Pills and Parfaits: How probiotics could make living with CVID a little easier. Between the far-too-frequent infections associated with CVID and the reoccurring gastrointestinal issues, many patients find themselves on…
5 Questions you’re tired of hearing when you have CVID... “So you have respiratory AND digestive issues?” Yes. Both. Trust me I’d pick one if I could. “…
It is through art that Rebecca Zook manages the emotional and physical challenges of living with a chronic condition. After 3 years of seeing dozens of medical specialists, the Texas…
Your average American probably thinks of middle-aged adults or the elderly when they hear the word arthritis. The sad thing is you really can't blame them. Take this commercial from…
In a recent study published by Prime Therapeutics, the company reported that the annual cost of treatment to an HAE patient is over $300,000. We wanted to illustrate the ridiculous…
Ahh the age of machines, yep we're in it. Technology has taken over. A few decades ago, when someone talked about technology, you thought about Orwell's novel 1984, science fiction movies about machines and artificial intelligence…
No, not cinco. "CINCA"! CINCA stands for chronic infantile neurological cutaneous articular syndrome. NOMID stands for Neonatal Onset Multisystem Inflammatory Disease. So is CINCA really the same thing as NOMID?…
Looks like Pfizer wants to buy a Swedish company who provides a treatment for neonatal-onset multisystem inflammatory disease, (NOMID). NOMID belongs to a family of conditions known as Cryopyrin-Associated Periodic…
Meet the Attwood family. Out of the 8 family members present, 4 of them are living with Hereditary Angioedema. The heart of the family is led by a strong women…
Just because Burger King ditched "have it your way" as a slogan doesn't mean you have to! Once diagnosed, living with Common Variable Immunodeficiency (CVID) requires lifetime infusion treatment. The pillar of treatment…
Ankylosing Spondylitis is no joke. It is a serious condition that can cause a lot of pain. You wouldn't guess it from these twitter users who are making light of…
Helping hands can do truly amazing things. Eurodis, the champions of Rare Disease Day, displays that in their 2015 Rare Disease Day theme video. https://www.youtube.com/embed/zQIeiQ7S6tQ Started with a cause…
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