Sarah experienced her first symptoms at age eight. She suffered frequent and long migraines, despite being so young. Doctors were concerned she may have meningitis but never got to the…
Behcet’s Awareness Day is May 20th! Behcet’s disease (also known as Behçet’s and Behçet’s syndrome) is a rare condition that causes chronic inflammation which manifests as ulcers (commonly referred to…
Unknown origins of birth. Overcoming enormous personal obstacles at an early age. A mysterious medical diagnosis. Making a drastic new change in life. This could - and is! - a…
Those of us with rare diseases like behcet's and fibromyalgia, that cause great pain, can often get frustrated and irritable because we try everything, do everything right, and yet we are still…
Panuveitis refers to generalized inflammation of the uveal tract, the retina, and vitreous humor; in other words, all parts of the eye. Most cases have no known cause, but some…
Do you ever have those moments where you're doing something that seems very routine, but then you realize with sudden clarity how much of it is affected by your chronic…
Every parent here knows that feeling of helplessness when you see your child in pain from a chronic rare disease that has no cure. Sara and her husband have experienced…
Una de las partes frustrantes de tener la enfermedad de Behçet es que puede afectar a muchas partes diferentes del cuerpo. Y a diferencia de otras condiciones que sólo pueden…
Si usted tiene un amigo o miembro de la familia que recientemente fue diagnosticado con la enfermedad de Behçet, es el momento de educar acerca de la enfermedad, porque cuanto…
¿No te odio, haga clic en el cebo? ¡Hago! Mientras que la búsqueda de información real acerca de la Enfermedad de Behcet - porque, lo necesitamos - me encontré con…
Happy Weekend Before the Election Patient Worthians! Get some rest, Tuesday is going to be a big one in the United States. But while you're hanging out, check out these…
One of the (many) issues with having Behcet's disease is that very few of the medications we use on a daily basis have ever been studied in people with our…
Welcome Back Patient Worthians! Acromegaly patients will be interested to see some new research happening in the name of rare disease. Speaking of research, there is a Castleman's event coming up…
I've found it hard to find blogs and first person accounts of Behcet's disease that aren't just miserable. Maybe it's because I'm really lucky and my disease isn't as bad…
Al igual que romper con tu pareja puede ser difícil de hacer, por lo que se puede romper con su médico. Después de todo, él o ella puede haber estado…
Welcome to this week's Editor's Choice! We hope that those of you who are having a back-to-school week, are smooth sailing! This week, we have some news on IPF and hemophilia…
Do you live in the United States? Are you an adult? (Meaning, are you older than 18? Whether or not you have your life together does not apply to this…
Do you ever have those days where you're trying so hard to put one foot in front of the other, and then someone has the balls to ask you why…
When you believe in fairy tales, anything is possible. When you believe in modern medicine, there are some limitations. However, the new use of low-dose naltrexone might seem like a…
So, you got the big ol' BD diagnosis, huh? And now you're trying to figure out how to live with it, right? Same here. See, Behcet's disease (or Behcet's syndrome) is…
When you have a chronic illness, "wild" nights tend to become a thing of the past. No more late nights at the club, hanging out until midnight in the middle…
Here are my typical evenings with Behcet's disease: I get home from work and, of course, I'm starving. But I'm also exhausted. Some days, I've planned ahead and have an easy…
Behçet’s disease. If you’ve never heard of it, it’s a disease that causes blood vessel inflammation. If you have heard of it—or actually have Behçet’s—you’re probably well aware of the resulting…
To SubQ, or not to SubQ? That is a question many people living with chronic illnesses face at some point in their lives. For some, subcutaneous injection (SubQ) is the…
If you have a friend or family member who recently was diagnosed with Behcet’s Disease, it’s time to educate yourself about the disease—because the more you know—you’ll be better prepared to…
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