Oh Canadá, la gente piensa que eres todo "por favor y gracias", y el jarabe de arce, pero conozco la verdad: Eres un luchador y esa lucha es más evidente…
10 cosas que he aprendido viviendo con el síndrome de Ehlers-Danlos 1. No es tan malo ser espontáneo Cuando era más joven yo tenía planes y listas para toda mi…
Our lives were forever changed on March 29th, 2004 – the day my son Tailen was born. There isn’t a day that goes by that I don’t wish that we…
Happy Easter Weekend Patient Worthians! And if you don't celebrate it, Passover is only a month away. If you don't celebrate either one, then why not celebrate life?! This week we…
As you know from my previous posts, I am an anti-inflammatory nut. But as of late, I have gotten a sweet tooth- ya introduce sugar once, and it's all down…
PatientWorthy está asociando con CysticLife.org para poner de relieve algunos de los miembros en su increíble comunidad! CysticLife.org surgió de un blog iniciado por paciente con FQ, Ronnie Sharpe, para…
When people hear the word “trauma” they often think of a car crash, assault, witnessing a robbery and sudden violent acts that alter our lives. Throughout my own life I…
Patient Worthy is very excited to introduce our newest Patient Worthy Patient Contributor, Amber! Amber is funny, and will be contributing regularly about life with celiac disease, vestibular neuritis, and cervical dystonia.…
As we close out the first week of the #PWMemeWeek contest, we have gotten a few submissions that are notably awesome! Not gonna spill any beans yet but y'all better…
I have early onset cervical dystonia. CD is a neurological condition that causes the muscles in my neck and shoulders to spasm involuntarily. For some people, it gets progressively worse…
Podría ser una historia de una novela de espías: Si bien se están pasando mensajes codificados, un extraño intenta infiltrarse e interrumpir la comunicación. Parte de la misión involucra el…
Today's talking tip meme makes us take a step back and think about how we approach compassion. It's not easy to be compassionate toward others if we don't show ourselves compassion when…
Socially active, super smart and patient worthy Dr. Kim Becher we applaud you! Patient Worthy found an awesome blog sponsored by the American Academy of Family Physicians (AAFP), Fresh Perspectives:…
Michael J. Fox Foundation Announces New Research Initiative for Pharmacodynamic (PD) Biomarker Like many other diseases such as Lyme disease, there is no current, easily measured bio-marker for Parkinson’s. Without…
Post Rare Disease Day 2016 the FDA's Office of Special Medical Programs announced a new program that would work to provide funding to patient advocacy groups and other organizations who were studying…
How celiac disease, vestibular neuritis, and cervical dystonia have ruined my answer to the most common way to greet people in America. “Hello, how are you?” Is it okay to say…
Alguna vez has tenido uno de esos días en los que simplemente no se sentía muy entusiasmado acerca de su vida? Tú sabes de qué estoy hablando. Los blues de…
Feeling crappy because of Lyme is the WORST. Then, feeling crappy from Lyme TREATMENT is scary. You think you know your Lyme, but then BAM! Treatment gives you random symptoms, from…
When my cat isn't distracting me with his exotic dance routine (he's just trying to get through catnip tasting school okay!? don't judge!) I do research on subjects that help…
If you have chronic Lyme like me, then you know that exercising can be a huge challenge. Your joints might hurt or swell, you might even find it difficult to…
The following memes focus on keeping your happiness and badassery levels high! No matter what your struggles, whether it be dealing with a rare disease or fighting to create awareness…
En el sitio web fabuloso de Cystic Fibrosis Lifestyle Foundation, el blogger de FQ Brian Callanan ha emitido una llamada a la acción. Él quiere saber de todos ustedes si…
Happy Day-After-St.Patty's-Day! As you all know, Rare Disease Week was at the very beginning of March and we have some awesome highlights for you below. One about a young artist…
Dear Body, I thought it was past time for me to write this letter to you. You see, I owe you an apology. I spend most days considering how you've…
Mark your calendars: The Global Lyme Alliance is hosting the 2016 Time for Lyme Gala on April 2, 2016. Where: Hyatt Regency Greenwich When: April 2, 2016, 6:30 pm-12 am (Midnight)…
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