La mayoría de los padres están ansiosos de que las primeras palabras de su hijo. Pero como el Daily Mail en el Reino Unido informa, Stevie y David Taylor esperaron…
I recently posted an article on aplastic anemia in response to another post that I’d read. I felt compelled to mention that a dear friend of mine was diagnosed with…
Botox may be the new fresh face headliner in the therapeutic industry. Who knew? We see and read conversations about Botox more commonly in top women’s magazines, the likes of Cosmopolitan,…
If you’re the parent of a small child—or any size or age child, really—here’s a good reminder of why you should hold your baby a little closer and be thankful…
You know that saying people use when someone’s facing a flood of crises? “God doesn’t give you more than you can handle?” Depending on your point of view that may…
What if you had an inherited disorder that caused a fat called globotriaosylceramide to build up in your cells? Chances are pretty good that you'd be diagnosed with Fabry disease,…
Epidermolysis Bullosa, or EB, is a connective tissue disorder that approximately 200 babies are born with each year. The most serious symptom is the extreme fragility of skin. People with EB suffer…
I think, the earliest I can remember of any issues that I was having with dystonia were just not being able to hold a drumstick or a mallet. I used…
Si usted es uno de los aproximadamente 1 de cada 25.000 a 50.000 personas en los EE.UU. que viven con inmunodeficiencia variable común (ICV), inyecciones regulares IV son un hecho…
Hey, you want to piss me off? Talk to me about the miraculous health benefits of vitamins and supplements! Vitamin D, Vitamin B12, Vitamin R2D2, Fish Oil, Hemp Oil, Pressed…
I applaud the American Association of Kidney Patients for their efforts to raise awareness about a condition called Fabry disease. A rather rare genetic disease, Fabry disease seems to affect…
The process to get diagnosed was a very long one. It was over two years that I first started seeing a neurologist regarding the concerns and issues that I was…
Charis es una californiana, activista, motorista ávida, blogger, y modelo. Ella fue galardonada con el Premio 2014 Avances en la política por la Arthritis Foundation, la región del Pacífico…
Remember that questionable-looking salad you ate in a not-exactly-pristine restaurant? You've been trying to forget the server's blackened fingernails and sweaty brow, and as you double over from abdominal pain, you…
Let's all breathe a sigh of relief that we live in the age of modern medicine—and by that, I mean 2016. Less than 100 years ago, diseases like leprosy, now…
Olivia Trueb vive el sueño de todo adolescente. Al igual que en, ella tiene un equipo de jugadores de fútbol profesionales que se envuelve alrededor de su dedo, y para…
Every now and then, we all have bad days. But for a child living with a chronic illness like hemophilia—it’s just sooo unfair. I read an inspiring article written by a married…
Superman, where are you now? Look no further than Warren, Michigan. Not many people may know or have heard about dystonia. It is a neurological movement disorder that complicates mobility…
If you have sarcoidosis, you already know that it's a disease that causes inflammation that in some cases, doesn't go away. The body's immune cells clump together and form granulomas.…
Incluso cuando su nivel de colesterol LDL está disparando a través del techo, que todavía puede ser difícil de querer (y elegir!) Lo "saludable" para comer. Pero nosotros hemos hecho…
If you don't know what it's like to live with dystonia, then you need to watch this Youtube video by Shawn Fairchild. A brave man living with dystonia, Fairchild shows…
There's good news for people living with Hereditary Angioedema (HAE), the genetic disorder that results in sudden and severe swelling basically anywhere throughout the body. As those living with HAE know,…
If you've got Fabry Disease and you live in Canada, you've GOT to check this out. If you don't have Fabry Disease, allow me to clue you in: It's a…
I discovered this neurologist, my current neurologist, through an occupational therapist who was trying to help me learn to live with whatever condition I had at the time, because I…
el blog de Honest Abe, un cajón de sastre sitio para juegos de video y la ciencia, ahora puede añadir campeón enfermedad rara con su descripción. El verdadero Honest Abe…
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