Have you ever had a panic attack? If so, you know how terrifying they can be. I have had plenty and know exactly what they are like…torture! There is good…
Jeff was first diagnosed with systemic mastocytosis early in life, at age 16. The first sign that Jeff knew that something was off was when he developed urticaria pigmentosa, abnormal…
According to a recent article in the International Business Times, a twenty-two-month-old girl living in Odisha, India was diagnosed with pulmonary alveolar proteinosis. The disease causes respiration difficulties due to…
Angela Singletary is the proud mother of three children: Aidan, DL, and Angela. One of them sticks out from the rest - literally. DL is a foot and a half…
My daughter, Carson, was born in June 2020. I received a call 1.5 weeks later about Carson’s abnormal newborn screening. I was told it was most likely an error, but…
Steven Rodriguez was nineteen years old attending college in California when he began to have severe headaches. A recent article from the UCSF Science Center gives an account of Steven’s…
Micah Gillings of Cambourne, Cambridgeshire was nineteen years old when he was diagnosed with an enlarged heart as evidenced in an X-ray taken in January 2020. An article appeared this…
According to a story from News Nation USA, eight-year-old Lilly-Ann Woolliss of Immingham was diagnosed with phenylketonuria (PKU) when she was born. As a result, she must consume a diet…
A heartbreaking announcement in PR Week stated that Lisa Stockman Mauriello had died of ALS in her New Jersey home at age 52 on August 4, 2021. As stated, the…
The Munson family is fundraising to make changes to their home, as these adaptations will make life easier for their two children Oscar and his older sister Mary. This is…
As parents, we know our son, now fourteen, the best. And my husband and I had expected that at school, they could get to know him well too. We hoped…
Tracey Shephard and her partner David Luffingham lost their daughter to meningitis and are now sharing their story as a warning to parents and medical professionals throughout England. The 11-year-old,…
On June 24, 2020, Savanna Wrobel was born. She came a little early as a premature baby: 35 weeks and 3 days. But that didn't stop her parents, Wade and…
Many little girls dream of being princesses, and Michele Kingsland is no different. Well, she is a little different, because her wish was actually granted. The Make-A-Wish Foundation crowned Michele…
Kenneth Mitchell is an actor who has worked on the "Star Trek" franchise since 2017. He's played the Klingon Kol, the scientist Aurellio, Tenavik and Kol-Sha, alongside two other Klingons.…
A 15-year-old from Sydney, Australia has recently passed away after a battle with pneumococcal meningitis and a positive COVID-19 test. Osama Suduh was admitted to Sydney's Children's Hospital with a…
An article by Sandra Boodman of the Washington Post recently appeared in the Philadelphia Inquirer describing the long journey to an accurate diagnosis for sixty-nine-year-old novelist Cai Emmons. Cai had…
Charlene Marshall was diagnosed with idiopathic pulmonary fibrosis (IPF) in 2016. The condition unfortunately has no cure. However, Charlene explains how grateful she is for the scientists that are investigating…
Each year, the National Kidney Foundation (NKF) holds a Kidney Walk to help provide support and assistance to those with chronic kidney disease (CKD) and other kidney-related conditions. Due to…
Nearly all cases of Wilms tumors, a rare form of pediatric kidney cancer, are diagnosed before a child turns 10 years old. When Maddie Newburn was first diagnosed, she was…
Holden and Elliot have felt a surge of support from their community recently, as their preschool came together to celebrate them and show their love. Both boys were born with…
When Caren was eighteen years old her parents were, in fact, given two options. If they were unwilling to consent to a lobotomy, Caren would remain in the dark ward…
When Ashley and Connor Henderson received news that they were pregnant, the family was overjoyed. After all, the Henderson family already had Liam and was hoping to add another child…
A local radio host and police dispatcher known as Dr. Rock to his audience in Bakersfield, California has recently passed away due to multiple system atrophy (MSA). You may recognize…
“I’ll be honest with you, Lindsey. I had to look up your syndrome before this appointment,” the doctor bashfully admitted. “I have never seen or heard of CLOVES syndrome.” Though…
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