It wasn't the Christmas 18-year-old Alex Leisenring and his family were expecting this year. While they received the white Christmas they had hoped for, they spent the holiday in a…
It all started with extreme allergic reactions around her mouth when eating certain fruits, then overtime she grew to become allergic to just about everything, even her own tears and…
According to a story from People.com, Gretchen Witt began selling cookies in order to raise money for cancer research after it seemed like her son Liam's battles with stage IV…
According to a story from Daily Echo, a theatre school principal is arranging a special performance in order to celebrate her survival of thyroid cancer at only thirty years old.…
Gene therapy is on the rise, and it just might be exactly what many children suffering from genetic disorders need to save their lives. Today reported that an amazing organization…
Doctors of semi-professional soccer player, Matt Dimbylow, believes he developed Parkinson's disease at the young age of 36-years-old due to a head injury he sustained playing the sport, reports Mirror.…
When Kristen Smedley learned her son, Michael, was diagnosed with retinitis pigmentosa, she decided she wouldn't sit back and watch it take away from her son's life, she would take…
The death of a loved one is never easy. It is difficult both to experience and to understand. Mark and Julie Russel lost their son Harry to mitochondrial disease when…
Rett syndrome might limit 8-year-old Laurel Cooper's ability to speak and do every day tasks, but it doesn't hold back her spunky, sassy attitude, reports University of Wisconsin-Madison News. She will…
15-year-old Jonathan Gutierrez might just be the youngest superhero to date. Recently, a video of him went viral showing how he's sacrificed a lot of his youth to take care…
For many - leprosy is nothing but an antiquated disease from biblical times with no present-day relevance. But in fact, nearly 150 to 250 people in the United States and 250,000 around the…
According to a story from the Murray Valley Standard, Lucia's parents Julie and Peter knew within weeks after her birth that something was wrong with their newborn baby's head. Although…
Living with the rare condition subglottic stenosis is never easy, especially when you're trying to keep up with your little boy. Caledon Enterprise reported that Emily Rogers does just that. She…
David Fogel's aunt was diagnosed with an advanced stage of stomach cancer when she was just fifty-six years old. Constantly dealing with severe pain and the side effects of treatment,…
According to an article from Vanguard, only a year after Pat and Ken were married, Ken was diagnosed with multiple sclerosis. He was 29 years old. They had planned to…
Everyone is guilty of blaming back pain on stress stemming from work and life in general, but there becomes a point when one has to realize something might just not…
According to a story from wqad.com, transplants are responsible for saving thousands of lives. Often, transplants are the last resort in diseases that have become to severe to treat effectively.…
On the pages of the Abby Grace Foundation website, you will find over twenty beautiful pictures of different children. Most of the children are smiling. One looks into the camera…
25-year-old Zoey Wright is a real force of nature! Having been diagnosed with the rare disease ulcerative colitis she found herself dependent upon a colostomy bag, yet that didn't stop…
According to an article from seattletimes.com, a homeless man's fight with cancer may actually improve his dire circumstances. Alan Brooks, a homeless man who was down on his luck, had…
The holidays are a little extra special for best friends Diana Caldon and Stephanie Smith. As optimistic cancer survivors, these two refuse to let holidays get away from them and…
When Terry Jo Bichell learned her son was diagnosed with Angelman syndrome, but little knowledge existed on the disease, she decided to get her PhD and do research herself, reported…
According to a story from ibtimes.co.uk, Sue Cox, a 65 year old Welsh woman from Cwmbran, has sought alternative methods for dealing with the worst symptoms of her multiple sclerosis.…
The Driscoll family is left devastated and shocked after receiving a letter from social services that states the government could be taking their daughter, who is suffering from Rett syndrome,…
19-year-old Jonathan Inkin created a "20-strong" bucket list with intention to cross them all off before his birthday. Thanks to the help of celebrity Toff (Georgia Toffolo), the winner of…
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
