2016 – Page 51 – Patient Worthy

Meme Awareness – Lyme Disease

Post author:Patient Worthy Contributor
Post published:May 4, 2016
Post category:Lyme Disease

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Still Floating Like a Butterfly: Muhammad Ali

Post author:PW Blogger
Post published:May 3, 2016
Post category:Parkinson's Disease Rare Disease

Muhammad Ali is known for many things, including being the Heavyweight Boxing Champion of the World, the Rumble in the Jungle and his fight against the Vietnam War. Diagnosed with…

Memeducation – 5 Lyme Disease Facts

Post author:Patient Worthy Contributor
Post published:May 3, 2016
Post category:Lyme Disease

Video Series: Kathryn’s Advice to Other Rare Moms

Post author:Patient Worthy Contributor
Post published:May 3, 2016
Post category:Rare Disease

So you just found out that you’re a rare disease girl, and by the way, you’re a rare mom too! So welcome to the smallest and hardest sorority to ever…

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How These Remarkable Women Are Supporting Lyme Disease

Post author:Alisha Stone
Post published:May 3, 2016
Post category:Lyme Disease Rare Disease

When I heard about the “Time for Lyme” Gala event that was held in early April 2016, I was tickled pink. These two daring Connecticut Moms, Rachel Robards and Marissa…

Image by Sandro Georgi Photography

Rare Mom: Kristina’s Girls

Post author:Rebekah
Post published:May 3, 2016
Post category:Narcolepsy Rare Disease

above image by Sandro Georgi Photography In honor of Mother's Day, Patient Worthy is featuring some of the Rare Moms in the community, those caring for children with a rare disease…

Living with MDS: Ryan’s Story Part 1

Post author:Patient Worthy Contributor
Post published:May 3, 2016
Post category:Myelodysplastic syndromes

Hello my name is Ryan Szanto. I am 78 years old and have been an MDS (Myelodysplastic syndrome, blood cancer) patient for 19 years. I would like to convey to you…

CRPS: When Pain Continues With a Vengeance

Post author:Erica Zahn
Post published:May 3, 2016
Post category:Complex Regional Pain Syndrome Rare Disease Timely

Let's say you broke your left ankle three years ago, and according to all x-rays, it healed beautifully. So why are you still in pain? And not just a dull…

Lyme Awareness Meme – Check your furry friends

Post author:Patient Worthy Contributor
Post published:May 3, 2016
Post category:Lyme Disease

Lyme Disease Awareness Month Means a Lesson in Compassion

Post author:Patient Worthy Contributor
Post published:May 3, 2016
Post category:Lyme Disease Rare Disease

It’s Lyme Disease Awareness Month which mean we get some well deserved time in the spotlight. As I reflect on what Lyme disease has taught me, it has been so…

Usted sabe que es hora de dejar su silla de oficina cuando…

Post author:Patient Worthy Contributor
Post published:May 3, 2016
Post category:Ankylosing Spondylitis Rare Disease

If all your office chair does is hurt you, maybe it’s time to break up. Estar sentado por horas puede darle a cualquiera un dolor de espalda, pero para pacientes…

Lyme Tips Meme – Check for Ticks #2

Post author:Patient Worthy Contributor
Post published:May 3, 2016
Post category:Lyme Disease

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Foundation Raises Funds for Cystinosis in the Most Adorable Way

Post author:Ronald Ledsen
Post published:May 2, 2016
Post category:Cystinosis Rare Disease

With a disease as rare as cystinosis—as in, only 2,000 people around the world are believed to have it rare—one of the biggest hurdles to raising funds for research has…

What Are The Odds CVID Treatments Will Get Better?

Post author:Erica Zahn
Post published:May 2, 2016
Post category:CVID Rare Disease

Finding treatment for a rare disease like CVID can feel like a dice roll. How can you find an effective treatment if doctors don't know exactly what's wrong with you? Dr. Harry…

Lyme Tips Meme – Check for Ticks

Post author:Patient Worthy Contributor
Post published:May 2, 2016
Post category:Lyme Disease

Meme Making Contest – Are YOU Worthy Enough? #PWMemeWeek

Post author:Patient Worthy Contributor
Post published:May 2, 2016
Post category:Rare Disease

IIIIIIIIITTSS.... MEEEEMEEEEE MAAAKING TIIIIIIIIIIIIIME! Remember that sneaky little quip I hid not so secretly into a 366 talking tip post a couple of weeks back? well the time has come…

Source: pixabay.com

What Do You Do if Your Baby Has CPSID?

Post author:Ronald Ledsen
Post published:May 2, 2016
Post category:Carbamoyl phosphate synthetase 1 deficiency Rare Disease

Becoming a parent can be exciting and terrifying in nearly equal measures—along with the thrill, anticipation, and joy, there’s the fear of what could go wrong. Worrying about your child’s…

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Supermoms and Other Myths

Post author:Patient Worthy Contributor
Post published:May 2, 2016
Post category:Dystonia Rare Disease

God blessed my husband and me with two girls, seven and nine. They are my reasons for living and my reason for fighting cervical dystonia every day. My oldest has…

Scientists need to get on the same page on Lyme Disease

Post author:Patient Worthy Contributor
Post published:May 2, 2016
Post category:Lyme Disease

Source: pixabay.com

Welcome to Lyme Disease Awareness Month

Post author:Patient Worthy Contributor
Post published:May 2, 2016
Post category:Lyme Disease Rare Disease

May is Lyme Disease Awareness Month and like other awareness months, it's all about educating the medical community and the community at large. Lyme disease is one of, if not the…

In the Voice of Arnold Schwarzenegger, “I HAVE A TUMAAA!”

Post author:Patient Worthy Contributor
Post published:May 2, 2016
Post category:Cushing Disease Rare Disease

We introduced Patient Worthy's newest and first Contributor living with Cushing's Disease in, On a Mission to be Fit and Fabulous, Meet Liz. If you are new to Liz's series about…

7 maneras de buscar en línea para obtener información acerca de ICV

Post author:Patient Worthy Contributor
Post published:May 2, 2016
Post category:CVID Rare Disease

Inmunodeficiencia Común Variable o ICV, es una enfermedad rara que afecta entre 1 en 25.000 y 1 en 50.000 personas en el mundo. Búsqueda de información sobre la condición crónica…

Meme Motivation – Lyme is no walk in the park

Post author:Patient Worthy Contributor
Post published:May 2, 2016
Post category:Lyme Disease

Does Myasthenia Gravis Make YOU A Special Little Snowflake?

Post author:Lady Kehveen Abernathy
Post published:May 1, 2016
Post category:Myasthenia Gravis

Myasthenia Gravis (MG) can make it hard for its sufferers to function normally whatsoever, as is the case for Cathy Liner, a woman living in Salem, North Carolina. Cathy has dedicated her life to…

source: pixabay.com

University of Pennsylvania Football Team Kicks off Fundraising for Castleman Disease Research

Post author:Octavia Walker
Post published:April 30, 2016
Post category:Castleman Disease Rare Disease

His name is David Fajgenbaum. Although he is now a medical professor, his own journey with health and wellness has been a tumultuous one. His story starts with his time…

Meme Awareness – Lyme Disease

Still Floating Like a Butterfly: Muhammad Ali

Memeducation – 5 Lyme Disease Facts

Video Series: Kathryn’s Advice to Other Rare Moms

How These Remarkable Women Are Supporting Lyme Disease

Rare Mom: Kristina’s Girls

Living with MDS: Ryan’s Story Part 1

CRPS: When Pain Continues With a Vengeance

Lyme Awareness Meme – Check your furry friends

Lyme Disease Awareness Month Means a Lesson in Compassion

Usted sabe que es hora de dejar su silla de oficina cuando…

Lyme Tips Meme – Check for Ticks #2

Foundation Raises Funds for Cystinosis in the Most Adorable Way

What Are The Odds CVID Treatments Will Get Better?

Lyme Tips Meme – Check for Ticks

Meme Making Contest – Are YOU Worthy Enough? #PWMemeWeek

What Do You Do if Your Baby Has CPSID?

Supermoms and Other Myths

Scientists need to get on the same page on Lyme Disease

Welcome to Lyme Disease Awareness Month

In the Voice of Arnold Schwarzenegger, “I HAVE A TUMAAA!”

7 maneras de buscar en línea para obtener información acerca de ICV

Meme Motivation – Lyme is no walk in the park

Does Myasthenia Gravis Make YOU A Special Little Snowflake?

University of Pennsylvania Football Team Kicks off Fundraising for Castleman Disease Research

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