According to a first-person story on the Global Genes' Rare Daily website, Tara Voogel and her family were plagued by a medical mystery for 40 years before Tara finally found…
My grandma drank three cups of green tea every day. It didn’t matter if it was 98 degrees outside in the middle of August or the coldest day in December…
There are people in society who seek to divide us based on what our differences are, such as color, ethnicity, religion, dialect, lifestyle, political persuasion, neighborhood, level of education and…
1994 was a headline year for many reasons. Figure skating champion Tonya Harding attacked her rival, Nancy Kerrigan, and was stripped of her world title. The "Chunnel" opened between England…
Persistence is a tricky thing. In Hollywood films, persistence pays off. The dorky kid keeps asking the cheerleader out while he’s helping her with her homework until she finally agrees…
You are what you eat. We’ve all heard it before. Whether it was in a middle school science class or high school health class, you know how important it is…
Some doctors make it their life's work to study one disease. Maybe they've been affected or know somebody affected by it, making it a personal endeavor. Dr. Tsz-Kwong (Chris) Man…
A recent announcement from the wonderful World Spina Bifida & Hydrocephalus Day website brought back some memories for me. Even before I became pregnant with my son, I heard about…
They look perfectly healthy. There's no outward sign of disease. But for millions of Americans, chronic and debilitating conditions such as idiopathic pulmonary fibrosis (IPF) could be lurking inside. October…
A 6-year-old boy from Cincinnati who was battling Stage 4 Neuroblastoma has passed away. His name was Walter Herbert, but he was somewhat of a celebrity in his community known…
Don't forget to register for the upcoming MDS event in your area using the information above! A MDS Patient MDS Patient & Family /Caregiver Forum will be held in Stanford,…
TGIF Patient Worthians! This week, we have two opportunities where you can spread some love. You can help a young boy with microcephaly and/or contribute to amyloidosis research. We also…
Imagine having a couple more hours until you have to get up for work, but can’t fall asleep. Or what about feeling sleepy when everyone around you is waking up?…
Huntington's disease is characterized by the progressive degeneration of nerve cells in the brain. As a result of the breakdown of these very important cells, the body and mind of a…
It's that time of year again. Families across the country are making their annual pilgrimage out to the local pumpkin patch (or Kroger) to pick up fall's fruitiest porch decoration.…
Is it possible to check into the hospital and become sicker? Absolutely. Let's say you're suffering from a chronic condition, such as multiple sclerosis, cystic fibrosis, idiopathic pulmonary fibrosis or…
Patients with hepatocellular carcinoma can look forward to the FDA accelerated approval of nivolumab (Opdivo) after prior sorafenib (Nexavar) treatment. Hepatocellular carcinoma is a common form of liver cancer that cannot be…
In late September, Food and Drug Administration designated "fast track" status to the research and development of CPP-1X/sul for adults diagnosed with Familial Adenomatous Polyposis (FAP). Overseeing the project are Cancer…
Smart cars can apply the brakes for us. Smartphones can pay bills for us. Smartwatches measure blood pressure, temperature, and heart rates, as well as the passage of time. Now,…
When three-year-old Jake Burgman was born, something was wrong. Three months into his life, the Burgman's noticed that Jake was unable to lift his own head, among other developmental delays.…
There are a lot of stupid videos on the internet. It’s amazing what can catch on and go viral. Some videos are funny and feature fur-babies being adorable. Those can…
You've probably never heard of Criciúma. It's a city in Brazil known for its lumber, tile, textiles, and coal. It's also, according to the website ResearchGate, the epicenter of an extremely…
You will not often find me in the kitchen--a place that often plays a center role in the lives of families with cystic fibrosis. I have nothing against cooking—other than…
Researchers from MIT have recently identified a new way to stop the growth of glioblastoma brain tumors, bringing renewed hope in treatment options for this rare life-threatening cancer. Glioblastoma is…
October 21, 2017 Remember this deadline if you have a alpha or beta thalassemia, or another significant form of thalassemia, and are seeking an advanced degree in the US or abroad…
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