He Survived Acute Lymphoblastic Leukemia. Now He’s Pursuing Medicine to Help Kids Like Himself.
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He Survived Acute Lymphoblastic Leukemia. Now He’s Pursuing Medicine to Help Kids Like Himself.

  When he thinks about his ideal career, Jaziel Olmeda imagines being in a sparkling clean, white hospital ward. His goal: to help children going through pediatric cancer diagnoses. To…

Continue Reading He Survived Acute Lymphoblastic Leukemia. Now He’s Pursuing Medicine to Help Kids Like Himself.
Rare Community Profiles: Empathy through Art: A Mission to Raise Hypoparathyroidism Awareness
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Rare Community Profiles: Empathy through Art: A Mission to Raise Hypoparathyroidism Awareness

Rare Community Profiles     Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

Continue Reading Rare Community Profiles: Empathy through Art: A Mission to Raise Hypoparathyroidism Awareness
Her Family Thought She Was Struggling with Mental Health. It Was Anti-NMDA Receptor Encephalitis.
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Her Family Thought She Was Struggling with Mental Health. It Was Anti-NMDA Receptor Encephalitis.

As she stood in the garden, surrounded by friends and family, a splitting headache richocheted through Ciara Wilkie's head. Her vision blurred. At first, Ciara didn't think much of it.…

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Rare Community Profiles: Kenzi’s Commitment to Raising Familial Cold Autoinflammatory Syndrome (FCAS) Awareness
Photo courtesy of Kenzi Cabrera

Rare Community Profiles: Kenzi’s Commitment to Raising Familial Cold Autoinflammatory Syndrome (FCAS) Awareness

Rare Community Profiles     Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

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Rare Community Profiles: What’s Your SMthing?: Pam’s Efforts to Create a Culture of Support and Awareness for Systemic Mastocytosis
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Rare Community Profiles: What’s Your SMthing?: Pam’s Efforts to Create a Culture of Support and Awareness for Systemic Mastocytosis

Rare Community Profiles     Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

Continue Reading Rare Community Profiles: What’s Your SMthing?: Pam’s Efforts to Create a Culture of Support and Awareness for Systemic Mastocytosis
Rare Community Profiles: Shantel S. and Shriners Children’s are Transforming the Way We Understand Arthrogryposis Multiplex Congenita (AMC)
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Rare Community Profiles: Shantel S. and Shriners Children’s are Transforming the Way We Understand Arthrogryposis Multiplex Congenita (AMC)

Rare Community Profiles     Rare Community Profiles is a new Patient Worthy article series of long-form interviews featuring various stakeholders in the rare disease community, such as patients, their…

Continue Reading Rare Community Profiles: Shantel S. and Shriners Children’s are Transforming the Way We Understand Arthrogryposis Multiplex Congenita (AMC)