Si usted ha estado sufriendo de colesterol alto con las puntuaciones tristemente lipoproteínas de baja densidad (LDL), aquí hay algunas noticias de última hora que podría salvar su vida! La…
How does a diagnosis of dystonia change your life? Dystonia is a disorder characterized by involuntary muscle contractions that cause slow repetitive movements or abnormal postures. The movements may be…
Have you ever tried to run a marathon? If so, you’ll know how taxing and strenuous the race can be on your body. Now, consider this: What if you had…
What happens if your adrenal glands produce too little cortisol, and perhaps an insufficient level of aldosterone, as well? Addison's disease is the end result and it can be life-threatening.…
Great news (I hope) for people who suspect they may have a medical condition such as Cushing’s disease and are concerned about their health. A clinical trial made public in…
Do you experience pain? Weakness? Swelling? Burning sensations? Dull ache over an affected area? Oddly enough, your career may be the source of your symptoms. Not to stir panic but…
Gracias a Dios por el siglo 21! Si usted ha estado muriendo para asistir a la Cumbre de Apoyo al Paciente de de Global Genes en California, pero no hay manera de que…
Yowzaaa! You don’t want to miss the article by Jeannette Y. Wicks, RPh, MBA, FASCP about Cushing’s disease (CD). Cushing's is a rare disease that’s caused by high levels of…
Have you ever tried your hand at fundraising--especially for a rare disease like dystonia? If so, you’ll know that it’s difficult because there are so many factors involved. Without a…
When Stephen was growing up, he had no idea he'd one day be diagnosed with Common Variable Immunodeficiency (CVID). As a kid, he had a lot of trouble with ear and sinus problems.…
Living with cystic fibrosis(CF) can change everything. When you hear that someone, whom you love deeply, has been diagnosed with something that is incurable your life changes dramatically. When reading…
"Feliz Mes de la conciencia para la distonía!" Tal vez "feliz" no sea la palabra adecuada ... Porque, mientras que separa la conciencia es siempre algo que celebrar, la distonía…
People with dystonia, may have a new treatment option: brain surgery. Sure, it doesn't sound fun, but according to Dennis Russel, having the procedure for his essential tremor was "a…
If you are one in 1.3 million people, you might be born with a mutation in your CPS1 gene, causing you to have carbamoyl phosphate synthetase 1 deficiency or CPS1D.…
How many 22 year old kids do YOU know who live WELL with a chronic illness? Uh, I can’t say I know many other than one kid who has type…
Now that I've puffed on this piece from the Hippocratic Post, I thought I'd pass it on to you. Mike Barnes, a professor of neurological rehabilitation at Newcastle University, is…
Al igual que romper con tu pareja puede ser difícil de hacer, por lo que se puede romper con su médico. Después de todo, él o ella puede haber estado…
El perro de trabajo: Perros de Servicio compiten para la medalla de oro Mientras que las campañas presidenciales de 2016 se ponen en marcha, estadounidenses están tomando a las urnas…
Happy Friday Patient Worthians! We have two intriguing stories from PW contributors this week, detailing their plight with rare disease. Additionally, we have a pretty cool outcome for a pretty cool kid…
Wondering how to make your vitamins rock dystonia? (Not as badass as Chuck Norris, of course.) If yes to the vitamins, then read on! There are multiple forms of dystonia, and…
“You’ve come a long way, baby!” was a hugely popular phrase back in the late 1960s that I grew up with and still refer to often. I often say it…
I watched a very cool video that follows one woman’s quest to finally get the answers she needs. Ultimately, it led to her diagnosis and subsequent treatment for Cushing’s disease.…
Hay muchas maneras de lidiar con el estrés. Algunos son saludables, algunos ... no tanto. Para muchos, el tabaquismo es un "gran" calmante para el estrés. No importa que probablemente…
Kudos to the Cystic Fibrosis (CF) Foundation for building a mighty network of care centers for CF patients all across this great nation of ours! The Foundation has set forth…
How many times did a blockbuster movie speak to you? There are profoundly important relationships forged between motion pictures and human behavior. Motion pictures do not have a fixed pattern…
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