It’s Not In The Blood, It’s In The Bone Marrow
Aplastic anemia. What is that? In simple terms, it's a condition that causes your body to cease making an adequate number of blood cells. It's a very serious condition, and…
5 maneras de hacer 2016 un año mejor #NewYearNewYou
Alexis Rosen fue diagnosticado con la enfermedad de Lyme crónica después de mucha confusión y mes de la búsqueda de respuestas. Ha comenzado ya la terapia con antibióticos IV. Después…
Meme Motivation – The Strength is in YOUR hands
Rare Disease Battles – Why Subliminal Activism Matters
Raising Awareness...Activism...Advocacy... Those are just some of the words we use to demand action from anyone whether it be world leaders, industries, friends or family. Every day we engage in…
Editor’s Choice: Man Races to Breathe, Odd Lymie Behaviors and Narcolepsy Video Series
Happy Friday Patient Worthians! This week we are highlighting a story of a man with cystic fibrosis, racing to breathe and spread awareness of exercise therapy for those with CF.…
Meme Motivation – Make The Choice to Act!
Check Out This CVID Video If You Need a Quick Info Hit
Looking for a good, concise description of common variable immune deficiency (CVID)? You could do a lot worse than to watch this video from the Children’s Hospital of Pittsburgh of…
What Do YOU Know About Myasthenia Gravis?
Have you ever thought about blinking? Right now, try not to blink for as long as you can... You blinked, didn't you? That's the function of an involuntary muscle. You…
Remember Me?
Remember me? I’m the girl with big ambitions who refuses to allow my illnesses to get in the way. Within two months of being diagnosed with Postural Orthostatic Tachycardia Syndrome (POTS),…
Meme Motivation – Lines and Borders Need Not Contain You
Do You Want to Meet Others Living With Sjögren’s Syndrome?
Are you one of the estimated four million people in the U.S. living with Sjögren’s syndrome? Are you going to be in the Seattle area between April 8th and 9th?…
Reciviendo mi primer diagnóstico de una enfermedad rara (Video Serie)
Bienvenidos a la primera de muchos articulos relacionados con la Video Serie de Patient Worthy! Tuvimos el placer de entrevistar al contribuyente de PatientWorthy Kathryn Ferguson, una madre y una…
366 talking tips – Background Checking Your Doc
Addison’s Disease is a Pain in the You-Know-What
If you're like me, you nearly jump out of your skin when somebody makes a loud, unexpected noise nearby. Like the sneaky garbage truck that silently slides up to the…
366 Talking Tips – Sharing Your Treatment Goals
Obama+ A.C.A.+ Republicans = Brent Brown?
Just when things are getting nastier and nastier on the campaign trails for both Republican and Democratic Presidential candidates, and much to the the dismay of his Far Right Republican…
CVID: Why is it Called Common When It’s so Rare?
Imagine, if you will, that you've just been diagnosed with common variable immune deficiency, or CVID. The doctor has answered your most basic questions, and now you're on your way…
366 Talking Tips – Be Honest About Your Comfort Level
How to Increase Your Steps AND Raise $$ for Epilepsy!
Lace up those walking shoes—even if you’re “walking” is really “wheeling” in your wheelchair and go call all your aunties, uncles, friends, and complete strangers for their pledge of support:…
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