Why me? Why Mine? The Unanswerable Questions of Illness

 Expert knowledge, however indispensable, is no substitute for a generous and comprehending outlook upon the human story with all its sadness and with all its unquenchable hope.”  -Winston Churchill We…

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La FDA está otorgando apoyo para estas enfermedades huérfanas, ¿estará el tuyo en esa lista?

La iniciativa llamado el Patient-Focused Drug Development Initiative de la Administración Nacional de Alimentos y Fármacos (FDA por sus siglas en Ingles) ha anunciado la lista de enfermedades a las…

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Which Hilarious Character is Your Rare Disease

Having a rare disease sucks, but sometimes it helps to cut your disease down to size mentally--especially if you can't do it physically! And, hey, laughing is better than crying,…

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You’ll Want To Know What This Scientist Found Out About HAE
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You’ll Want To Know What This Scientist Found Out About HAE

Hereditary angioedema, or HAE, is a life-threatening rare genetic disease with a lot of still-unanswered questions. However, scientists at the Karolinska Institute in Sweden, Science Daily reports, may have answered…

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