Organ Mini-Me to the Rescue: If You Have Cystic Fibrosis, Tiny Versions of Your Gut Could Save Your Life
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Organ Mini-Me to the Rescue: If You Have Cystic Fibrosis, Tiny Versions of Your Gut Could Save Your Life

In the world of medical science, there's theory and there's application. Many scientists and researcher make amazing discoveries, but few find applications that can really transform lives. Hans Clevers is…

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Trump Does Something That We Can All Agree On: Raising Awareness for Ovarian Cancer
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Trump Does Something That We Can All Agree On: Raising Awareness for Ovarian Cancer

In our derisive political environment, it's hard to find something everyone can agree on. But this month--Ovarian Cancer Awareness month, to be exact--party lines are coming together to heighten knowledge about…

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The Good, the Bad, the Ugly: Talking about Every Aspect of Your Rare Disease
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The Good, the Bad, the Ugly: Talking about Every Aspect of Your Rare Disease

As I was reading a post about Ehlers-Danlos syndrome on Stanford Medicine's Scope blog, a particular line caught my eye. The author of the post writes about "the moment [EDS patients] open our eyes…

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It’s Not Too Late to Register for This Dystonia Event in Rhode Island!
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It’s Not Too Late to Register for This Dystonia Event in Rhode Island!

Spasmodic Torticollis/Dystonia or ST/Dystonia, is a non-profit organization whose aim is to support patients suffering from ST, also referred to as cervical dystonia. Dystonia involves involuntary muscle contractions that may…

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Sarcoidosis Might Have an Surprising Ally in This Notorious Substance

Researchers at The Ohio State University Wexner Medical Center are curious about how nicotine may effect patients battling sarcoidosis. Sarcoidosis effects everyone differently. It occurs from excess granulomas, often resulting in…

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Register for This September Pulmonary Hypertension Event Today!

Time is running out to register for #PHAontheRoad in Pittsburgh on Saturday, Sept. 9th  at the Hyatt Regency Pittsburgh International Airport hotel. This is the @PulmonaryHypertensionAssociation’s last “on the road”…

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