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Behçet’s

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This Behcet’s Blog is the Quick and Easy Research Stop
Source: Pexels.com

This Behcet’s Blog is the Quick and Easy Research Stop

  • Post author:Farrah Fontaine
  • Post published:September 27, 2016
  • Post category:Behçet's/Rare Disease

When I was first diagnosed with Behcet's disease, I did a TON of research. And not just any old WebMD research either. I went to the big names, the legit sources:…

Continue Reading This Behcet’s Blog is the Quick and Easy Research Stop
Editor’s Choice: Bad Viruses, Simple Terms and an Easier Life

Editor’s Choice: Bad Viruses, Simple Terms and an Easier Life

  • Post author:Patient Worthy Contributor
  • Post published:August 26, 2016
  • Post category:Amyloidosis/Behçet's/Hemophilia A/Hemophilia B/IPF/Multiple Sclerosis/Rare Disease

Welcome to this week's Editor's Choice! We hope that those of you who are having a back-to-school week, are smooth sailing! This week, we have some news on IPF and hemophilia…

Continue Reading Editor’s Choice: Bad Viruses, Simple Terms and an Easier Life
Why This Innovative Trial is the Behcet’s Solution
Source: www.pixabay.com

Why This Innovative Trial is the Behcet’s Solution

  • Post author:Farrah Fontaine
  • Post published:August 26, 2016
  • Post category:Behçet's/Rare Disease

Do you live in the United States? Are you an adult? (Meaning, are you older than 18? Whether or not you have your life together does not apply to this…

Continue Reading Why This Innovative Trial is the Behcet’s Solution
Behcet’s, Fibromyalgia and Chronic Pain
[Source: pixabay.com]

Behcet’s, Fibromyalgia and Chronic Pain

  • Post author:Farrah Fontaine
  • Post published:August 2, 2016
  • Post category:Behçet's/Rare Disease

Do you ever have those days where you're trying so hard to put one foot in front of the other, and then someone has the balls to ask you why…

Continue Reading Behcet’s, Fibromyalgia and Chronic Pain
LDN – Low Dose Naltrexone – Why it is Recommended
[Source: pixabay.com]

LDN – Low Dose Naltrexone – Why it is Recommended

  • Post author:Farrah Fontaine
  • Post published:August 2, 2016
  • Post category:Behçet's/Rare Disease

When you believe in fairy tales, anything is possible. When you believe in modern medicine, there are some limitations. However, the new use of low-dose naltrexone might seem like a…

Continue Reading LDN – Low Dose Naltrexone – Why it is Recommended
How to Live Better with Behcet’s

How to Live Better with Behcet’s

  • Post author:Farrah Fontaine
  • Post published:July 22, 2016
  • Post category:Behçet's/Rare Disease

So, you got the big ol' BD diagnosis, huh? And now you're trying to figure out how to live with it, right? Same here. See, Behcet's disease (or Behcet's syndrome) is…

Continue Reading How to Live Better with Behcet’s
How to Explain Your Rare Disease to a New Doctor

How to Explain Your Rare Disease to a New Doctor

  • Post author:PW Blogger
  • Post published:June 13, 2016
  • Post category:Behçet's/Rare Disease

Doctors are trained to look for horses instead of zebras. You may have to inform them that zebras do indeed exist. Sometimes it seems like you are explaining yourself and Behcet's…

Continue Reading How to Explain Your Rare Disease to a New Doctor
How To Have “Wild” Nights With Behçet’s Disease

How To Have “Wild” Nights With Behçet’s Disease

  • Post author:Farrah Fontaine
  • Post published:June 13, 2016
  • Post category:Behçet's/Rare Disease

When you have a chronic illness, "wild" nights tend to become a thing of the past. No more late nights at the club, hanging out until midnight in the middle…

Continue Reading How To Have “Wild” Nights With Behçet’s Disease
New Hope for Those Suffering From Behcet’s

New Hope for Those Suffering From Behcet’s

  • Post author:PW Blogger
  • Post published:June 10, 2016
  • Post category:Behçet's

While common in much of the rest of the world, Behcet's syndrome is considered relatively rare in the United States. That offers little relief for those in the U.S. who are…

Continue Reading New Hope for Those Suffering From Behcet’s
On A Scale From Kim K to 10, How Well Do You Know Your Rare Disease?

On A Scale From Kim K to 10, How Well Do You Know Your Rare Disease?

  • Post author:Lady Kehveen Abernathy
  • Post published:June 10, 2016
  • Post category:Acromegaly/Behçet's/Dysautonomia/HAE/Homozygous Familial Hypercholesterolemia/POTS/Rare Disease

Kim Kardashian: one of the most famous women in the world. Why, you ask? I honestly don't know. But due to that fact that so many people know and seem to…

Continue Reading On A Scale From Kim K to 10, How Well Do You Know Your Rare Disease?
The Quick and Easy Behçet’s Guide You Need to Read
Pixabay

The Quick and Easy Behçet’s Guide You Need to Read

  • Post author:Ronald Ledsen
  • Post published:May 24, 2016
  • Post category:Behçet's/Rare Disease

For old-timers like me who grew up in the Dark Ages before the internet, it’s still amazing to think that you can access what amounts to the contents of the…

Continue Reading The Quick and Easy Behçet’s Guide You Need to Read
Faith and Courage Help This Israeli Face Behcet’s
Pixabay

Faith and Courage Help This Israeli Face Behcet’s

  • Post author:Ronald Ledsen
  • Post published:May 11, 2016
  • Post category:Behçet's/Rare Disease

“Courage” is an adjective people throw around with relative ease to describe people and decisions that are not really courageous: A politician who vouches for a bill that may cost…

Continue Reading Faith and Courage Help This Israeli Face Behcet’s
This is What One of The Faces of Behcet’s Disease Looks Like
[Source: Pixabay.com]

This is What One of The Faces of Behcet’s Disease Looks Like

  • Post author:Ronald Ledsen
  • Post published:May 10, 2016
  • Post category:Behçet's/Rare Disease

If you’re one of the people in the United States diagnosed with Behcet’s Disease, the odds are extremely high you’re the only person living with that disease in your city,…

Continue Reading This is What One of The Faces of Behcet’s Disease Looks Like
This is the Formidable Force Facing Down Behcet’s Disease
[Source: pixabay.com]

This is the Formidable Force Facing Down Behcet’s Disease

  • Post author:Ronald Ledsen
  • Post published:May 6, 2016
  • Post category:Behçet's/Rare Disease

Sometimes, you just gotta be an unstoppable force... What do you do when you’ve been diagnosed with a disease like Behcet’s, something so rare that information and resources about it…

Continue Reading This is the Formidable Force Facing Down Behcet’s Disease
The Quick And Easy Way To Cook When You Have Behcet’s
Pixabay

The Quick And Easy Way To Cook When You Have Behcet’s

  • Post author:Farrah Fontaine
  • Post published:April 26, 2016
  • Post category:Behçet's/Rare Disease

Here are my typical evenings with Behcet's disease: I get home from work and, of course, I'm starving. But I'm also exhausted. Some days, I've planned ahead and have an easy…

Continue Reading The Quick And Easy Way To Cook When You Have Behcet’s
Simple Ways To Celebrate Vasculitis Awareness Month

Simple Ways To Celebrate Vasculitis Awareness Month

  • Post author:Farrah Fontaine
  • Post published:April 22, 2016
  • Post category:Behçet's/Churg-Strauss Syndrome/Rare Disease/Timely

We all know the saying: April showers bring May flowers. But did you know that April sharing brings May caring? May is Vasculitis Awareness Month, and the Vasculitis Foundation has…

Continue Reading Simple Ways To Celebrate Vasculitis Awareness Month
Announcing The Best Behcet’s Awareness Day Celebration

Announcing The Best Behcet’s Awareness Day Celebration

  • Post author:Farrah Fontaine
  • Post published:April 22, 2016
  • Post category:Behçet's/Rare Disease/Timely

Alright, folks: Get out your calendars! Or more appropriately, pull up your calendar on your phone! Now, go to May 22nd. It's a Sunday. How does your day look? Free?…

Continue Reading Announcing The Best Behcet’s Awareness Day Celebration
Have Behçet’s and Want to Blaze the Trail to New Treatment?
pixabay

Have Behçet’s and Want to Blaze the Trail to New Treatment?

  • Post author:Winnie Nash
  • Post published:April 21, 2016
  • Post category:Behçet's/Rare Disease/Timely

Behçet’s disease. If you’ve never heard of it, it’s a disease that causes blood vessel inflammation. If you have heard of it—or actually have Behçet’s—you’re probably well aware of the resulting…

Continue Reading Have Behçet’s and Want to Blaze the Trail to New Treatment?
But I Got So Frustrated, I Stopped Asking Questions
Pixabay

But I Got So Frustrated, I Stopped Asking Questions

  • Post author:Patient Worthy Contributor
  • Post published:April 14, 2016
  • Post category:Behçet's/Rare Disease

While this information is great, there is still not enough known about Behcet's and its causes... A disease forecast report for Behcet's Disease was recently released by Research & Markets and further…

Continue Reading But I Got So Frustrated, I Stopped Asking Questions
Orphan Eye Disease Drug News: When Your Eyes are Affected

Orphan Eye Disease Drug News: When Your Eyes are Affected

  • Post author:Patient Worthy Contributor
  • Post published:March 31, 2016
  • Post category:Behçet's/Intracranial Hypertension/Rare Disease/Stargardt Disease

Discovery Phase Drugs for Orphan Eye Diseases IVMED-100- 80- 90 are currently without generic drug names. They are under development for the treatment of orphan eye diseases by iVeena, LLC who has 6…

Continue Reading Orphan Eye Disease Drug News: When Your Eyes are Affected
Awesome Doctors, Family Medicine and Rare Disease

Awesome Doctors, Family Medicine and Rare Disease

  • Post author:Patient Worthy Contributor
  • Post published:March 22, 2016
  • Post category:Behçet's/Rare Disease

Socially active, super smart and patient worthy Dr. Kim Becher we applaud you! Patient Worthy found an awesome blog sponsored by the American Academy of Family Physicians (AAFP), Fresh Perspectives:…

Continue Reading Awesome Doctors, Family Medicine and Rare Disease
Heroic Mom and Daughter Are Inspiring The World
Hero mom helps daughter tackle Bechet's disease.

Heroic Mom and Daughter Are Inspiring The World

  • Post author:Alisha Stone
  • Post published:November 19, 2015
  • Post category:Behçet's/Rare Disease

Not long ago, I started following some press about an adorable tween named, Maddie, from Lawndale, NC, who is living with Behçet’s disease, and I’m just smitten! At the ripe…

Continue Reading Heroic Mom and Daughter Are Inspiring The World
Pregnancy and Chronic Illnesses Definitely Don’t Mesh, But Fear Not!
source: pixabay.com

Pregnancy and Chronic Illnesses Definitely Don’t Mesh, But Fear Not!

  • Post author:Farrah Fontaine
  • Post published:October 26, 2015
  • Post category:Behçet's/Rare Disease

We all have that one relative, who every time they see you, always asks, “So, when are you having kids?” or the mom who is desperate to be a grandmother.…

Continue Reading Pregnancy and Chronic Illnesses Definitely Don’t Mesh, But Fear Not!
The SubQ Challenge: How To Really Overcome Your Needling Fear

The SubQ Challenge: How To Really Overcome Your Needling Fear

  • Post author:Winnie Nash
  • Post published:October 23, 2015
  • Post category:Behçet's/Rare Disease

To SubQ, or not to SubQ? That is a question many people living with chronic illnesses face at some point in their lives. For some, subcutaneous injection (SubQ) is the…

Continue Reading The SubQ Challenge: How To Really Overcome Your Needling Fear
Which Hilarious Character is Your Rare Disease

Which Hilarious Character is Your Rare Disease

  • Post author:Kiki Jones
  • Post published:October 23, 2015
  • Post category:Ankylosing Spondylitis/Behçet's/CAPS/CVID/Dystonia/Familial Hypercholesterolemia/HAE/Rare Disease

Having a rare disease sucks, but sometimes it helps to cut your disease down to size mentally--especially if you can't do it physically! And, hey, laughing is better than crying,…

Continue Reading Which Hilarious Character is Your Rare Disease
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