“It’s all in your head.” I dare say these are words that many people living with a rare disease, including dystonia, have heard. It’s absolutely unfair, aggravating, heartbreaking, maddening. I…
Children who like to dance are easy to identify. You’ll see them tapping their toes to pop songs, moving to the tunes on a television show or, in my case,…
Happy Friday Before Thanksgiving! As you prep your tummies for the feast next week, take a dive into some of our top stories this week. There is an article honoring…
Everyone with dietary restrictions knows the struggle of going to the grocery store, scanning the nutrition, and sighing when it doesn't quite meet the requirements you need. That exasperation, looking…
Looking different as a kid (or adult) can have a serious impact on your self-esteem, particularly if you’re dealing with something that also affects your health. Hair loss due to…
You've heard about Hurricane Irma and Maria that hit Puerto Rico, destroying schools, hospitals, and leaving the island without power. You've seen the devastating photos. Millions of people living there…
Scleroderma, which is chronic hardening and tightening of the skin and connective tissues, can have a huge influence on the body, both mentally and physically. According to Andrea Peixoto, in…
If you're a fan of indie documentaries and contemplating the purpose of life, you'll probably like Gabe. Long before the filming began, Gabe Weil's story started in St Louis. He…
All her life, Caitlin Shaw, a 15-year-old girl in England, has faced a number of serious health problems. She was born with numerous heart complications, as well as Kyphoscoliosis and…
You've seen hydrogels before: they're used in glues, contact lenses, breast implants, band-aids-- the list goes on. Hydrogels aren't exactly one thing, but a classification of gel: they're solid gel…
Hannah Chertock's art is a stunning testament to patience, and a thorough investigation of what it means to live in a human body. Chertock, the artist behind Bodies Adapt, studied…
Are eyes really the window to the soul? A recent study shows that they are, at least, a window into Angelman syndrome. Angelman syndrome (AS) is a neuro-genetic condition. It's…
For better or for worse, dating has become increasingly dependent on swiping, matching, and shaking your phone. We live in a world of pings, messages, and alerts. The smartphone dating…
Sixteen-year-old Ashrai Kumar has endured many nights of tossing and turning in pain due to ulcers caused from Behcet's disease. This chronic condition is seen prominently in Japan, Asia, and…
First, I want to address everyone, whether or not you have myasthenia gravis. If you're able to get the flu vaccine, but haven't yet, you should get on that as…
Can increasing awareness and early screenings have an impact on heart health in Canada? When it comes to familial hypercholesterolemia (FH), Vancouver’s top medical advisors believe it can, according to…
It had never even crossed my mind that there was a connection between my bruised skin, clicking jaw, Sally Hansen's strengthening nail polish, the blue skin on my hands in…
"I believe there is a solution." Those are billionaire mogul Bill Gates's words regarding the future of Alzheimer's. "Any type of treatment would be a huge advance from where we…
It goes without saying that September 11th left a scar on the US that our country is still healing from 16 years later-- especially the families and communities who lost…
We're in a tumultuous time for Duchenne muscular dystrophy (DMD) treatment. Recently, the DMD community was outraged when the FDA rejected ataluren (Translarna), a promising new drug, for a disease…
Virginia Ventura, 25, woke up one morning when she was 6, and found she was unable to move her legs. There had been no warning signs that she remembered, but…
Amanda McGrory's teammates nicknamed her work out "The Stairway to Hell." Depending on how you feel about intense work outs, that could make you want to run away screaming, or…
If you have psoriasis, you're familiar with the itchy, red patches of skin. The patches can show up anywhere. Typically, they're found on elbows, ankles, knees, and scalps. They might…
Can you have too much of a good thing? Yes! Potassium, for one. It's an important mineral for human beings, essential for helping cells function normally. And that's just the start.…
Rare disease began shaping acclaimed photographer, Karen Haberberg's family years before she was born. Her parents had given birth to her older brother, who was diagnosed with Tay-Sachs. Tay-Sachs is a…
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