Nobody fights alone… or at least I hope so. And some individuals on an idiopathic pulmonary fibrosis (IPF) journey were sweetly reminded that there are others who walk with them…
Get informed and gear up for Rare Disease Week this Monday! Start with our Editor's Choice. This week we have a sweet story about a pup and how he helps…
Here are some highlights of an inspirational article I'd like to share... Boehringer Ingelheim, a pharmaceutical company specializing in rare pulmonary diseases, headquartered in Germany, is stepping up to the…
Our fears are debilitating things that rob us of our energy, our dreams, and our opportunity for redemption. They are very much like rubber bands—flinging us back and forth. And…
Most people who have heard of idiopathic pulmonary fibrosis (IPF), we probably imagine a grandparent with their oxygen tank on a little cart and nasal tubes hooked over his/her ears.…
I recently lost a family member to idiopathic pulmonary fibrosis (IPF). She’d lived well with IPF for several years and physically well until the last six months. As you might…
Listen up: Scientists in Japan may be onto something big. They’ve discovered there is a significant correlation between the amount of fat vs. muscle that people have and how it…
Broadway Belts for Pulmonary Fibrosis is a yearly musical and comedy fundraiser to fight pulmonary fibrosis (PF). Created 7 years ago to honor the memory of Associated Press theater critic…
Ohhh, I've got a spark for discussion. I’m verklempt after reading a post from a 30-something woman who is living with idiopathic pulmonary fibrosis (IPF). First, it breaks my heart…
One of the biggest misconceptions around idiopathic pulmonary fibrosis is that once you get the diagnosis, exercise is off the table and there is nothing that you can do to…
Life has its obvious defining moments: graduation, our first house or apartment, falling in love and getting married, seeing loved ones pass, memorable trips, finding success, experiencing failure. The list…
If you’ve ever felt overwhelmed by everything going on in your life—finances, job, family drama (save it for your mama)—you have some idea of what mental fatigue feels like. But…
The death of a loved one is no doubt one of the most painful experiences in life. The grief, the confusion, and the emptiness that follows can sometimes feel unbearable.…
When tasked with delivering a life-changing diagnosis, it’s refreshing to hear that there are more doctors than not who understand the importance of how to share turning point news. If…
The Model-T. T-Shirts. T-Rex. Lots of really good and/or interesting things feature the letter T and a hyphen—including, if you have pulmonary fibrosis (PF), rare T-cells. Pulmonary fibrosis literally means…
’Tis the season to indulge in the spirit of giving. And that’s Kim Fredrickson's exact intention. Kim is an author, blogger, and marriage & family therapist who was diagnosed with…
Just over a week until Christmas and Hanukkah everyone! I am counting down the days until the celebrations begin with friends and family, which albeit can be stressful with chronic…
Wendy sits at the corner of a polished conference table. She’s timid by nature—a little mousy. Her voice squeaks out responses as she participates in the discussion. The conference she’s attending…
What is it about inspiration? Where does it come from? If you are living with idiopathic pulmonary fibrosis (IPF), you may want to feel moved, and then to use that…
Movies, television shows, and books can create a vision of a world with endless possibilities. The future can be portrayed in ways that we would find impossible in the present…
When your body has to work extra hard to breathe because of lung issues such as idiopathic pulmonary fibrosis (IPF), help it out by “eating healthy.” Digesting big, heavy meals…
Happy Weekend Before the Election Patient Worthians! Get some rest, Tuesday is going to be a big one in the United States. But while you're hanging out, check out these…
2016 has been a very bizarre, upsetting year. As an American, I can’t wait until I can bury most everything about 2016 in the back corner of the history books.…
My dad went from playing basketball three times a week at the local YMCA to not being able to climb the stairs to bed. And for two years, the doctors…
BMC Medicine recently started an idiopathic pulmonary fibrosis (IPF) article collection. It should help educate patients, caregivers, and healthcare professionals by delivering the most up-to-date research and latest advancements in treatment.…
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