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Author: Chloe Easterbrook

This author has written 79 articles
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Help This Mama Bear Guard Her Cubs with Cystic Fibrosis
[Source: pixabay.com]

Help This Mama Bear Guard Her Cubs with Cystic Fibrosis

  • Post author:Chloe Easterbrook
  • Post published:September 1, 2017
  • Post category:Cystic Fibrosis

Tammy Grover is a mama bear in every sense of the word. She keeps her cubs close and has dedicated her life to trying to help them survive. Two of…

Continue Reading Help This Mama Bear Guard Her Cubs with Cystic Fibrosis
Women with VWD and Other Blood Disorders Tell All
Source: www.pixabay.com

Women with VWD and Other Blood Disorders Tell All

  • Post author:Chloe Easterbrook
  • Post published:September 1, 2017
  • Post category:Rare Disease/Von Willebrand's Disease

When it was “that time of the month” nearly everyone around me knew it. My parents knew that my snarky responses had less to do with my attitude and more…

Continue Reading Women with VWD and Other Blood Disorders Tell All
CF Patients May Have Early Warning System For Hearing Loss
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CF Patients May Have Early Warning System For Hearing Loss

  • Post author:Chloe Easterbrook
  • Post published:August 31, 2017
  • Post category:Cystic Fibrosis/Rare Disease

With the creation of a new hearing test, researchers in the United Kingdom may be one step closer to diagnosing early hearing loss in young patients with cystic fibrosis (CF),…

Continue Reading CF Patients May Have Early Warning System For Hearing Loss
These CF Kids Are Pedaling Their Way to Positive Results
Source: www.pixabay.com

These CF Kids Are Pedaling Their Way to Positive Results

  • Post author:Chloe Easterbrook
  • Post published:August 25, 2017
  • Post category:Cystic Fibrosis/Rare Disease

When I was a kid, pedal power was the way to go. In fact, it was the only way to go—anywhere. It was a mode of transportation for us. We…

Continue Reading These CF Kids Are Pedaling Their Way to Positive Results
Doggie Drool(ing) over Narcolepsy Research Results
[Source: pixabay.com]

Doggie Drool(ing) over Narcolepsy Research Results

  • Post author:Chloe Easterbrook
  • Post published:August 24, 2017
  • Post category:Narcolepsy/Rare Disease

In my home, everything is shared with our dogs. When eggs are made for breakfast, the dog’s eggs are served scrambled. When it’s time to exercise, we all head outside…

Continue Reading Doggie Drool(ing) over Narcolepsy Research Results
How to Manage Myasthenia Gravis (MG) Swimmingly
[Source: pixabay.com]

How to Manage Myasthenia Gravis (MG) Swimmingly

  • Post author:Chloe Easterbrook
  • Post published:August 24, 2017
  • Post category:Myasthenia Gravis/Rare Disease

Loooong before myasthenia gravis (MG) came into the picture, Cathie’s mom used to joke that Cathie must be part fish. She was always in the water. It started with swimming…

Continue Reading How to Manage Myasthenia Gravis (MG) Swimmingly
International Albinism Community Heals through Music
Source: Pixabay

International Albinism Community Heals through Music

  • Post author:Chloe Easterbrook
  • Post published:August 24, 2017
  • Post category:Albinism/Rare Disease

According to an online article from PRI, there is a terrible injustice being meted out to people with albinism in Tanzania. Upon birth, their limbs have price tags on them,…

Continue Reading International Albinism Community Heals through Music
Acromegaly? There’s an App for That.
Source: Pixabay

Acromegaly? There’s an App for That.

  • Post author:Chloe Easterbrook
  • Post published:August 23, 2017
  • Post category:Acromegaly

Growth spurts? As an overachieving parent, I couldn’t get enough of them. I was the kind of mom who wanted to remember each and every step toward adulthood. I didn’t…

Continue Reading Acromegaly? There’s an App for That.
This Doberman Pinscher with Narcolepsy Puts the Dog in Dog-Tired
[Source: pixabay.com]

This Doberman Pinscher with Narcolepsy Puts the Dog in Dog-Tired

  • Post author:Chloe Easterbrook
  • Post published:August 22, 2017
  • Post category:Narcolepsy/Rare Disease

Damien took a lot of naps. I mean, a lot! It’s true; he was a very active Doberman Pinscher. He fetched everything—tennis balls, Frisbees, shoes that hadn't been put away—you…

Continue Reading This Doberman Pinscher with Narcolepsy Puts the Dog in Dog-Tired
Living With Gastroschisis: One Toddler’s Story
[Source: pixabay.com]

Living With Gastroschisis: One Toddler’s Story

  • Post author:Chloe Easterbrook
  • Post published:August 18, 2017
  • Post category:Gastroschisis

At 26 weeks of her pregnancy, this mom knew her baby had serious health concerns. Baby Mayana’s ultrasound was showing her intestines were not inside her little body. They were…

Continue Reading Living With Gastroschisis: One Toddler’s Story
Loveable Goofball Helps Make Rare Disease Life Bearable
[Source: pixabay.com]

Loveable Goofball Helps Make Rare Disease Life Bearable

  • Post author:Chloe Easterbrook
  • Post published:August 18, 2017
  • Post category:Complex Regional Pain Syndrome/Rare Disease

I love coming home. Don’t get me wrong, I get a great deal of satisfaction from working a solid day, but I really appreciate when I take the first steps…

Continue Reading Loveable Goofball Helps Make Rare Disease Life Bearable
Kids Supporting Kids to Help Defeat Chronic Conditions
Source: www.pixabay.com

Kids Supporting Kids to Help Defeat Chronic Conditions

  • Post author:Chloe Easterbrook
  • Post published:August 17, 2017
  • Post category:Lupus Nephritis/Protein C deficiency/Rare Disease

Having a chronic condition can be a scary thing, especially for a child. For a parent, hearing such a diagnosis can be devastating. Words like childhood cancer, protein C deficiency,…

Continue Reading Kids Supporting Kids to Help Defeat Chronic Conditions
Routine Eye Exams Can Diagnose Bigger Issues: Stargardt Disease
[Source: pixabay.com]

Routine Eye Exams Can Diagnose Bigger Issues: Stargardt Disease

  • Post author:Chloe Easterbrook
  • Post published:August 16, 2017
  • Post category:Stargardt Disease

There are certain doctor’s appointments that I dread. The top three appointments that can cause me to lose sleep include annual OB/GYN visits, mammograms, and eye exams. For me, my…

Continue Reading Routine Eye Exams Can Diagnose Bigger Issues: Stargardt Disease
For One Dancer, Ballet Takes Center Stage in the Face of Dystonia
[Source: pixabay.com]

For One Dancer, Ballet Takes Center Stage in the Face of Dystonia

  • Post author:Chloe Easterbrook
  • Post published:August 15, 2017
  • Post category:Dystonia/Rare Disease

When I was in my 20s and 30s, I performed in a lot of musical theater performances— “Music Man,” “Big River,” “Carousel,” “You’re a Good Man, Charlie Brown.” I was…

Continue Reading For One Dancer, Ballet Takes Center Stage in the Face of Dystonia
Invisible Illnesses Come Out from the Shadows
[Source: pixabay.com]

Invisible Illnesses Come Out from the Shadows

  • Post author:Chloe Easterbrook
  • Post published:August 14, 2017
  • Post category:Dysautonomia/Lyme Disease

Right up front, I'll admit I’ve done this: You’re in a parking lot looking for a parking space when you pass a handicapped spot. You see the placard that gives…

Continue Reading Invisible Illnesses Come Out from the Shadows
Radio Personality Froggy Leaps into Conversations about Acromegaly
source: pixabay

Radio Personality Froggy Leaps into Conversations about Acromegaly

  • Post author:Chloe Easterbrook
  • Post published:August 9, 2017
  • Post category:Acromegaly/Rare Disease

You’re more likely to recognize his voice rather than his face. If you love segments like “Food News with Froggy” or “Phone Taps” from the Elvis Duran and the Morning…

Continue Reading Radio Personality Froggy Leaps into Conversations about Acromegaly
Bathroom Scales Handle Weighty Issues of the Heart
[Source: pixabay.com]

Bathroom Scales Handle Weighty Issues of the Heart

  • Post author:Chloe Easterbrook
  • Post published:August 8, 2017
  • Post category:Hyperkalemia/Rare Disease

It started out harmlessly enough—a Greatest Loser- type competition between co-workers. Everyone who wanted to participate put in $10, weigh-ins would be weekly, and the person who lost the most…

Continue Reading Bathroom Scales Handle Weighty Issues of the Heart
New DBHD Treatment has Siblings Standing Tall
[Source: pixabay.com]

New DBHD Treatment has Siblings Standing Tall

  • Post author:Chloe Easterbrook
  • Post published:August 7, 2017
  • Post category:Dopamine beta hydroxylase deficiency/Rare Disease

Imagine if every time you stood up your world would start spinning, your vision would blur, and you’d faint or fall down. Prolonged exercise is out of the question. Extreme…

Continue Reading New DBHD Treatment has Siblings Standing Tall
Achoo! Patients with Cystic Fibrosis Say Keep Your Germs to Yourself
Source: www.pixabay.com

Achoo! Patients with Cystic Fibrosis Say Keep Your Germs to Yourself

  • Post author:Chloe Easterbrook
  • Post published:July 31, 2017
  • Post category:Cystic Fibrosis/Rare Disease

There is nothing worse than a summer cold. I should know. I am the proud owner of a bonafide summer cold complete with a runny nose, sore throat, coughing fits,…

Continue Reading Achoo! Patients with Cystic Fibrosis Say Keep Your Germs to Yourself
Young NASCAR Fan Shares Life-Saving Lesson with Brother
Source: www.pixabay.com

Young NASCAR Fan Shares Life-Saving Lesson with Brother

  • Post author:Chloe Easterbrook
  • Post published:July 27, 2017
  • Post category:Chronic Granulmatous Disease/Rare Disease

Most kids don’t like to share. The occasional hand-me-downs? Sure. For me, my books, games, and beloved Dale Earnhardt hair bows were sacred property—mine, mine, mine. I chose not to…

Continue Reading Young NASCAR Fan Shares Life-Saving Lesson with Brother
Cystic Fibrosis Causes This Mermaid to Struggle on Land
Source: Pixabay

Cystic Fibrosis Causes This Mermaid to Struggle on Land

  • Post author:Chloe Easterbrook
  • Post published:July 27, 2017
  • Post category:Cystic Fibrosis/Rare Disease

Mermaids have unique breathing concerns while they’re on land. In Disney’s “The Little Mermaid,” a young mermaid princess trades her voice for an opportunity to live on the land and…

Continue Reading Cystic Fibrosis Causes This Mermaid to Struggle on Land
DVT and Protein C Deficiency Can Spell Trouble for Pregnant Women
Source: www.pixabay.com

DVT and Protein C Deficiency Can Spell Trouble for Pregnant Women

  • Post author:Chloe Easterbrook
  • Post published:July 26, 2017
  • Post category:Protein C deficiency/Rare Disease

Being pregnant can cause some wonky things to happen to your body. Some go without saying—weight gain, strange cravings (jalapeño peppers on popcorn), fatigue (tbh, you’re carrying around another human…

Continue Reading DVT and Protein C Deficiency Can Spell Trouble for Pregnant Women
A Tyrosinemia Mom Turned Her Kids into Dietary Detectives
Source: www.pixabay.com

A Tyrosinemia Mom Turned Her Kids into Dietary Detectives

  • Post author:Chloe Easterbrook
  • Post published:July 24, 2017
  • Post category:Rare Disease/Tyrosinemia

"Mom! What’s for dinner?" It’s a question that strikes fear in the hearts of matriarchs everywhere. Meats, breads, vegetables—you know the basics. Now add in a picky eater or someone…

Continue Reading A Tyrosinemia Mom Turned Her Kids into Dietary Detectives
Birth Control Pills and Protein C Deficiency: A Deadly Combination
Source: www.pixabay.com

Birth Control Pills and Protein C Deficiency: A Deadly Combination

  • Post author:Chloe Easterbrook
  • Post published:July 24, 2017
  • Post category:Protein C deficiency/Rare Disease

As a teenager, my acne and periods were agonizing! I have high school yearbook pictures that still make me cringe. After gallons of over-the-counter acne medications and pain relief, it…

Continue Reading Birth Control Pills and Protein C Deficiency: A Deadly Combination
Sisters Work Together on HAE Disease Awareness and Science Project
[Source: pixabay.com]

Sisters Work Together on HAE Disease Awareness and Science Project

  • Post author:Chloe Easterbrook
  • Post published:July 19, 2017
  • Post category:HAE

Ah, the seventh-grade science fair, I remember it well. Not being an overly imaginative student, I came home and announced I was going to make an exploding volcano for my…

Continue Reading Sisters Work Together on HAE Disease Awareness and Science Project
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Finding Light Through Story-The Power of Ambassadorship in the Endometrial Cancer Community
*cancer that cannot be removed with surgery or has spread to other parts of the body. GEJ= gastroesophageal junction (where the esophagus joins the stomach)
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