• About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
Menu
  • About
    • Meet Our Contributors
    • Meet Our Partners
    • Meet the Patient Worthy Team
    • Collaborative Content On Patient Worthy
  • Diseases
  • Share Your Story
    • Patient Worthy Content Submission Guidelines
    • Patient Worthy Writing Prompts
    • Submit Your Story
    • Patient Stories
  • Resources
    • Library
    • Events
    • Patient Worthy FAQs
  • Podcast
  • Contact
  • Join PW
Click Here To Register For The Rare Disease Summit
Click Here To Share Your Story With Huntington's Disease
Click Here To Share Your Story With MASH

clinical trial

  1. Home>
  2. clinical trial>
  3. Page 28
How The French Are Coming To Save Your Life

How The French Are Coming To Save Your Life

  • Post author:Alisha Stone
  • Post published:April 18, 2016
  • Post category:mastocytosis/Rare Disease

Well, the French are at it again—thank goodness! French pharmaceutical company AB Science, announced in 2015 that it hit its endpoints in a phase lll clinical trial for human subjects who…

Continue Reading How The French Are Coming To Save Your Life
Why This New CVID Research Is The Most Exciting Thing You’ll Hear About Today

Why This New CVID Research Is The Most Exciting Thing You’ll Hear About Today

  • Post author:Ronald Ledsen
  • Post published:April 14, 2016
  • Post category:CVID/Rare Disease/Timely

Most researchers like to say that their work is “groundbreaking” or “revolutionary.” And most reporters—whether print or digital—like to use those words too, because they help get people’s attention. But…

Continue Reading Why This New CVID Research Is The Most Exciting Thing You’ll Hear About Today
Upcoming MF Clinical Trial!

Upcoming MF Clinical Trial!

  • Post author:Kathy Devanny
  • Post published:April 5, 2016
  • Post category:mycosis fungoides/Rare Disease

Mycosis Fungoides (MF) is a rare form of lymphoma that affects usually affects the skin causing inflammation, tumors, plaques, and redness. It only affects 3 to 4 people in a…

Continue Reading Upcoming MF Clinical Trial!
Should This Foundation Explore Promising New Research?

Should This Foundation Explore Promising New Research?

  • Post author:Erica Zahn
  • Post published:October 29, 2015
  • Post category:Primary Immunodeficiencies/Rare Disease

Recently, the Immune Deficiency Foundation (IDF) was invited to try for a grant sponsored by PI CONNECT. The grant would allow the IDF to study the compared effectiveness of antibiotic treatment for…

Continue Reading Should This Foundation Explore Promising New Research?
5 Reasons This Breakthrough HAE Trial Will Make You Horny

5 Reasons This Breakthrough HAE Trial Will Make You Horny

  • Post author:Kiki Jones
  • Post published:October 28, 2015
  • Post category:HAE/Rare Disease

Think about it: clinical trials are like a huge strip tease. They're waiting to put it all out there, but if no one comes, it’s a huge waste of time…

Continue Reading 5 Reasons This Breakthrough HAE Trial Will Make You Horny
  • Go to the previous page
  • 1
  • …
  • 25
  • 26
  • 27
  • 28
Finding Strength Together: Scott and Katie’s Journey with Advanced Kidney
You Are Not Alone: Empowering the Advanced Kidney Cancer Community
Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
Read Full Story Here
We believe rare disease patients are people, not a diagnosis. Through education, awareness and some humor, we help patients, caregivers and support persons by providing relevant and often inspirational news and stories.
Our goals are to share stories, cultivate strong community, provide the latest medical findings, connect people and pioneer production of patient worthy information. Help us attain these goals by telling us a little bit about yourself!

Let’s Work Together!

Partner With Us
Submit a Story

Keep Up to Date

Subscribe to Our Newsletter
Check Out Rare Events
Get Inspired By Our Memes

Learn More

About Us
Rare Diseases and Conditions
Terms of Use
Privacy Notice
Privacy Policy for CA Residents
EU/UK Privacy Notice
Data Privacy Framework: Consumer Privacy Policy
Consumer Health Data Privacy Policy
Cookie Notice

Facebook-f Twitter Instagram Podcast Youtube Tiktok Linkedin-in Pinterest Envelope

© Copyright 2024 Patient Worthy

Sign Up With a Patient Worthy Account and Share Your Rare Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info

We're Happy You're Here!

What best describes you when it comes to rare disease? (check all that apply)

What rare disease(s)/conditions are most important to you?

Visit Home Page or

Thank you for signing up for a Patient Worthy Account!

Have a rare disease story to share? Let us know

Share Story

- OR -

Sign Up For Our Patient Panel

Make a difference, share your experiences and get paid. Opt-in and join Patient Worthy's panel for paid opportunities such as surveys, market research, patient advisory panels and more.

More Info