Von Willebrand Disease, the Lesser Known Cousin of Hemophilia—Learn Why
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Von Willebrand Disease, the Lesser Known Cousin of Hemophilia—Learn Why

I first became aware of the bleeding disorder hemophilia when I was in high school reading about Nicholas II, the last Russian tsar. His son had severe hemophilia B, which…

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World Hemophilia Day Ignites Hemophilia Awareness and Explodes with Inspiration
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World Hemophilia Day Ignites Hemophilia Awareness and Explodes with Inspiration

I came across an interesting blog about World Hemophilia Day (WHD) which was April 17th, 2017. It’s an interesting read, and fairly simple, one every woman should know about for inspiration,…

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If You Are Attending a World Federation of Hemophilia Event, You Could Be Eligible for This Scholarship!
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If You Are Attending a World Federation of Hemophilia Event, You Could Be Eligible for This Scholarship!

The Susan Skinner Memorial Fund (SSMF) Scholarship was created to help foster the education of the newest generation of bleeding disorder advocates and researchers. Two scholarships are being offered this…

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Why This Mom Chose “Bleeder Moms” Over Blood Relatives for Inspiration
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Why This Mom Chose “Bleeder Moms” Over Blood Relatives for Inspiration

I’ve had one hellofa tough day, but stopped abruptly with an attitude shift to feel inspired after reading an uplifting article which I know will inspire tons of moms in…

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It’s Here: Patients with Hemophilia are Increasingly Demanding Improved Treatments and It’s Working!
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It’s Here: Patients with Hemophilia are Increasingly Demanding Improved Treatments and It’s Working!

All I can say is: "No $%@#, Sherlock" when I read articles like some of the ones I’ve read recently about the status of hemophilia A and hemophilia B treatments.…

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These Grandparents Swing with Shire to Ignite Inspiration for Hemophilia!
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These Grandparents Swing with Shire to Ignite Inspiration for Hemophilia!

The Hemophilia Alliance of Maine recently co-sponsored a special event with Shire Pharmaceuticals for grandparents to join together for inspiration. The event was held on April 22nd in Maine. I…

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How to Relieve Stress by Joining with Other Women in the Hemophilia Community
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How to Relieve Stress by Joining with Other Women in the Hemophilia Community

On Saturday, April 29, 2017, a special event took place to honor women in the hemophilia community living in Idaho. Way to go, Idaho Chapter of the National Hemophilia Foundation! How…

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Editor’s Choice: Events on Events on Events! Help Raise Sjogren’s Awareness and BOS Awareness

Happy Friday Patient Worthians! April is Sjogren's Awareness Month! There was also a whole day dedicated to Bohring-Opitz Syndrome. The MDS Foundation has another upcoming event as well. Lastly, last month…

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Murder in the Royal Family: How Researchers Discovered Hemophilia in Queen Victoria’s Bloodline
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Murder in the Royal Family: How Researchers Discovered Hemophilia in Queen Victoria’s Bloodline

Royalty, murder, lots and lots of blood – sounds like elements from the plot of a Victorian-era thriller. Actually, this story comes straight from hemophilia history. Science Magazine published a…

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