You might know Danny Bonaduce for his role as Danny Partridge in "The Partridge Family” or his time as an American radio personality. But Bonaduce can now also call himself…
Throughout the globe, there are many countries in which rare disease awareness and support are still lacking. While India has made some strides in improving care for people within…
If you ask college basketball fans in Tennessee, they’ve probably heard of Zakai Zeigler. The 5’9 point guard, who originally hails from Long Island, now dominates the court as a…
Nick Cannon has announced that he will be taking some time off to be with family and mourn after the death of his son, Zen. The sad news was broken…
Normally, cerebrospinal fluid (CSF) surrounds our brain and spinal cord, providing numerous benefits from injury protection and nutrient delivery to waste removal. Hydrocephalus, or "water on the brain," occurs when…
I was born in 1960 in Chicago, IL and they knew something was wrong seconds after my birth; what, they had no idea. My mother (I was her 3rd child)…
In many areas of society, from healthcare to big business, companies are turning to artificial intelligence (AI) to solve pressing problems. Within the medical sphere, researchers recently developed an automated,…
Three people with an eye on the future talk about their innermost feelings and the fact that their lives may be interrupted at any time by their chronic illness.…
According to a story from Yahoo! News, Dorothy Dunnington is beginning to wonder if she will ever fully understand the circumstances surrounding the death of her sister Chrissy, who was…
This is the story of five-year-old Aubree Fox who has recently been diagnosed with hydrocephalus, stenosis, and an aneurysm in her brain. This slew of life-threatening diagnoses were all a mystery…
Hydrocephalus Hydrocephalus is a rare disease which causes a build up of fluid in the ventricles of the brain. The continuous flow of this fluid is how the body prevents the…
Tristan Lederman's health started to take a turn at the beginning of 2017. Tristan lived at home with his family and depended on his family members and at-home caregivers…
The Kids Wish Network (KWN) works to provide positive experiences for children age 3 to 18 who are living with life-threatening conditions. With the help of various sponsors, they are…
In a recent news article, the Northwestern Medicine Feinberg School of Medicine has shared details about an experimental device that may have the potential to dramatically improve the treatment of…
According to HSC News, researchers at the University of Southern California have engineered a device that may have a sizable impact on those with pediatric hydrocephalus. By troubleshooting the issues…
The 15th National Conference on Hydrocephalus: HA Connect This conference will be an opportunity for medical professionals, caregivers, patients, and their families to converge and learn about the latest development…
10-year-old Shayleigh Davidson visited her sister in the hospital a lot during the last five years. Her sister, Anai, is five years old, diagnosed with spina bifida and hydrocephalus. Spending…
According to a story from the Herald Sun, Matilda Mahon, an eighteen month old girl from Australia, will need to travel to the United States in order to receive treatment…
A breakthrough app won the Henry Ford Health System’s first artificial intelligence challenge. A team from Israel developed the app to assist in monitoring conditions such as Parkinson’s and hydrocephalus.…
A new study comparing two different treatments demonstrates that both could be effective in treating hydrocephalus. This condition is characterized by a buildup of cerebrospinal fluid inside the brain. In…
Because of an extremely rare disease, 3-year-old Reshmi's head has doubled its size after a fluid buildup in her brain. Reshmi Marak lives in a poor village in Tripura, north…
A recent announcement from the wonderful World Spina Bifida & Hydrocephalus Day website brought back some memories for me. Even before I became pregnant with my son, I heard about…
Okay, you guys, I got a boyfriend! I didn’t think it was possible. I mean, if you have at all been reading my posts through my site TheSickandtheDating.com, you know…
This article is the first in a series written by Carolina, Mariana's mother. Carolina hopes that sharing their story will increase awareness. Ever since Mariana was born, her life has…
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