On January 8, 2017, a man with one of the most brilliant minds of our age celebrated his 75th birthday. This, by itself, wouldn't be particularly remarkable, however the celebrant…
It seems amazing that more than two years have passed since the Ice Bucket Challenge for ALS captivated the imaginations of Americans. Despite all the hubbub around the challenge, let’s…
Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s Disease, is a degenerative motor neuron disease. Most of us have heard of it in large part due to the awareness…
What does the word ‘leadership’ mean to you? Does it mean being good at your job, being well liked, or being in charge of everyone? There are plenty of people…
Every year, approximately 6,000 people in the United States are diagnosed with amyotrophic lateral sclerosis, more commonly known as ALS. This disease is a degenerative condition that slowly kills off…
Just over a week until Christmas and Hanukkah everyone! I am counting down the days until the celebrations begin with friends and family, which albeit can be stressful with chronic…
Every year, my friend, Meg Marlowe, participates in the Walk to Defeat ALS, which benefits research for amyotrophic lateral sclerosis, or ALS. Meg's a great person, but beyond that, she has a very personal reason…
It's Frida-yay Everyone! Celebrate it by catching up on this week's Editor's Choice. 'Tis the season of giving and we have a heartbreaking story on a case of gastroschisis that will…
I know it’s perverse, but the second thing that popped into my head when I read about iron-based proteins and ALS, was a toy I loved as a kid. There…
You all remember the ALS Ice Bucket Challenge don't you? Well, according to the NY Daily News, researchers at The University of Massachusetts Medical School have discovered the gene that is responsible for…
For a disease affecting so few people, amyotrophic lateral sclerosis (or ALS) has a somewhat higher than normal profile. That’s due in small part to the ubiquitous “Ice Bucket Challenge”…
When people are diagnosed with amyotrophic lateral sclerosis (ALS), it’s overwhelming for both patients and their loved ones because it does not discriminate and can strike at any time. This…
The Ice Bucket Challenge was a huge success for raising awareness and funding for ALS research. But this year, there is a new fundraising effort for the debilitating, neurodegenerative disease called…
You may not recognize what ALS (Amyotrophic lateral sclerosis) is, you may recognize it as Lou Gherig's Disease, or that disease that Stephen Hawking has. It is a terrible disease that…
Amanda and Chris Bernier, and their toddler Arabella, are in many ways, a rare family. Mom Amanda and dad Chris are both Wisconsin volunteer firefighters. Or at least Amanda was,…
Because her life has been defined not just by words, but by The Word, Connecticut evangelical pastor Nancy Butler (Pastor Nancy) has a Bible quotation stenciled in script over the…
Most of us are familiar with the film The Theory of Everything, which chronicles Stephen Hawking’s affliction with ALS. But there is another film just as compelling: Transfatty Lives by…
Have a rare disease? Have you ever been to a national patient conference? These are invaluable opportunities to connect with others who share your challenges and concerns! Imagine being in…
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