How to Avoid Needless Hospitalizations with Glut1 DS
About a week ago, my best friend’s husband had a life-threatening emergency and was rushed to the ER. So when I got the call late that night, I too rushed to…
About a week ago, my best friend’s husband had a life-threatening emergency and was rushed to the ER. So when I got the call late that night, I too rushed to…
My story starts back when I was around 18 years old, almost 20 years ago. At the age of 18, I had my first DVT, deep vein thrombosis (blood clot)…
Why does time always have to run so short? Anyone who has ever experienced kidney dialysis knows the grueling process--the waiting game you play until a kidney becomes available for…
In the summer of 2001, my neck muscles began to involuntarily contract, causing my head to pull to the right. I had no idea what was wrong. My doctors were…
A la edad de 31 Andrea habían sido diagnosticados con espondilitis anquilosante (AS), la colitis, la escoliosis, cifosis, y la osteoporosis ya pesar de que estas condiciones han hecho su…
Dee Daud suffers from an extremely severe case of narcolepsy. Even walking his dog, which he tries to do three times a day, can turn into an emergency. He will…
Amanda Vasas has a special reason for wanting to elevate awareness about narcolepsy, a chronic sleep disorder she was diagnosed with at the age of 16. She doesn't want anyone else to…
Aaron es un graduado de la universidad de veinticuatro años de edad que vive en Alabama. Él es un empresario que se especializó en gestión de pequeñas empresas. Su padre…
Meet an incredible advocate for Huntington’s disease. Chasity Boatman grew up witnessing the tragic effects of this degenerative and fatal disease first hand and has now become a dedicated and…
Candace recogió sus cartas, lanzaron "Oceans" en el fondo, y apretó el juego cuando comenzó a grabar un video explicativo de su rara enfermedad con frecuencia mal entendida, de Inmunodeficiencia…
En 2013 Nisa despertó en el suelo necesitan puntos de sutura en la cabeza. Ella no tenía ningún recuerdo de caer. Mirando hacia atrás, ese fue el comienzo de su…
Welcome to the second of many posts related to Patient Worthy’s Video Series! We had the pleasure of interviewing PW contributor Kathryn Ferguson, a mother and a wife, who has been diagnosed with…
Conozca a Samanta. Ella ha estado luchando contra una increíble cantidad de síntomas desde principios de 2012. Ella está actualmente diagnosticada con la enfermedad celíaca, colitis ulcerosa, gastritis, neuropatía autonómica,…
Simply put, Adam Jacobs’ photos are breathtaking. And it’s quite possible that he never would’ve discovered his talent if he hadn’t picked up a camera as a way to distract…
In an ordinary world, one girl faces an unexpected fight. Fated to take on the mantle passed down by her mother, she must defend her life against this incredible foe. Will she deny…
Duchenne muscular dystrophy (DMD) may not sound so bad, but it is. What's so fatal about muscle degeneration? you might ask. Well, the heart is a muscle, so there's that. Luckily,…
Back to our interview with Mary! Miss the first part? Click here. Mary:- "I think education is power and the more you know about your disease process the more prepared…
Meet Patient Worthy’s newest contributor! Nikole is a mom with a background in education and incredible insight to the realities many chronically ill patients face. Diagnosed with Mixed Connective Tissue…
PatientWorthy is teaming up with CysticLife.org to spotlight some of the members in their awesome community! CysticLife.org sprang from a blog started by CF patient, Ronnie Sharpe, to track his life…
I am not a fan of reality television. But I am a helluva fan of Yolanda Foster, a Real Housewife of Beverly Hills. Though her and I probably don't have…
Though she’s lived with cystic fibrosis since she was 17 months old, Olivia never thought of it as something that made her different. Growing up, her daily medication routine was…
When you're competing in an important golf tournament, the last thing you want to worry about is narcolepsy and cataplexy associated with narcolepsy — but those are two very big…
Kathryn is a wife and mother of two amazing kids. She lives with undifferentiated idiopathic periodic fever syndrome, cold induced urticaria, and POTS. Patient Worthy got the privilege of hearing,…
In 2013 Nisa woke on the floor needing stitches in her head. She had no memory of falling. Looking back that was the beginning of her journey with POTS, which…
Patient Worthy contributor, Andrea, has wonderful recipes for a healthy, delicious ankylosing spondylitis diet ! Stay tuned for more! I often get a blank stare of resistance when I explain…