There's nothing more important than being able to create collaborative, meaningful and positive conversations between Healthcare Providers and Patients and vice-versa. That's why, for the remainder of the year, you'll…
First, I’d like to start by saying that no chickens were harmed in the making of this article. Second, I’d like to announce to the world that I have a…
30 days until April 1st when Patient Worthy will announce the winner of a $500 travel stipend to the 2016 Acromegaly Community Bi-annual Meeting, April 29-May 1st (which is free). Patient…
A los 5 años de edad, Hadley Alexander no es normal. Cada mañana, su día comienza oficialmente a las 7 am Ella convenció despierto por sus padres y, a través…
This week's Meme Monday is rather special. Our chief editor is on the ground live tweeting from NIH during Rare Disease Day 2016 #RDD2016 - her first thoughts: "HERE, YOU…
It is Rare Disease Week 2016 and there were hundreds of advocates at Rare Disease Day today at NIH in Bethesda, Maryland. Patient Worthy has been providing live coverage from the NIH so…
Good day to you PatientWorthians! We can't express to you just how excited we are to be attending this year's Rare Disease Day® at the NIH main campus. As laid out…
Aaron es un graduado de la universidad de veinticuatro años de edad que vive en Alabama. Él es un empresario que se especializó en gestión de pequeñas empresas. Su padre…
Did you guys know Rare Disease Week is next week? Come participate with us! This week however, we wanted to address some rare diseases of our own: Lyme and POTS. Though POTS…
¿Tiene el nombre Miastenia Gravis un sonido un poco familiar? Probablemente no, pero si eres un fan de la serie #Empire, usted vino a través de ella cuando Lucious Lyon…
Q: What is Gaucher Disease? Gaucher's is a genetic disorder with varying symptoms that range from mild to severe physically as well as neurologically. People with the Gaucher have a…
There is an area in northern Minnesota given the general term or name of the Boundary Waters; it’s a cluster of many islands within a large body of water that…
Aquí en PatientWorthy, creemos que la risa puede ser la mejor medicina. Humor irónico es sorta lo nuestro. Pero para aquellos que ofenden fácilmente, o tal vez incluso moderadamente intolerante,…
Candace recogió sus cartas, lanzaron "Oceans" en el fondo, y apretó el juego cuando comenzó a grabar un video explicativo de su rara enfermedad con frecuencia mal entendida, de Inmunodeficiencia…
Normalmente en #mememondays, ofrecemos edificante, divertido, ya veces sólo directamente a los memes de puntos que puede compartir todo el universo social de #mondaymotivation.This week we are shaking it up!…
On Date: Mon, 12 Sep 2005 20:55:24 -0000 Sleepymoon posted the following message to readers followed by 128 different versions of You Might Have Narcolepsy IF... Are we really…
Study Title: Phase 2, Randomized, Double-Blind, Placebo-Controlled, Parallel-Group Study of N91115 to Evaluate Efficacy and Safety in Patients With Cystic Fibrosis Who Are Homozygous for the F508del-CFTR Mutation Treated With…
Todo el mundo le encanta un poco de misterio, excepto cuando se trata de tipos ominosos de enfermedades autoinmunes. En un artículo de Rare Connect, un sitio web que conecta…
You made it through another week Patient Worthians! This week, we have a pretty intriguing post on acromegaly's relationship with ED. ED is absolutely no laughing matter, but this post is both informative…
Guys, I am so pumped to be from Virginia right now. Having gone to the University of Virginia, I definitely have state pride, but the latest legislation passed in my…
En 2013 Nisa despertó en el suelo necesitan puntos de sutura en la cabeza. Ella no tenía ningún recuerdo de caer. Mirando hacia atrás, ese fue el comienzo de su…
Welcome to the third of many posts related to Patient Worthy’s Video Series! We had the pleasure of interviewing PW contributor Kathryn Ferguson, a mother and a wife, who has been diagnosed…
Mi nombre es Lisa y yo vivo con la artritis reumatoide (AR) y la fibromialgia. #myinvisiblefight está en curso, pero tengo fe, la familia y los amigos. Esta es mi…
Esta introducción a la semana de concienciación sobre las enfermedades invisibles, o como nosotros le llamamos #IIWK15 por sus siglas en inglés (Invisible Illness Week) fue escrita para una publicación…
I realize that as a woman who has been unmarried and dating for her entire adult life, my vocabulary is vastly different from that of someone who has been married…
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