Parkinson's disease is a progressive neurodegenerative disorder that slowly takes away a person's ability to perform even the simplest tasks. It is caused by the brain's inability to continue to…
A 10-year-old boy in Colorado will be ringing in the new year with a new kidney, and his parents couldn't be more relieved. Marcus Root suffers from cystinosis, a rare…
Rare disease living comes with its own set of highs and lows. Experiencing a myasthenia gravis crisis can be a terrifying ordeal. And not just for the person with myasthenia…
A little more than a year ago, a little girl in Michigan was critically ill. Doctors were hopeful they could help her, but there were no guarantees. Lilly Vanden Bosch,…
Cuando uno es joven, saludable y próspera, es difícil imaginar que es posible ser derribados por una enfermedad crónica, como la espondilitis anquilosante (EA). Como muchos jóvenes, "M" estaba libre…
Click here to read Part 1 of Theresa's HAE Diagnosis. A couple of months later I flew back to Nebraska, got sick on the plane with an abdominal attack at…
Besties are… well… the best! Lauren Smith just earned a Best of the Besties award for friendship by deciding to run in the Marathon de Paris 2017 on April 9,…
So many workouts, so many excuses. Running? Cramps in your side. Swimming? Hate getting wet. Pilates? Expensive. Spin class? A headache. Walking? Um... Finally, an exercise truly devoid of downsides.…
Non-alcoholic fatter liver disease (NAFLD) is near and dear to my heart. Let’s just say we go waaay back. Before I get to how we “met,” let me give you…
Ir a la universidad es un gran cambio para cualquier persona. Lo más probable es que vive en una ciudad nueva, que habita en una nueva habitación, y rodeado de…
Ammonia. Even if you don’t know much about it, you know it’s great for cleaning but not so great for ingesting. You… you do know not to ingest it, right?…
When I was 20 years old, my new husband and I celebrated our marriage with family and friends, with a luncheon where there was no alcohol. Neither of us drank…
Sometimes, the only things you can do are what is necessary in life-- the things that are possible. Keep doing just that and soon you may find that you can do…
Have you ever counted how many pills you take in a day? I have and the answer is way too many. Like the other 50 million Americans today, I have…
The word Love. What does that mean to you? Most people say: "Well holding hands, kissing, and spending lots of time together." Love is a strong word. I feel if you…
Aaron es un graduado de la universidad de veinte-cuatro años de edad que viven en Alabama. Él es un empresario que se especializó en gestión de pequeñas empresas. Su padre…
New BEGINNINGS are often disguised as painful endings. -Lao Tzu A New Year... time for new beginnings. If this year has been particularly hard for you, I hope this new…
Aquí en PatientWorthy, hemos escrito bastante sobre la narcolepsia. Sin embargo, no podemos dejar de pensar que dar un paso atrás para responder a algunas preguntas básicas acerca de la…
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