A two-month-old baby recently traveled to Dubai to receive treatment at Al Zahra Hospital Dubai (AZHD), according to an article in the Khaleej Times. The child, who is from Oman,…
Mark Dalziel has big plans for this weekend; he's going to bike the length of Scotland within two days. He has a very good reason for doing so, which is…
Mal de débarquement, or "sickness of disembarkment," is a phenomenon which causes a bobbing, rocking, or swaying sensation, alongside other symptoms. With many people, mal de débarquement only lasts…
When Taylor Brown was just two years old, her mother TaMetress Reed began noticing certain symptoms, such as hardening and tightening patches of skin. As Brown grew up, the symptoms…
You may know Jessie J from some of her hit singles like "Price Tag" or "Bang Bang," but did you know that she is also a rare disease patient? She…
The Quincy community is helping to organize a bone marrow registry drive for a local teen who was recently diagnosed with hemophagocytic lymphohistiocytosis (HLH), according to an article in The…
At just four years old, Gabriel Spiro is facing his 3rd open-heart surgery. You see, Gabriel was born with hypoplastic left heart syndrome (HLHS), a rare and severe congenital heart…
The seventy-seven-year-old patient, Mr. S., had lived with chest discomfort for twenty years. Since bypass surgery or stents were not an option, his cardiologist managed to ease his discomfort through…
According to a story from the Bognor Regis Observer, 25 year old Kieren Rogers had his first stroke last August. It was a minor event, but he still needed to…
Robbie Elliot’s family, who reside in South Shields, England describes him as a perfect boy with a bubbly personality, always giving, and with a special love of music. According to…
70-year-old Trevor Hardie from New South Wales is recovering after almost losing his life to leptospirosis, a bacterial infection that is spread through the urine of mice. He's not the…
When Gwen Dillon's son, Aaron, was just 1.5 years old, he was diagnosed with craniosynostosis, a birth defect in which the bones of a baby's skull close early. According to…
To this day, Colleen Sosinski still isn't quite sure how her journey with necrotizing fasciitis began. During summer 2020, she was relaxing and enjoying the sun. Then, as reported by…
Feeling sore after an intense workout isn't out of the ordinary. It's normal for one's legs to feel a little wobbly or to hurt a bit while walking around. That's…
In 2020, Dr. Paul Orchard, a pediatric blood and bone marrow transplant physician at M Health Fairview University of Minnesota Masonic Children’s Hospital, attended a medical conference that would change…
There are plenty of sounds that are annoying or harsh on the ears: nails on a chalkboard, screaming babies, and loud construction are a few. But for some, there are…
Adetola Olajide Ariori is an artist from Ibadan, the capital of Oyo State, Nigeria. He was diagnosed with chronic kidney disease two years ago and has been living in excruciating…
Professional musicians generally practice several hours every day, but that does not hold true for Reece Jacob, age 29, from Manchester. UK’s Daily Mail recently carried an article about Reece…
At birth, Don Smith was diagnosed with hemophilia A, a bleeding disorder. At that time, treatment options for the illness were limited. Most patients were not expected to live much…
Not many people expect a rare disease diagnosis out of the blue. For many, they had been seeking the correct diagnosis for years before finally being given the name of…
Becoming a new parent is always scary. There are plenty of worries and concerns: setting up a nursery, making the right decisions, and of course, the baby's health. Samantha and…
Receiving a rare disease diagnosis can be difficult, frustrating, and scary. Laura Hamilton, the host of A Place in the Sun, is no stranger to this phenomenon; last year she…
Spinal muscular atrophy (SMA) is a rare, genetic disorder that impacts the muscles, making them progressively weaker over time. To combat this muscle atrophy, patients must exercise their muscles to…
Jason Matthews, the author of the award-winning series Red Sparrow and former CIA officer, passed away on April 28th due to corticobasal degeneration. This rare, neurological condition causes the degeneration and…
One-year-old Alexander was diagnosed with Barth syndrome before he was born; his parents knew to test for the condition after their son Elias passed away from complications in 2018. While…
© Copyright 2024 Patient Worthy
Sign Up With a Patient Worthy Account and Share Your Rare Story
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
- OR -
Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.
