According to a story from Central Texas News Now, a four-year-old girl with an extremely rare form of mitochondrial disease got her wish to see snow. The girl, Scarlett Landry,…
It began as a mysterious pain. Chief Master Sergeant Chad Caden experienced years of discomfort as a result of osteonecrosis in his right foot. Beyond pain, it also created uncertainty.…
According to a story from 13abc.com, a family is working to spread awareness about Batten disease after second grader, Charles Klein was diagnosed with the condition. The disease has no…
Shannon Hudson, mother from Columbus, is doing everything in her power to bring awareness to Glutaric Aciduria/Acidemia type 1, a rare disease her daughter was diagnosed with upon birth,…
According to a story from The Independent, Britain's disability welfare program is coming under fire for its Personal Independent Payment (PIP) assessments. Statistical measures suggest that these assessments are taking…
Ben Mudge might closely resemble Chris Hemsworth's Thor with his good looks and shredded physique, but he's also a real life superhero to many, reports Business Insider. Ben has defied…
When dealing with a rare disease, it's often hard to find someone else who's experiencing the same situation. Someone to talk with, cope with, listen to. Someone who gets it.…
According to a story from wired.com, Stephen Hawking, one of the most famous physicists on the planet, passed away on Wednesday, March 14th, 2018. He was 76 years old. His…
Forty-eight-year-old Isabel lives with the genital skin condition called lichen sclerosus, being diagnosed post menopause, and it's not an easy new life-style, reported NetDoctor. Lichen sclerosus is a rare genital…
Rare disease patients remain one of the most underserved medical populations, and they often have to deal with debilitating symptoms or complications that can make daily life difficult. For example,…
According to a story from macleans.ca, after beginning to develop problems with mobility such as climbing stairs, Julie Mason of Montreal endured years of confusing tests before doctors were able…
Just yesterday, the incredibly successful actor Irrfan Khan, announced on twitter that he just found out he has a rare disease, reported The Guardian. Khan has appeared in over 100…
Macey Brietenback continues to defy all odds. Originally reported by CBS Baltimore, the teenager lives with a condition that prevents her from digesting food. Even though it has given her…
According to a story from the Canberra Times, Dan Gaffney, resident of the Blue Mountains in Australia, was denied access to a treatment that was helping to extend his life…
This year has brought an especially nasty and dangerous strain of the flu. Nobody wants the flu, but contracting the virus while suffering from an underlying condition can be more…
According to a story from the Baylor College of Medicine Blog Network, Terry Lim, a women with familial hypercholesterolemia, views her condition with a new perspective after participating in a…
According to a story from the Daily Post, Katie Roy and Tjay Narciso were horrified when doctors told them that their new born daughter Kaila will only survive for a…
When I was a young mom, I was not naïve; I knew that life has it ups and downs. I expected a Merry-Go-Round, and got a Roller-Coaster. I thought that…
Many runners shared their inspirations after the Little Rock marathon this week. Among them Nancy Gifford, a thyroid cancer survivor, finished the race. Keep reading to learn more about her…
According to a story from the Washington Post, avid handball player Laura Hsiung first began experiences symptoms of a mysterious illness in the middle of a game. Suddenly, without realizing…
Many teenagers live as if they consider themselves nearly immortal, more concerned with navigating social circles than staying alive. Frightening as that actually can be, it’s a far step from…
Life for 27-year-old Medical Bio Science graduate, Tate Nova Scanlon, has never been easy. As originally reported by The Lincolnite, Tate has been battling aggressive symptoms caused by adrenal…
Christopher Barker is everything you'd expect in a 3-year-old. He's happy, loud, and full of life, so it was a devastating shock to hear that he had a fatal disease,…
According to a story from fosters.com, a twelve year old boy that survived a battle with brain cancer has begun playing ice hockey, his favorite sport, once again. Levi Whitcomb…
According to a story from macleans.ca, eight-year-old Mason Stewart has been dealing with the effects of spinal muscular atrophy since he began to walk; he developed an unusual walking gait…
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