Alisha Stone has a BA in psychology and is dedicated to improving the lives of others living with chronic illnesses.
There is an interesting article that I think the transverse myelitis (TM) Community needs to read, posted on Mobility Management. It was a real eye-opener for me – it brings…
Well, this is the perfect case of having too much technical, clinical information for some, but not being able to completely comprehend what’s going on--for those of us who don't have…
For the last one and a half years, I’ve been taking a mindfulness meditation class to help reduce stress and have recently “graduated” to a master class, which I’m enjoying and…
Back in 2012, the Minnesota Department of Health published a helpful fact sheet on methylmalonic acidemia (MMA). What I liked about it is that it’s very straightforward and to the…
I read an amazingly interesting article about a guy, who is living with Type ll diabetes and was diagnosed with non-alcoholic fatty liver disease (NAFLD). Seems he’s been through hell and…
I cannot get enough inspiration from Moms and Dads who are heroically trying to find answers when their children are sick—and doctors are scratching their heads! I read about a…
If you are considering having children, it’s wise to consult with a genetic counselor for screening and testing before conception. Here’s why: there is a plethora of deadly and/or seriously…
Man, I’m not so sure that I believe in angels, but my heart is overjoyed whenever I hear about strangers who’ve donated ANYTHING to help ANYBODY! With aplastic anemia—depending on…
Well, for anyone who's looking for information about neuromyelitis optica (NMO) or what’s also known as Devic’s disease or Devic’s syndrome—AND who happens to have a spare 45 minutes on…
When you or a loved one just receive a diagnosis of Gaucher disease (GD) it’s only natural to feel distressed, concerned, and worried about the future. Undoubtedly, you have many…
There’s an interesting blog post you’ve got to check out—especially if you’ve been feeling guilty about telling people “No” while living with or caring for a loved one who has…
Non-alcoholic fatter liver disease (NAFLD) is near and dear to my heart. Let’s just say we go waaay back. Before I get to how we “met,” let me give you…
‘Tis the season for caring and sharing, and I know of no other mother and family who need it more—not just compassion and care, but also effective treatments for her…
Status epilepticus (SE) is a serious, problematic, frightening, and often fatal condition, relating to uncontrolled seizures that continue to happen without any type of recovery between the seizures. SE is a…
Some more good news to share for people who are living with chronic conditions such as transverse myelitis (TM), a rare condition that strikes the central nervous system as seen…
It saddens me that kids with juvenile idiopathic arthritis (JIA) have a tough time growing up. Unlike other kids, they live with chronic pain and stiffness, swelling, fatigue, and a…
The next time you’re having a crappy day, think of the 1000s of kids across the globe who are suffering because they have juvenile idiopathic arthritis (JIA). JIA is one…
Kudos to the BBC for their documentary: Employable Me for bringing to light the plight of people living with Tourette syndrome (TS)! Tourette syndrome is seriously stigmatized, which adds layers of…
I found an interesting article about Trigeminal Neuralgia (TNA) which was a real eye-opener for me, and I’d like to share the highlights with you. If you or your loved…
I just read a Tourette syndrome (TS) post: What People Don’t Understand About Tourette Syndrome: A Lot which I think was pretty informative. In the piece, I learned about a…
So, it’s Friday afternoon, and you’re at work in a crammed meeting room. You’re looking forward to dinner with some friends. Only two more hours to go. All you’ve gotta…
In the midst of an ugly American presidential post-election, I am actively looking for inspiration to distract me from this mess. And man, was I lucky! There’s a gal who’s living…
I just watched a YouTube video, posted by a sweet red-headed, freckly-faced teenager, who is living with neuromyelitis optica (NMO). NMO is a rare autoimmune, demyelinating disease that attacks people…
I once heard that the difference between a good performance and a stellar one is transcendence—going beyond what’s written in the script or a song sheet. And, in my personal…
I am digging the Guthy-Jackson Charitable Foundation! When their teenage daughter was diagnosed with neuromyelitis optica (NMO), which is a rare, demyelinating, autoimmune disease that can be life-threatening, parents Victoria…
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