.…
It all started with extreme allergic reactions around her mouth when eating certain fruits, then overtime she grew to become allergic to just about everything, even her own tears and…
Happy Groundhog Day, Patient Worthians! It might not feel like it, but spring is its way! This week, we have a story of a family who copes with the challenges…
In a recent study, researchers at Stanford University School of Medicine successfully cured mice of cancer. Already, patients diagnosed with lymphoma are being sought out to undergo clinical trials with…
Start a conversation - and look a little snazzy while doing so! - by wearing purple today (February 2nd) to raise aware for neuroblastoma. Neuroblastoma is a rare cancer that…
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