When it comes to the different types of dysautonomia, there are often prescriptions doctors try (like Midodrine) to relieve some of the symptoms. But for me, the side effects outweighed the…
Q: What do Fergie, Josh Dumal and Scott Niedermayer have in common? A: They are celebrity spokespeople for CureDuchenne a nonprofit organization that raises awareness and funds research to find a…
Happy Friday Patient Worthians! We are rounding out our Cystic Fibrosis campaign with CysticLife this week. For the past few weeks, Patient Worthy has been supporting CysticLife's collaboration with the Mayo Clinic for a…
This year’s holiday season was difficult. Allow me to explain by saying that it was great to be with my family after at least 20 years of not being in…
Living with Duchenne muscular dystrophy (DMD)? If you aren't familiar with Solid Biosciences, you should be! Here at Patient Worthy, we give credit when credit is due. We root for…
Click here for part one and here for part two of Sue's Story! When we left off Sue was battling hives (everywhere) and had received the diagnosis of Chronic Idiopathic…
Before I was officially diagnosed with Postural Orthostatic Tachyardia (POTS), I just thought these weird symptoms were a part of me. People would make comments and I would respond with…
If you haven't gotten a chance to read part 1 of Sue's Story click here! For the rest of you who we left on the edge of your seats, without…
Before any new beginning comes a last goodbye. As this old year closes out, I am overwhelmed by the amount of change that has taken place within it. Most years…
To read Part 1 of Mari's #NewYearNewYou post, click here. Now, let's focus on the New Year shall we. What do I want for 2016? That's a loaded question! But, I'll…
Hello Patient Worthians! Are you sticking to your New Year's Resolution so far? This week, we have more patient #NewYearNewYou contributions, the first of our video series, and a recipe that…
So here we are. A new year. 2016: A year for new hope and new potential. I've seen so many friends and family make these "New Year, New Me” New…
Years before I was diagnosed with late-stage chronic Lyme disease, I had been falsely diagnosed with a chest disease, chronically swollen lymph nodes, IBS and mild ADD with fatigue. With…
Alexis Rosen was diagnosed with chronic Lyme disease after much confusion and months of searching for answers. She has since begun IV antibiotic therapy. After (finally) being diagnosed and deciding on a treatment…
The mistletoe has been unhooked from the ceiling. The garbage man has manhandled your limp tree from your curb into his behemoth monster of a truck. The toys you just…
What would you do if you were the parent of a 5-year-old who is diagnosed with an extremely rare, incurable disease that causes vision and hearing loss, various neurological dysfunctions…
Welcome to the first of many posts related to Patient Worthy's Video Series! We had the pleasure of interviewing PW contributor Kathryn Ferguson, a mother and a wife, who has…
I have had two major life-altering “incidents” in my life. How each was treated was so amazingly different, it leaves me in a place where advocating for myself and others…
Happy New Year Patient Worthians! This week, we kicked off #NewYearNewYou. We want to hear how you are making 2016 the best year yet! We are also continuing our support for CysticLife's collaboration with the…
New Year, New Attitude. All of us that have chronic illnesses have said it at some point when that clock counts down to the new year. “This year I will…
To read part 1 of Laurie's #NewYearNewYou goals, click here. I recently became a state chapter leader for the Dysautonomia Support Network. I love it and it's really helped me…
With the new year approaching I've been thinking of ways that I can be more involved with my health. Not the standard lose weight and exercise nonsense like most people…
Ah the New Year. Before I was diagnosed with a chronic illness, I used to make similar, casual New Year's resolutions like "drink less alcohol" or "spend less money eating…
Merry Christmas Patient Worthians! And no worries if you don't celebrate it, because we're celebrating the overall spirit of giving by supporting this crowdfunding initiative with CysticLife. This month, we have been teaming…
When Harry Met Chelsea I frequently refer to online dating as “shopping for men.” I have my list of attributes I’d like to find in a mate, and the men…
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