They Did What? How IPF Doctors Deliver the Truth
When tasked with delivering a life-changing diagnosis, it’s refreshing to hear that there are more doctors than not who understand the importance of how to share turning point news. If…
When tasked with delivering a life-changing diagnosis, it’s refreshing to hear that there are more doctors than not who understand the importance of how to share turning point news. If…
I don’t know about you, but on very cold days, which seems to be the norm these days (even in the South), I crave hot foods like a hearty soup…
Imagine sitting in a doctor's office and hearing your child be diagnosed with cystic fibrosis (CF), or another grave illness. In this paralyzing moment, whatever was consuming your life minutes before…
Have you looked through Google for online quizzes? Well, let me just tell you... the extensive options may blow your mind. One that I found very interesting (there were plenty…
So many workouts, so many excuses. Running? Cramps in your side. Swimming? Hate getting wet. Pilates? Expensive. Spin class? A headache. Walking? Um... Finally, an exercise truly devoid of downsides.…
Yes, it's that time again, when holiday meals and homemade pies entice us to stay at the table longer than we otherwise might. With the holiday season in full effect,…
Frustration. It winds you up and can take so much out of you. Not only does it suck energy, but it also distracts and can steal quite a bit of time.…
What does the word ‘leadership’ mean to you? Does it mean being good at your job, being well liked, or being in charge of everyone? There are plenty of people…
Do you ever you read a headline and do a double take? The “what the hell did I just read” head shake combined with the eye squint—just in case you…
I can still remember the day when my overt trust in my doctor put my own health at risk. The ideal doctor and patient relationship never really developed. In retrospect,…
’Tis the season to indulge in the spirit of giving. And that’s Kim Fredrickson's exact intention. Kim is an author, blogger, and marriage & family therapist who was diagnosed with…
Most of us know what it is like to have bad news come our way. And in the course of life, all of us will feel the sting of news…
What is it about inspiration? Where does it come from? If you are living with idiopathic pulmonary fibrosis (IPF), you may want to feel moved, and then to use that…
I’ve been there. You’ve been there. We’ve all been there. And I’m thinking it’s a safe bet to say that we all hate it. We all know the feeling. When…
When your kids become adults, does being their mother stop? If you ask Susannah Prater, the answer is a resounding, “Absolutely not!” The Waverly News tells us that Susannah is a…
Are you looking for an Addison’s disease community so you can share similar experiences and learn more together? If so, Circle of Moms hosted by Popsugar may have the online…
Linus from the "Peanuts" comic strip is infamous for carrying around his security blanket while sucking his thumb. It is this same idea of a comfort object that has soothed…
Inspiration is important because it provides us with a glimpse of the fact that we can be great. But inspiration is not what fuels change, inspiration is fleeting. It’s what…
Some people would give anything to be able to get take a nap or just fall sleep whenever they wanted too. But that is not the case for someone who…
Mahatma Gandhi taught that we should endeavor to be the change that we wish to see in the world. (I believe Gandhi may have been on to something). I'm wondering…
We all need to be able to turn to family and friends when we've got a problem. There is a strong link between the support we receive and our well-being. It…
When faced with the unexpected, we often are overwhelmed with fear about of what lies ahead. If you or a loved one have dealt with a devastating medical diagnosis, many…
Lately, I haven’t been particularly mindful of hope. In truth, sometimes I feel like it’s more suited to children’s fairy tales. But the more I’ve turned the issue around in…
Dear Exhausted Mom Living with Primary Immunodeficiency Disease (PI), I know how you feel. You are tired. Our worlds may feel and look similar, but I’m not living with primary…
In today’s research world, the practice of teamwork has gained in popularity. This is especially true for researchers who work to better understand Neuromyelitis optica (NMO). NMO is an uncommon…