Happy Friday! We're about halfway through Stevens-Johnson Syndrome Awareness Month. It's a type of severe skin reaction that often involves admission to a burn unit for treatment. Looking for ways…
We have learned a lot, but still have much to learn about COVID-19. Researchers have seen a link between COVID-19 and chronic fatigue syndrome (myalgic encephalomyelitis) as well as Guillain-Barre syndrome, which…
Parkinson’s UK is nonprofit organization striving to help Parkinson's disease research continue amidst this global pandemic. Their goal is to get clinical research, and specifically studies that necessitate patients participating…
As COVID-19 continues to spread, the rush for a treatment or cure continues. Today, on August 4, there are 18.2 million diagnosed cases worldwide, with an associated 692,000 deaths.…
In 1986, Judy and Larry Pichon were married. The couple lived a happy life in Louisiana, though their days were sometimes complicated by Judy's health. She had granulomatosis with…
By Lauren Thayer from In The Cloud Copy COVID-19 has brought life to a screeching halt for everyone across the world. Schools cancelled, work transitioned to remote, all activities cancelled,…
As reported in Disability Horizons, the coronavirus has brought aspects of health and safety into the view for many citizens who had never had to be particularly considerate or careful…
Happy Friday! July is almost over, which means that Juvenile Idiopathic Arthritis Awareness Month is drawing to a close. But it's not too late to bring attention to this often…
The pandemic has made it difficult to get the same healthcare that we are used to. It is even harder for those who live with a medical condition or serious…
When it comes to COVID-19, many people believe, "Well, it can't happen to me!" But with 16.8 million diagnosed cases worldwide, and nearly 4.5 million of those in the…
Excited, nervous, worried: a lot of varied emotions go into being pregnant and giving birth. But during COVID-19, a global pandemic? It's understandable that those feelings are amplified. Currently,…
Gaucher Disease Awareness Month takes place every October, but amidst this new global pandemic, planning has taken place early to figure out how to make the month as successful as…
According to a story from Youth Today, the Americans with Disabilities Act (ADA) was first passed 30 years ago, in 1990. This historic law helps protect people that live with…
In a recent webinar hosted by the International Waldenström's Macroglobulinemia Foundation (IWMF) and held on July 22nd, 2020, Dr. Jeffery Matous from the Colorado Blood Cancer Institute gave an in-depth…
When Emilia Galarneau grows up, she'll have quite an exciting story to tell about her birth. According to the Connecticut Children's Medical Center, Emilia was born on March 6th,…
According to a story from The Philadelphia Inquirer, 25 year old Gabby McNary isn't taking any risks when it comes to the coronavirus/COVID-19 pandemic. Philadelphia was hit hard by the…
In order to better understand rare conditions and diseases, researchers sometimes create registries and biobanks full of resources. Recently, the Solve ME/CFS Initiative (Solve M.E.) announced the launch of…
Reprinted with permission from Findacure.org Today’s guest blog is written by Polly Moyer, Co-founder of the Action for Mal de Debarquement Syndrome UK facebook page and founder of the Familial MdDS facebook…
For twenty-five years Women of Influence has focused on empowering and helping to advance women in the workforce. Maayan Ziv, a Canadian tech entrepreneur, disability advocate, and voted one…
At the start of 2020, we had no idea what this year would bring: COVID-19, a novel coronavirus declared a pandemic in March. As of the morning of July 17,…
Not much is known about the novel coronavirus; medical professionals are working to learn more every day. One of those things we are trying to understand is how this virus…
While the world is waiting for a vaccine to prevent, mitigate, or cure COVID-19, the investigational drug remdesivir continues to show promise. The FDA recently gave it Emergency Use…
According to a story from Buzzfeed News, a recent test of an experimental COVID-19 vaccine being developed by Moderna Therapeutics demonstrated that it was able to produce antibodies in all…
According to a story from meaction.net, Dr. Anthony Fauci was recently asked a question about what was being done to address so-called COVID-19 "long haulers," and their potential risk of…
By Danielle Bradshaw from In The Cloud Copy The Lancet Psychiatry has published a review stating that although there have been signs demonstrating that delirium may be a common symptom…
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